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Sleevers with Rheumatoid Arthritis



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Hi, I was sleeved 5 weeks ago tomorrow. I'm feeling great. I am of course over due for my infusion by 2 weeks. I'm scheduled this week for it.

I was wondering how others are doing?

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I haven't had surgery yet (3/10), but I'm so glad to meet a sleever with RA. I was diagnosed 3 or so years ago, but had symptoms for at least 10 before that. I had my remicade Friday and it remains to be seen how long I will wait to go back after. The rheumatologist said I only have to miss a week or so of methotrexate injections, so that's good. I can't help but think the weight coming off the joints will counteract the delay in getting the infusion on board...I sure hope so!

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I have RA, as well but have been avoiding medication because of the effects on my weight! :(. I told myself that I was going to use this journey as also a way for me to go gluten free. I've been tested for celiac and other related allergies but the tests always came back negative. I've read so many articles on how gluten affects joint pain that I can't help but think that it couldn't hurt. I'm only 2.5 weeks post op, 27 lbs down, and have stayed gluten free since surgery....my joint pain has subsided!!! I don't know if it's the weight or gluten but I've not felt this good in years! I hope you all experience the same relief!!! ????

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I have RA and have not been sleeved yet. I'm hoping my joints will feel better after this weight comes off. :)

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Thursday I go for my infusion. I stopped methotrexate over a year ago! I'm just now beginning to feel as though I need my remicade.

Good luck everyone with your surgery! So far I'm thrilled.

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I was sleeved on June 4th and immediately after I had a major flare up of my arthritis. Previously I relied on ibruprofen for pain relief day to day and for flare ups I went on corticosteroids and methotrexate. No NSAIDS now and have no relief with narcotic analgesics. I hope to start methotrexate soon. The pain has been unbearable, in fact I went to the ER last night because I seriously started to think maybe I had a blood clot. No blood clot, Thank God! I do have Baker's cysts behind my knee, due to inflammation. I will have to follow up with a surgeon. I have lost 19.6 lbs. and had hoped for more but due to lack of mobility I know I am not burning the calories I could be. I look forward to feeling better so I can make more progress! This will not stop me or get me down, I have come to far!!!!

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I haven't been sleeved, yet. I am just beginning my journey. I have my surgeon consult on 6/30 and I will start my 3 month weight management the same day. I just have to weigh my exact weight on the day on consult to qualify as 40+ bmi, so that my insurance will cover the surgery. Anyway, I also have RA, Lupus, Sjorens, and antiphospholipid antibody syndrome. Right now, I'm just on Imuran for the lupus/RA/Sjogrens and I'm on eliquis for the ASP. all autoimmune. The lupus/ RA have played a major part in my not-so-active lifestyle. I am a special needs Mama, and honestly, after I've taken care of him, I'm just give out. I know that lupus/ra etc, won't be cured by the weight loss from surgery. I just hope that by losing the weight, I've done everything I can do to not add to the risks I face from these diseases. My special needs son is going to need his Mama for many many more years. My mother passed away the day after her 48th birthday. I was 24. I don't want the same story ending.

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<p>I haven't been sleeved, yet. I am just beginning my journey. I have my surgeon consult on 6/30 and I will start my 3 month weight management the same day. I just have to weigh my exact weight on the day on consult to qualify as 40+ bmi, so that my insurance will cover the surgery. Anyway, I also have RA, Lupus, Sjorens, and antiphospholipid antibody syndrome. Right now, I'm just on Imuran for the lupus/RA/Sjogrens and I'm on eliquis for the ASP. all autoimmune. The lupus/ RA have played a major part in my not-so-active lifestyle. I am a special needs Mama, and honestly, after I've taken care of him, I'm just give out. I know that lupus/ra etc, won't be cured by the weight loss from surgery. I just hope that by losing the weight, I've done everything I can do to not add to the risks I face from these diseases. My special needs son is going to need his Mama for many many more years. My mother passed away the day after her 48th birthday. I was 24. I don't want the same story ending.</p>

I am sorry to hear about your Momma. :( what did she die from?

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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 0 replies
      1. This update has no replies.
    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

        Now I have a whole new big, bigger, biggest, best days ever. I am out there with those skinny people doing stuff i could never have dreamt of. Food is now an after thought. It doesn't consume my day. I still enjoy the good home cooked food but I eat smaller portions. I leave food on my plate when I am full. I can no longer hear my mother's voice saying eat it all up, ther are starving children in Africa who would want that!

        I still cook for family feasts, I love cooking. I still do holidays but I have changed from the All inclusive drinking and eating everything everyday kind to Self catering accommodation. This gives me the choice of cooking or eating out as I choose. I rarely drink anymore as I usually travel alone now and I feel I need to keep aware of my surroundings.

        I don't know at what point my life expanded, was it when I lost 100 pounds? Was it when I left my walking stick at home ? Was it when I said yes to an outing instead of finding an excuse to stay home ? i look back at my last five years and wonder how loosing weight has made such a difference. Be ready to amaze yourself.

        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

    • CaseyP1011

      Officially here for a long time, not just a good time💪
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    • KimBaxleyWilson

      Three months and four days ago... I was in Costa Rica having a life changing surgery! Yesterday we had a followup visit with Dr. Esmeral via video chat and this morning my middle number changed.  I'm down 47lbs and two pants sizes. I can wear a Large tshirt for the first time in like... 14 years! Woot!! Everything is going great. I have zero regrets. I went down to the riverwalk with a friend and walked 2 miles on Monday without even getting fatigued. And no more snoring or chugging pickle juice for crazy leg cramps! I need to go to the gym more... I'm making new shirts next week so that will motivate me. LOL But I'm also just not as TIRED all the time! I have a LONG way to go...but seeing the progress on the scales and in the mirror is a huge motivator!! Thank you all for cheering me on and supporting me!!
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      https://alluniqueguide.com/java-burn-coffee-reviews/
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