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Sleeve surgery and scarring alopecia



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Hi, I am new to the forum. I am thinking about the sleeve surgery but I have not had a consultation yet. I have several concerns. I have scarring alopecia which is basically permanent and irreversible Hair loss. I have large bald spots all over my head and the condition is worsening. I know it is possible to lose hair after the surgery as I know of three people who had the surgery and all three have lost a lot of hair. With scarring alopecia, there is the potential to lose hair ANYWHERE on the body. I am scared I may lose my eyelashes and eyebrows. I have multiple medical issues: diabetes, high blood pressure, anemia, Vitamin D deficiency, sleep apnea, interstitial cystitis, fibromyalgia and a history of recurrent shingles (two episodes in the past year). I obviously have a weakened immune system so I don't even know if my body can handle the surgery I suffer from severe depression as well, mainly due to my medical problems. I would like to know if there is anyone who has the scarring alopecia who had the surgery and lost hair,including facial hair. Also, if anyone would like to comment on any of the other medical conditions I listed. Thanks.

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@@animallover1247 - diabetes, high blood pressure, sleep apnea and fibromyalgia may all be affected tremendously by WLS - IMO. I was pre-diabetic, high blood pressure and had undiagnosed sleep apnea and fibromyalgia. My A1C never got above 5.9 - but one time about 2 years ago and it has been below 5 for sometime. BP has dropped, I sleep much better and I don't ache all over. I am 8 weeks out today - not saying you will be cured but just eliminating diabetes part alone would be a tremendous plus for WLS. I am losing hair & my breath stinks (ketosis) - I am so happy to report!

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I have alopecia areata and am scheduled for surgery July 20th. I have had alopecia for the last 20 years. I have had some periods of tons falling out and bald spots everywhere, to periods where I hardly loose any. I am, like you terrified of loosing more hair due to the surgery but I think I am more terrified of being heavy forever.

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I have alopecia areata and am scheduled for surgery July 20th. I have had alopecia for the last 20 years. I have had some periods of tons falling out and bald spots everywhere, to periods where I hardly loose any. I am, like you terrified of loosing more hair due to the surgery but I think I am more terrified of being heavy forever.

When you have periods where your hair falls out, how do you deal with it? I mean do you have to wear wigs, hairpieces or anything like that? With alopecia areata, the hair grows back, is that correct? Mine never will. Luckily i have long hair and no one can tell unless I wear it up but if more falls out, I would have to do something. Please let me know how your hair journey goes after surgery.

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I seem to always have a bald spot here and there. Depending on where they are just depends on how I wear my hair. I have only had to wear a wig when this first started when I was 19. I lost almost all of my hair then, especially the front. It is very hard to deal with at times such as now there is a spot that no matter how I wear my hair you can see that shiny scalp. I have started taking the Biotin they recommend for Hair loss with hopes that the hair I do have will be healthy and stay put. I will definitely let you know how this journey goes. Good luck to you also. It had to be worth it, right ?

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      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. LeighaTR

        I hope your surgery on Wednesday goes well. You will be able to do all sorts of new things as you find your new normal after surgery. I don't know this from experience yet, but I am seeing a lot of positive things from people who have had it done. Best of luck!

    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

        Now I have a whole new big, bigger, biggest, best days ever. I am out there with those skinny people doing stuff i could never have dreamt of. Food is now an after thought. It doesn't consume my day. I still enjoy the good home cooked food but I eat smaller portions. I leave food on my plate when I am full. I can no longer hear my mother's voice saying eat it all up, ther are starving children in Africa who would want that!

        I still cook for family feasts, I love cooking. I still do holidays but I have changed from the All inclusive drinking and eating everything everyday kind to Self catering accommodation. This gives me the choice of cooking or eating out as I choose. I rarely drink anymore as I usually travel alone now and I feel I need to keep aware of my surroundings.

        I don't know at what point my life expanded, was it when I lost 100 pounds? Was it when I left my walking stick at home ? Was it when I said yes to an outing instead of finding an excuse to stay home ? i look back at my last five years and wonder how loosing weight has made such a difference. Be ready to amaze yourself.

        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

    • CaseyP1011

      Officially here for a long time, not just a good time💪
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