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Calling all AUTOIMMUNE sleevers



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Welcome! So if you had surgery sept 17 and have stalled a bit, I wouldn't worry about it. As long as you've lost over the last 30 days, then occasional stalls are to be expected. From what I have read, for those with autoimmune, the best diet is one that is 40% Protein, 40% fat! and 20% carbs. That's what I switched to a month ago, and it has really helped my weight loss start up again. You might try that and see if it works?

Diet is really messing me up – I'm doing my best to follow it but it is difficult at times. I don't always know what to eat. It's completely opposite of what I've always been talk to eat and then at the same time, I'm dealing with all this pain and all of the different medical issues that I have and it's not so easy to plan and cook and prepare for when I'm in pain.

I have already been diagnosed with endometriosis, PC OS, spinal stenosis, rheumatoid arthritis, osteoarthritis, fibromyalgia, nerve damage, just to name a few and now I apparently have psoriatic arthritis as well. I'm just trying to work on the right now. My husband recently up and filed for divorce without warning and I'm kind of at a loss there as well. I'm just not sure what to do! My rheumatologist is wonderful – I love her to death… I finally reached the time postop where I can actually go back on my Re: minutes… he is already dating...

I've been on prednisone, methotrexate, and Orencia. I'm also on various medications for pain. Now with the psoriatic arthritis, she's considering switching me to another drug…

I'd really like to get a handle on the diet though. So much of what I've been shown doesn't make sense. The dietician says one thing and then another. People have suggested that I go see another dietitian but that's not something I can afford to do, So in the meantime I just feel stuck…

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I don't know about everybody else but I was prompted to download an app called BariatricPal and it's everything seems to be in the app format instead of having to go to the website

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I didn't see where to join...if I understand correctly I have to be on a computer?? I have psoriasis as well as lichen planus and wanted to join.

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Redbean I think the groups kind of got lost in the transition. Let me see if I can find it again.

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all right, here's the new link. I still haven't figured out how to access it from a mobile device. I'll give Alex a few days of breathing room before I hit him with this one :)

http://www.bariatricpal.com/groups/357-autoimmune-sleevers/

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I have fibromyalgia and it has been horrible the last 3 weeks. I can barely walk and the headaches are non stop. I was wondering if my loss of 48 pounds in 3 months has caused the increased pain, but reading this topic I am wondering if it is a lack of vit. D. I am going to try to up my dose and see if things improve. I am so tired of not feeling good. I can not even walk, which I really enjoy.

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I have fibromyalgia and it has been horrible the last 3 weeks. I can barely walk and the headaches are non stop. I was wondering if my loss of 48 pounds in 3 months has caused the increased pain, but reading this topic I am wondering if it is a lack of vit. D. I am going to try to up my dose and see if things improve. I am so tired of not feeling good. I can not even walk, which I really enjoy.

Interestingly, I almost feel like I'm having more flareups too but I don't know if that's because I want to be more active now, and so perhaps I notice it more when I can't go walk or do something I want to do.

I do know that in between flares, I hurt a lot less so I count that as a blessing. You may need your pain/fibro meds adjusted perhaps? Mine have been adjusted downward but perhaps yours need increasing or you may need something different. Maybe time for a phone call to the doc?

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Gamergirl, I woke up feeling better today so I am hoping that the increased D vit, is going to be the help I need. Believe it or not I only take tylenol or Ibuprofen for my really bad flareups. I failed on all the others. So I gut it out most flare ups with just conventional over the counter meds. Yesterday's flare up was a doozy, but today I feel better. I did also take a walk which maybe made me feel better(even if I limped along). I have a curious type of Fibro which is only really bad enough to whine about 2-3 months out of the year,the rest of the time the pain, I perceive, is mild 3-4 on a 1- 10 scale, so I just keep moving. Yesterday was a 10+. I also remember someone, maybe you, posting about having pain after losing weight. Its like all my joints are loose and my bones seem to be clicking in places they never clicked before. I think an adjustment by a DO is in order. I think you are right a trip to the DR is in order.

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    • Doughgurl

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      1. Phil Penn

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    • Doughgurl

      Hey everyone. I'm new here so I thought I should introduce myself. I am 53y/o and am scheduled for Gastric Bypass on June 25th, 2025. I'm located in San Antonio, Texas. I will be having my surgery in Tiajuana Mexico. I've wanted this for years, but I always had insurance where bariatric procedures were excluded. Finally I am able to afford to pay out of pocket.  I can't wait to get started, and I hope I'm prepared for the initial period of "hell". I know what I have signed up for, but I'm sure the good to come will out way the temporary period of discomfort and feelings of regret. I'd love to find people to talk to who have been through the same procedure or experience before. So I look forward to meeting you all. Hope you have a great week!
      · 2 replies
      1. Selina333

        I'm so happy for you! You are about to change your life. I was so glad to get the sleeve done in Dec. I didn't have feelings of regret overall. And I'm down almost 60 lbs. I do feel a little sad at restaurants. I can barely eat half a kid's meal. I get adults meals often because kid ones don't have the same offerings at times. Then I feel obligated to eat on that until it's gone and that can be days. So the restaurant thing isn't great for me. All the rest is fine by me! I love feeling full with very little. I do wish I could drink when eating. And will sip at the end. Just a strong habit to stop. But I'm working on it! You will do fine! Just keep focused on your desire to be different. Not better or worse. But different. I am happy both ways but my low back doesn't like me that heavy. So I listened (also my feet!). LOL! Update us on your journey! I'm not far from you. I'm in Houston. Good luck and I hope it all goes smoothly! Would love to see pics of the town you go to for this. I've never been there. Neat you will be traveling for this! Enjoy the journey. Take it one day at a time. Sometimes a few hours at a time. Follow all recommendations as best you can. 💗

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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. LeighaTR

        I hope your surgery on Wednesday goes well. You will be able to do all sorts of new things as you find your new normal after surgery. I don't know this from experience yet, but I am seeing a lot of positive things from people who have had it done. Best of luck!

    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

        Now I have a whole new big, bigger, biggest, best days ever. I am out there with those skinny people doing stuff i could never have dreamt of. Food is now an after thought. It doesn't consume my day. I still enjoy the good home cooked food but I eat smaller portions. I leave food on my plate when I am full. I can no longer hear my mother's voice saying eat it all up, ther are starving children in Africa who would want that!

        I still cook for family feasts, I love cooking. I still do holidays but I have changed from the All inclusive drinking and eating everything everyday kind to Self catering accommodation. This gives me the choice of cooking or eating out as I choose. I rarely drink anymore as I usually travel alone now and I feel I need to keep aware of my surroundings.

        I don't know at what point my life expanded, was it when I lost 100 pounds? Was it when I left my walking stick at home ? Was it when I said yes to an outing instead of finding an excuse to stay home ? i look back at my last five years and wonder how loosing weight has made such a difference. Be ready to amaze yourself.

        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

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