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Complications and continued illness



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Let me firstly start by saying this operation and the complications that come thereafter arw not only confusing but just never seem to stop. My sister had this operation 2.5yrs ago with a success story. She lost weight and was looking great. 2.5 years later she started putting on weight again and went back to the same doctor to perform the surgery again. Whilst i have no idea what the criteria is for this operation her weight was 100kg at 1,74 in height. This operation took place 4 months ago and its been a nightmare from the word go. A week after having the operatiin she was rushed back into hospital in icu on life supporting machines. She had septacemina from a gastric leak. (Please excuse me if i dont know all the correct terminology, this whole experience has been horrific). A touch and go situation, she survived however has not stopped having complications. She has been in (mostly in) and out of hospital for the past 4 months. She still has a leak, she cant eat and has a feeding tube inserted to go directly to her bowel. She is weak and frail and doesnt even have energy to brush her teeth. The doctor after what seems very many attempts to close the leak is not getting it right. Is there a happy ending to this story? Has anybody else suffered similar sort experiences. Please i would value your feedback as i would just like to know how else i could possibly be helping my sister. She seems to be at the point of giving up on EVERYTHING.

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But is there light at the end of this tunnel or is this her life. Continious pain, nauseous, depression and being fed through a tube. What is the end result of this. Im grasping at straws here i know but has anybody gone through this and what is the journey?

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I have heard people say they have gone through this for months. Feeding tube continuously for months while they wait for the body to heal the leak. Everyone is different, but I think she will be OK.

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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. LeighaTR

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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

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        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

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