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My sister had a Down Syndrome baby



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what a handsome little guy!! (((((((((((((((((((HUGS))))))))))))))))))))))))))))))))

I'm stealing a line from someone else on this board

Nolan is truly evidenence that there are angels among us.

Debby

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Oh how precious!!! Nolan is in my thoughts and prayers! So are you and your family. Take Care

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Pictures of children, babies, and animals always make me melt. This one is no exception. He is an angel. You and your family are truly blessed.

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Two of my cousins have kids with Down Syndrome. One is 32 now--going on 12--and a typical adolescent. He lives in a group home and has a job-coached job.

The other is about eight years old. He is also autistic. And he has a 13-year-old brother who is in college. Talk about the cloudy corner of the gene pool...we are a strange lot.

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What a beautiful Boy & I just love his name. He really looks like a Nolan. I am sending prayers of healing & love to you & yours.

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I LOVE the name Nolan..it is such a strong name! Your little nephew is going through a rough time right now...and he is in my prayers and throughts. My cousin has a son with Down's Syndrome and he also had to have an operation early on. He is doing wonderfully now...and is such a sweet, precious little boy!

Please let Nolan know that this LBT bandster wishes him a safe and successful operation, and a speedy recovery! Congrats to your family on the birth of such a beautiful baby!

~Joan

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AAAWWWWW!!! He is precious!!!! My sister has a little boy that has Williams Syndrome. He is ALWAYS happy and never in a bad mood. Makes me jealous--he has the best attitude!!

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Chicago boy

He is a cutie. My son is 3 1/2 now and when he was born went directly to the neo natual unit. He swallowed the meconium and was put on oxygen till he was 3 weeks.

We took him home after 4 days but each child is different and even though your sister has a different road to take than most people the Lord will be by her side as well as the whole families. My son had trouble latching on to the nipples we went and bought every one out there that would be my suggestion is try them all one is bound to work. We thought my son had downs he various test done but nothing showed up. They say he could have a touch if that is at all possible but we do not love him any less. He has been getting physical as well a speech Therapy since he was 6 months. Now he is enrolled in a early intervention program with the school and he attends twice a week. I see so many downs children out there that they live a good life and are no different in my eyes than other child.

I heard once that the Lord only gives the special children to Special parents.

Believe me I know I am not one of them but he brings so much joy to us that I would not trade him for anything in this world.

Will keep you all in my Prayers

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What a Beautiful Beautiful little boy. I have worked with a lot of DS children and I can tell you they are the most loveable children I have ever worked with, and I have been in the preschool business for 22 years.

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Update...My nephiew Nolan is home with his mom & dad as of this past Friday. Thank you to everyone who was thinking of him. He is just the greatest little baby I ever met. Mom is having a difficult time accepting what has happened and is somewhat depressed but she is going to pull thru some how. Keep mom in your thought as she is now caring for this little baby who may still need heart surgery to repair the hole. Time will tell but thats all for now.

Peace!

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Continued prayers and (((hugs))) to you and your family. Your mother must be pretty special to be taking care of this little guy. I know they will have a very special life-long relationship.

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Yes, thank you for the update. post another pic when you can. Babies change so much the first months, I'd love to see Nolans sweet little face again...so cute!! Thanks Chicagoboy, continued prayers for your family

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    • LeighaTR

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      · 0 replies
      1. This update has no replies.
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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. LeighaTR

        I hope your surgery on Wednesday goes well. You will be able to do all sorts of new things as you find your new normal after surgery. I don't know this from experience yet, but I am seeing a lot of positive things from people who have had it done. Best of luck!

    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

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        I still cook for family feasts, I love cooking. I still do holidays but I have changed from the All inclusive drinking and eating everything everyday kind to Self catering accommodation. This gives me the choice of cooking or eating out as I choose. I rarely drink anymore as I usually travel alone now and I feel I need to keep aware of my surroundings.

        I don't know at what point my life expanded, was it when I lost 100 pounds? Was it when I left my walking stick at home ? Was it when I said yes to an outing instead of finding an excuse to stay home ? i look back at my last five years and wonder how loosing weight has made such a difference. Be ready to amaze yourself.

        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

    • CaseyP1011

      Officially here for a long time, not just a good time💪
      · 0 replies
      1. This update has no replies.
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