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1 1/2 years out serious issues



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On 10/31/2024 at 9:18 PM, Kat said:

To be truthful I have seen everyone I can with the insurance coverage I have and just looking for support. I am too tired to justify things to anyone else, even if they are asking with good intentions. I know it’s a rare side effect but it does happen and just like you to many doctors don’t believe it.

https://pubmed.ncbi.nlm.nih.gov/9717429/

hi again, the article you quoted is a good resource to share with your medical team. if you are suffering from the same symptoms outlined in said article is *should* be pretty clear that you will need intervention. now you didn't mention frequent vomiting, but i'm going to assume this is an issue as you referenced the article, yes?

run, do not walk, to your emergency room if your organs are failing. insurance coverage will be a non-issue as organ failure would be classified under emergent care! seriously, we are talking life or death, man.

i get that you are looking for support, but really, what you describe requires PROFESSIONAL MEDICAL support that is waaaaay beyond the scope of these public forums.

please take care.

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A good tip would be to have a mix fat and carbs every couple of hours to help you steady your weight so things like dates + tahini or nuts, Avocado milkshakes, full fat chocolate milk and a couple of tbsps. of Peanut Butter, Full fat yogurt with nuts, full fat milk with honey, just generally nothing low carb/low fat. For me personally, Protein fills me up way too quick so maybe try high fat, high carb moderate or lower protein until you stabilize. Sorry you are going through this, please make sure to see your healthcare provider ASAP.

Edited by Lilia_90

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Try to research if you have patient advocates available to you. If you are feeling unwell and can’t advocate for yourself they are there to help you with that. It’s sounds like the people you are seeing are letting you slip through the cracks. It isn’t that people are not believing you, but having a hard time believing the situation because this should not be happening to anyone. Emergency rooms cannot deny you life saving medical care regardless of whether you have any insurance at all. An advocate should be able to do the research, legwork and arguing that you are not feeling up to in order to get you the care you need. Also, what about a feeding tube. I think that can be out patient.

Edited by ShoppGirl

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      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
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        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

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