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Losing Hope Sleeve Leak 8 mos post op



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Hey, I would love to hear your outcome. I am currently dealing with a leak. I caught it a few days after my surgery. I was on antibiotics and a PICC line for 2 weeks at Evergreen hospital and I had 2 drains placed as well. I was transferred to Virginia Mason in Seattle for stent placement but they decided to put two pigtail drains and Botox in my sphincter. 3 weeks later I am still waiting for the hole/leak to heal. I feel like it's never going to end and its extremely frustrating. I also lost my job over this, they notified me last week. I wish you the best and I would love to hear your outcome!

Hi there in regards to my daughter and her vgs status, she started her own acct and thought u would be interested in reading her story... she's celina I'm also following her if ur able to find her that way

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I am very sorry to hear what you are going through. I had my gastric sleeve surgery done on Sept 27, 2015. 3 weeks later they discovered I had a leak when I went in for a follow up appt. I knew something was wrong because I couldn't eat or drink and constantly had pain. I spend at least 7 weeks in the hospital on 2 different occasions, and then was readmitted at least 6 more times for 1-5 day stays. I was on the tpn but it made me very sick. They put a stent in me which was very painful at first and then it was tolerable later. My doctor took it out in 4 weeks. I know the pain and depression you go through with this. Alot of people will tell you well, it was an elective surgery so you basically asked for it. Well I say the surgery was elective but the outcome I did not sign up for! My original doctor who did the gastric sleeve surgery I have not seen since he discovered I had a leak. I was put in an ambulance and sent to a different hospital where they had more specialization in gastric leaks. I have not seen the doctor since which really made me angry. I became very depressed and would never recommend this surgery to anyone. I am 7 months out and still experience pain, which I am still on pain meds. I still have alot of days where I can't eat or drink. If I do I get really sick. I have lost 128 pounds since Sept 27. I like the fact that I can get into smaller clothes but I was healthier when I was 340 lbs, so it seems like. Anyways, I am very fortunate to have kept my job even though I was out for 6 months. I also am very fortunate to have my family that was very helpful and caring throughout this ordeal. I still have a small contained leak and I am very fearful that it will bust open. I can basically eat anything on my good days, which are few. I really hope that you can get though this hard time and know that sometimes you are the only one that can fight for your family as well as yourself. Its sad when your own family cant be there during this very troubled and difficult time. I wish you the best and hope that everything works out for you.

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@@tlennerton I'm sorry to hear about your ordeal. Do you feel like there is light at the end of the tunnel at this point or do you anticipate more issues moving forward?

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    • LeighaTR

      I am new here today... and only two weeks out from my sleeve surgery on the 23rd. I am amazed I have kept my calories down to 467 today so far... that leaves me almost 750 left for dinner and maybe a snack. This is going to be tough for two weeks... but I have to believe I can do it!
      · 0 replies
      1. This update has no replies.
    • Doughgurl

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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. LeighaTR

        I hope your surgery on Wednesday goes well. You will be able to do all sorts of new things as you find your new normal after surgery. I don't know this from experience yet, but I am seeing a lot of positive things from people who have had it done. Best of luck!

    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

        Now I have a whole new big, bigger, biggest, best days ever. I am out there with those skinny people doing stuff i could never have dreamt of. Food is now an after thought. It doesn't consume my day. I still enjoy the good home cooked food but I eat smaller portions. I leave food on my plate when I am full. I can no longer hear my mother's voice saying eat it all up, ther are starving children in Africa who would want that!

        I still cook for family feasts, I love cooking. I still do holidays but I have changed from the All inclusive drinking and eating everything everyday kind to Self catering accommodation. This gives me the choice of cooking or eating out as I choose. I rarely drink anymore as I usually travel alone now and I feel I need to keep aware of my surroundings.

        I don't know at what point my life expanded, was it when I lost 100 pounds? Was it when I left my walking stick at home ? Was it when I said yes to an outing instead of finding an excuse to stay home ? i look back at my last five years and wonder how loosing weight has made such a difference. Be ready to amaze yourself.

        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

    • CaseyP1011

      Officially here for a long time, not just a good time💪
      · 0 replies
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