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I need advice from a nurse or medical person (not WLS related)



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I caught a staph infection in the hospital when I had back surgery and became septic. I did a round of 2 weeks of IV antibiotics out patient. Then I thought my incision was all healed and the infection was gone so I went out of town.. I ended up having to go to the ER in a strange town because it became infected again as soon as I was off the antibiotics. This time I was put on some really strong antibiotics for 3 weeks that really was hell to take. It caused extreme diarrhea. I was off of them for 5 days and now the infection

came back. I'm on another antibiotic now but I really have my doubts that it won't come back when I finish them.

I don't know what to do. My surgeon tried packing the incision after he drained it and I went in every day to have the packing changed. This was while I was on antibiotics the 2nd time. It finally closed enough that he couldn't do that but he said it wouldn't come back because it healed from the inside.

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After three rounds of antibiotics, I think I would ask for a referral to an infectious disease specialist.

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Not a nurse. IMO you need a specialist used to treating chronic recurrent infections. I don't know if that would be an infectious disease doctor or an allergist. You may be okay now that the abscess is healed but if not you should request your doctor call in a specialist.

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I am so sorry your are struggling with this infection. I am not medical but support people with disabilities to get medical care that they might need. I have been through staph infections with a few people. They do take forever to heal. Again, I am not medical but I have seen the best results when people have finally been referred to a wound care specialist. A good wound care specialist can be life changing.

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I agree with both of the prior posts; it sounds like it's time for a specialist. I would also emphasize nutrition. If you are nutritionally depleted it is harder to fight off infections. Good luck. Hope this clears.

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I would ask to see an infectious disease doctor. Do you have MRSA?

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I am a nurse - and I agree with everything I've seen posted. You also need 90 grams of Protein per day, according to my doc... and if you add Probiotics in (take 2 hours after your antibiotics) you can avoid most if not all of the diarrhea.

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No, I don't have MRSA. It's Staph but not MRSA. It responds to antibiotics, but it comes back.

I am going to try to get a referral to a wound care specialist. My daughter is a nurse and she is afraid they won't consider it a wound because at the moment, it's closed. I know as soon as I go off the antibiotics, it will come back. Then it will be a wound again. I'm going to at least call them tomorrow for advice.

I live in the middle of nowhere and it's hard to find doctors for Infectious disease anywhere but in Portland but I did find a wound care specialist 2 hours closer than that.

I've been on a really expensive really good probiotic ever since this mess started.

Edited by Oregondaisy

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I finally got into an infectious disease specialist. I wasn't in her office 5 minutes and she told me I had to be admitted to the hospital immediately. She found me another surgeon who opened me back up and cleaned out the infection. She has me on a picc line for 6 weeks and oral antibitoics after that. I have to give myself infusions 3 x a day and it freaks me out.

The infection got into my bones. I 'd like to strangle my first surgeon!

At least I am on the road to recovery now.

Edited by Oregondaisy

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I just saw this post and I am so glad you saw a specialist. Staff is nothing to play with and I can't believe they didn't refer you to someone else before you had to take matters into your own hands. Good luck on your journey.

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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

        Now I have a whole new big, bigger, biggest, best days ever. I am out there with those skinny people doing stuff i could never have dreamt of. Food is now an after thought. It doesn't consume my day. I still enjoy the good home cooked food but I eat smaller portions. I leave food on my plate when I am full. I can no longer hear my mother's voice saying eat it all up, ther are starving children in Africa who would want that!

        I still cook for family feasts, I love cooking. I still do holidays but I have changed from the All inclusive drinking and eating everything everyday kind to Self catering accommodation. This gives me the choice of cooking or eating out as I choose. I rarely drink anymore as I usually travel alone now and I feel I need to keep aware of my surroundings.

        I don't know at what point my life expanded, was it when I lost 100 pounds? Was it when I left my walking stick at home ? Was it when I said yes to an outing instead of finding an excuse to stay home ? i look back at my last five years and wonder how loosing weight has made such a difference. Be ready to amaze yourself.

        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

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