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Pray for a scope this week



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I talked to several nurses in my surgeon' office 3 weeks ago and they believe I have a stricture. I have had to go back to liquids since then. They told me my surgeon won't do a EGD until we are 6 weeks post. I will be 6 weeks this Thursday. I'm planning to call tomorrow to see if they will schedule me finally.

You know... I could deal with the vomiting when things get stuck. The pain though is nearly unbearable! It's getting steadily worse and when I drink now I feel the pain though its tolerable unlike when I have anything that's not a total liquid. Even puréed foods cause crazy pain.

The other night I had to make my best friend pull over so I could puke on the side of the road! I really think if they won't schedule me I may go crazy.

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I talked to several nurses in my surgeon' office 3 weeks ago and they believe I have a stricture. I have had to go back to liquids since then. They told me my surgeon won't do a EGD until we are 6 weeks post. I will be 6 weeks this Thursday. I'm planning to call tomorrow to see if they will schedule me finally.

You know... I could deal with the vomiting when things get stuck. The pain though is nearly unbearable! It's getting steadily worse and when I drink now I feel the pain though its tolerable unlike when I have anything that's not a total liquid. Even puréed foods cause crazy pain.

The other night I had to make my best friend pull over so I could puke on the side of the road! I really think if they won't schedule me I may go crazy.

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Would you mind sharing more about your symptoms? All of a sudden I'm not able to eat but about am ounce of cottage cheese and only with mills salsa on it. I chew every baby spoon that i eat at least 25 times...and i do count. Now I'm having even Water feel like its getting stuck. I tried to eat tonight and have been miserable and vomiting. I wasn't able to eat even a teaspoon. I'm now eating only once a day and maybe an ounce total. I'm also struggling with my Protein shake and i actually love it.

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Would you mind sharing more about your symptoms? All of a sudden I'm not able to eat but about am ounce of cottage cheese and only with mills salsa on it. I chew every baby spoon that i eat at least 25 times...and i do count. Now I'm having even Water feel like its getting stuck. I tried to eat tonight and have been miserable and vomiting. I wasn't able to eat even a teaspoon. I'm now eating only once a day and maybe an ounce total. I'm also struggling with my Protein shake and i actually love it.

If you feel like things are getting stuck especially Water then you should probably call your surgeon.

You really need to be eating more than once a day... there is no way you are getting enough calories and Protein that way. Not that I'm getting enough either but I've known that my doctor won't do anything until 6 weeks post. Don't get me started on how upset I am about that.

For me the pain is the worst part. It feels like someone is squeezing under my rib cage as hard as they can and the pain radiates around my rib cage to my back. I feel like I can hardly breath and the whole time I'm feeling food sitting in my throat. Sometimes it comes all the way back up and sometimes it doesn't. It started on just a few items and then progressed to pureed and like I said now I'm feeling this way with liquids too.

One of the nurses I spoke to a few weeks ago honestly had the nerve to tell me that if I got too bad dehydrated to go to the ER for fluids. Seriously? Are ya'll going to pay that bill?

I've called them and left a message to set up the scope and I'm praying they can get me in this week finally.

Good luck to you!

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I talked to several nurses in my surgeon' office 3 weeks ago and they believe I have a stricture. I have had to go back to liquids since then. They told me my surgeon won't do a EGD until we are 6 weeks post. I will be 6 weeks this Thursday. I'm planning to call tomorrow to see if they will schedule me finally.

You know... I could deal with the vomiting when things get stuck. The pain though is nearly unbearable! It's getting steadily worse and when I drink now I feel the pain though its tolerable unlike when I have anything that's not a total liquid. Even puréed foods cause crazy pain.

The other night I had to make my best friend pull over so I could puke on the side of the road! I really think if they won't schedule me I may go crazy.

Sent from my iPhone using RNYTalk

So sorry you are having so much pain. I hope you get scheduled soon.

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That really sucks! I hope u get in there this week and get this resolved...keep us posted on how it goes! Best Wishes

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Left a message for a nurse at 9am. It's nearly 6pm and NO one called me back. I am beyond angry with my surgeon's office at this point.

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I know how you feel. I am waiting for the Dr's office to call me back as well. I had an upper GI done on Friday and the MD doing the procedure confirmed that I have a stricture. I called after I got home from the test and the office said that they already had the test results and that someone would call me. Called again this morning and same story of having someone call me. it's gotten progressively worse. i started feeling on Sunday night that liquids were getting stuck as well so I'm sipping everything and hoping the liquid will go through the opening.

I hope they get back to you soon and you get scheduled. I'm so frustrated that they couldn't just give me a call back to review test results and discuss next steps. I'm worried that if I stop being able to hold down liquids that I'm going to have to go to the ER.

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I know how you feel. I am waiting for the Dr's office to call me back as well. I had an upper GI done on Friday and the MD doing the procedure confirmed that I have a stricture. I called after I got home from the test and the office said that they already had the test results and that someone would call me. Called again this morning and same story of having someone call me. it's gotten progressively worse. i started feeling on Sunday night that liquids were getting stuck as well so I'm sipping everything and hoping the liquid will go through the opening.

I hope they get back to you soon and you get scheduled. I'm so frustrated that they couldn't just give me a call back to review test results and discuss next steps. I'm worried that if I stop being able to hold down liquids that I'm going to have to go to the ER.

Just called again and left another message- receptionist said she'd tell the nurse to check the voicemail this time. It shouldn't be this hard to get in touch with someone!

I don't know about you but I honestly feel sometimes as though now that I'm post-op they don't care as much. Pre-op they needed to reel me in and get my money but now that they have been paid they just don't seem to care as much. I might just be too emotional since I've been dealing with this but I don't feel like they'd really tried to help me.

I hope we both get our strictures fixed soon so we can eat! And drink.... I'm dehydrated and have been for weeks. I probably should have gone to the ER a few times but my veins are really hard to find... add dehydration to that mix and I just know they'd have to stick me many many times. Just the thought of that has kept me from going.

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Well I finally got in touch with them.... no one ever did call back today either but I emailed the head RN and she got my coordinator involved.

Dr wants me to go to the ER tomorrow and they will run barium test and Upper GI. Then they will page him with the results and decide what to do. Going to the ER just seems really stupid to me but I'll do whatever at this point to get some relief! I've already told my boss I'll need to leave early so I can do this. I'm so happy that they are finally going to do something for me after 3 weeks.

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Just called again and left another message- receptionist said she'd tell the nurse to check the voicemail this time. It shouldn't be this hard to get in touch with someone!

I don't know about you but I honestly feel sometimes as though now that I'm post-op they don't care as much. Pre-op they needed to reel me in and get my money but now that they have been paid they just don't seem to care as much. I might just be too emotional since I've been dealing with this but I don't feel like they'd really tried to help me.

I hope we both get our strictures fixed soon so we can eat! And drink.... I'm dehydrated and have been for weeks. I probably should have gone to the ER a few times but my veins are really hard to find... add dehydration to that mix and I just know they'd have to stick me many many times. Just the thought of that has kept me from going.

I feel the same way!! I had complications after surgery. I laid in a hospital bed for 2 days before my surgeon finally shagged his ass in to see me.

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I'm actually sitting in the ER as I type because I'm having all of your same issues. Can't even sip Water without pain. 15ml hydro condone isn't helping the pain, nor is nausea medicine helping at all. ER doesn't think I'm a priority. Nice huh?

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I'm actually sitting in the ER as I type because I'm having all of your same issues. Can't even sip Water without pain. 15ml hydro condone isn't helping the pain, nor is nausea medicine helping at all. ER doesn't think I'm a priority. Nice huh?

Oh no! Guess I have that to look forward to tomorrow then. I have zofran and phenergen and they didn't help with the nausea either. Its not typical nausea though... things are coming back up or feel like they are regardless of the medicine you take. There is just no where for the food/drink to go and no amount of anti-nausea meds are going to force the food down.

Hopefully they will get to you soon and fix you up. I know how awful the pain is.... feels like someone is squeezing as hard as they can around your rib cage. It's nearly unbearable. Feel better!

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Oh no! Guess I have that to look forward to tomorrow then. I have zofran and phenergen and they didn't help with the nausea either. Its not typical nausea though... things are coming back up or feel like they are regardless of the medicine you take. There is just no where for the food/drink to go and no amount of anti-nausea meds are going to force the food down.

Hopefully they will get to you soon and fix you up. I know how awful the pain is.... feels like someone is squeezing as hard as they can around your rib cage. It's nearly unbearable. Feel better!

Well, this ER dr thinks it may be a marginal ulcer. Possible. He is going to have me drink some things and see if it helps. He doesn't think stricture because its so soon.

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So they have done gastrografin test and barium tablet. The tablet test showed what they think is a stricture. My pee was brown and they think I have a UTI as well. So they are starting antibiotics and I'm on fluids as well.

They are admitting me probably for the night. They are looking at doing the EGD in the morning to correct the stricture.

I don't want to stay but I am glad they are going to fix me!

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So they have done gastrografin test and barium tablet. The tablet test showed what they think is a stricture. My pee was brown and they think I have a UTI as well. So they are starting antibiotics and I'm on fluids as well.

They are admitting me probably for the night. They are looking at doing the EGD in the morning to correct the stricture.

I don't want to stay but I am glad they are going to fix me!

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Thank god they're going to fix it!

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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. summerseeker

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        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

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