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phrenic nerve pain post complications?



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Has anyone dealt with, dealing with phrenic nerve pain? Its a SEVERE stabbing pain in the right shoulder/neck/arm due to damage or scarring on your diaphragm. It feels like someone is stabbing me with a piece of rebar (the metal poles in concrete) and just keep moving around in there for hours on end. I had a cyst and my spleen taken out and they think that is what is causing it. I didn't have the pain until 2 months after my last surgery and have been in the ER multiple times just for pain relief. I swear it hurts worse than the pain I was in for my 3 week stay in the ICU. I am DESPERATE for relief. OTC meds don't work, the lortab elixer I was sent home with is gone, it didn't get rid of the pain but made it so I could function. I even bought some diabetic nerve pain topical stuff that had great reviews. Again nothing... my surgeon pretty much told me to toughen up and now waiting to hear back from my pcp.

Has anyone dealt with this and have you found anything that helps?

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So sorry! Hope you feel better soon! Wish I could give you some advice! :(

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Has anyone dealt with, dealing with phrenic nerve pain? Its a SEVERE stabbing pain in the right shoulder/neck/arm due to damage or scarring on your diaphragm. It feels like someone is stabbing me with a piece of rebar (the metal poles in concrete) and just keep moving around in there for hours on end. I had a cyst and my spleen taken out and they think that is what is causing it. I didn't have the pain until 2 months after my last surgery and have been in the ER multiple times just for pain relief. I swear it hurts worse than the pain I was in for my 3 week stay in the ICU. I am DESPERATE for relief. OTC meds don't work, the lortab elixer I was sent home with is gone, it didn't get rid of the pain but made it so I could function. I even bought some diabetic nerve pain topical stuff that had great reviews. Again nothing... my surgeon pretty much told me to toughen up and now waiting to hear back from my pcp.

Has anyone dealt with this and have you found anything that helps?

hey jen

good to see you on forum. i had my phrenic nerve irritated so i am told. it was the worst pain - nothing helped and it was weird pain. what about gabapentin? it is a good med and safe..let me know. i was just diagnosed with partical complex seizures today and started on lamictal. does it ever end?let me know what happens for you.

trish

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Has anyone dealt with, dealing with phrenic nerve pain? Its a SEVERE stabbing pain in the right shoulder/neck/arm due to damage or scarring on your diaphragm. It feels like someone is stabbing me with a piece of rebar (the metal poles in concrete) and just keep moving around in there for hours on end. I had a cyst and my spleen taken out and they think that is what is causing it. I didn't have the pain until 2 months after my last surgery and have been in the ER multiple times just for pain relief. I swear it hurts worse than the pain I was in for my 3 week stay in the ICU. I am DESPERATE for relief. OTC meds don't work, the lortab elixer I was sent home with is gone, it didn't get rid of the pain but made it so I could function. I even bought some diabetic nerve pain topical stuff that had great reviews. Again nothing... my surgeon pretty much told me to toughen up and now waiting to hear back from my pcp.

Has anyone dealt with this and have you found anything that helps?

EMSJen I am sorry to hear about you problem. I know a lot about nerve pains and how bad it was for me. Accupunture is what worked for me

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Have you had an MRI to see if the physician could determine what is happening ? Perhaps, then....you could get an answer? I am having severe burning in my feet and taking Neurontin.....does not help that much.....anyone else hear of this?

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Hi,,,,I had some MRI studies..and I have some herniated discs ...however, I have severe burning pain in my feet.....and I am taking gababentin...it does not help very much.....

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      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
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      1. LeighaTR

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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
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      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

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        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

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