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Sleeved w/ Rhuematoid Arthritis and Fybromyalgia



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I was sleeved 6 days ago - on May 15, 2013. I have had a rough time getting back on my feet. My energy is completely depleted and I can barely shower by myself. I am just stuck in the bed. Has anyone else felt like this?

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Have you had enough Protein? liquids?

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I did. So many people seem to spring back and not need pain meds, but I was really pooped for weeks and needed pain meds for more than a week. Do get up and walk around a little even though you are tired. Be sure to get your fluids and eat your Protein. Both help promote healing. Give yourself time to recover and heal.

Lynda

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Ladies: I am having a lot of trouble getting in my Protein - it sends me straight to the bathroom and run right through me. Water - probably only 12 ounces a day right now.

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I was diagnosed with Lupus nearly 20 years ago. I have not had a flare up since surgery almost 3 months ago. I also do not take any meds for my Lupus. Steroids made me crazy and made me gain weight. All the other meds were just trial and their was always something new and It just was not worth it to me. I would rather get through a day or so of pain then take a pill everyday for something I dont feel every day. As for the energy preop somedays every so often I would feel 100% cant get out of bed exhaustion, some days I would wake up with the lupus rash on my face. Im not saying that loosing weight is a cure for Lupus obviously its not, When I was diagnosed I weighed 135-140. And its the normal course to go in and out of remission. I am telling you this becuase fibromyalgia and Lupus seem to be similar, my mom was first diagnosed with fibromyalgia, only to be later diagnosed with Lupus.

Lupus is not a one blood test, it takes a series of tests over a period of time to come up with the final diagnosis.

My energy level is dependent on the amount of sleep I get, the amount of excersize, the amount of Protein and Vitamins I take. Sometimes It just doesent matter and I am not good for that day. Good luck with your journey. Lupus and Fibromyalgia ppl are silent sufferers, no one can see the amount of pain and exhaustion you endure, and it can be mentally very difficult.

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I DON'T have rheumatoid or fibromyalgia, and I didn't do much better at first. I had to rest after I showered, and while I wasn't in the bed, I was in a chair, a lot. It does get better, and the aches and pains I had are gone. It's so much easier doing everything when you weigh less.

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Ladies: I am having a lot of trouble getting in my Protein - it sends me straight to the bathroom and run right through me. Water - probably only 12 ounces a day right now.

The diarrhea is common post-op, but check with your Dr. I remember they told me to watch and see if it was staying as bad or getting worse.

I was lactose intolerant post-op. The only Protein Powder I tolerated well the first few days was unjury. After the first week, I did well with GNC Gold Standard whey. I mixed it with Soy milk.

Lynda

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The diarrhea is common post-op' date=' but check with your Dr. I remember they told me to watch and see if it was staying as bad or getting worse.

I was lactose intolerant post-op. The only Protein powder I tolerated well the first few days was unjury. After the first week, I did well with GNC Gold Standard whey. I mixed it with Soy milk.

Lynda[/quote']

Thanks for this information! I am going to buy some Unjury.< /p>

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Amma,

I just noticed you are only drinking very little Water. I used a shot glass and a timer to get my Water in at first. One ounce sipped over 15 minutes Makes 4 ounces per hour. Teeny sips; take the whole 15 minutes to finish the ounce. I preferred room temp water. Not to cold or hot.

Lynda

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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 0 replies
      1. This update has no replies.
    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

        Now I have a whole new big, bigger, biggest, best days ever. I am out there with those skinny people doing stuff i could never have dreamt of. Food is now an after thought. It doesn't consume my day. I still enjoy the good home cooked food but I eat smaller portions. I leave food on my plate when I am full. I can no longer hear my mother's voice saying eat it all up, ther are starving children in Africa who would want that!

        I still cook for family feasts, I love cooking. I still do holidays but I have changed from the All inclusive drinking and eating everything everyday kind to Self catering accommodation. This gives me the choice of cooking or eating out as I choose. I rarely drink anymore as I usually travel alone now and I feel I need to keep aware of my surroundings.

        I don't know at what point my life expanded, was it when I lost 100 pounds? Was it when I left my walking stick at home ? Was it when I said yes to an outing instead of finding an excuse to stay home ? i look back at my last five years and wonder how loosing weight has made such a difference. Be ready to amaze yourself.

        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

    • CaseyP1011

      Officially here for a long time, not just a good time💪
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    • KimBaxleyWilson

      Three months and four days ago... I was in Costa Rica having a life changing surgery! Yesterday we had a followup visit with Dr. Esmeral via video chat and this morning my middle number changed.  I'm down 47lbs and two pants sizes. I can wear a Large tshirt for the first time in like... 14 years! Woot!! Everything is going great. I have zero regrets. I went down to the riverwalk with a friend and walked 2 miles on Monday without even getting fatigued. And no more snoring or chugging pickle juice for crazy leg cramps! I need to go to the gym more... I'm making new shirts next week so that will motivate me. LOL But I'm also just not as TIRED all the time! I have a LONG way to go...but seeing the progress on the scales and in the mirror is a huge motivator!! Thank you all for cheering me on and supporting me!!
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    • bellaamey

      https://alluniqueguide.com/java-burn-coffee-reviews/
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