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Uncertain futures



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Thank you so much for the update. Do you remember the expression "keep on keeping on"? It seems all is well for now. You both are in my prayers daily. Much love coming your way.

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@borg/assimilated@Inner Surfer Girl

Today is the one year anniversary of CanyonBoy's (my large golden retriever) passing...hard to get through the day. Then I see your responses. And see? Who says I'm strong? You all are so sweet, ...get me a tissue, please...

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@borg/assimilated@Inner Surfer Girl

Today is the one year anniversary of CanyonBoy's (my large golden retriever) passing...hard to get through the day. Then I see your responses. And see? Who says I'm strong? You all are so sweet, ...get me a tissue, please...

Passing you a very nice, embroidered hanky and sending a virtual hug. They stand up much better than tissues.

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@CanonBaby how is it going. Thinking of you. Prayers being offered up. xX

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@@UK Cathy

Well, we got through the third chemo ok, with a little nasty day of nausea, to be expected. We really think the supplements he takes are helping abate the side effects...YAY!

Still no word on the PET scan, the oncologist said he is battling for it, and he claims the ethics of the person behind the denial is "questionable", so he is writing a formal letter to get another peer-to-peer consultation, with a different peer. The surgery is scheduled at this point in late August, after the six chemo treatments are completed. It seems to me if the insurance has approved the chemo, which they have, why they don't need a PET scan to verify WHERE the cancer is, and IF the chemo is needed at all. It is all being done "backwards", in my opinion.

But he has really good spirits, and is trying hard to keep up his nutritional needs (after I had 2 chemo nurses ream him for being lax in that department!). He hasn't lost any more weight, but hasn't regained, either. He eats all day long, focusing on Protein and fats!!!! Opposite what we on this site should be doing, at least the fatty stuff!

I'm tired. Have difficulty sleeping, get little of it. BUT, I don't work outside of the home, so I'm fortunate for that. I am able to take him where he needs to go, especially on chemo days and the bad days following. To all of his appointments, and to work, when necessary. But everything gets doe eventually, and we are in a peaceful state.

I plan to give a large party later this month or in early August for Dave, with our church attending as well as coworkers and friends/neighbors. A potluck, to keep the work to a minimum. We hope to have some of the folks form church play songs and have a "jam" session of sorts, bluegrass music for the most part. Games for all ages. I hope it cools down a little by then!

All of your prayers and concerns are much appreciated, and I KNOW the Good Lord hears them, and is answering them. I wish all of you could attend our party, it would be so much fun! I will have you here in spirit, at the minimum!

Have a wonderful week, all, and God Bless YOU!!!!

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As we say in Minnesota, I'll be bringing a "hotdish" aka a casserole to the party (in spirit). You have a wonderful celebration! Still in my prayers daily and hope your sleeplessness improves.

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@@CanyonBaby

I live east of St. Paul, in Afton, which is along the St. Croix River- almost to Wisconsin. Wow, I love you even more knowing you are from Ely, MN.

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@@borg/assimilated

And you are in a truly lovely place... the St. Croix has always been a dreamy place! Spent many a picnic there in my childhood! Canoed it many a time, as well. Write anytime, Love to hear MN news!

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@"CanonBaby"

How are things going, you are all still in my prayers

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@@UK Cathy

Hi, Cathy! Well, today was chemo treatment #4, and went smoothly. He once again has the pump with him until he has it removed on Thursday afternoon. His surgery has been rescheduled for sometime in September, due to the fact the Avastin he is on during chemo has to be out of his system before the surgery, so they figure it will take 4-6 weeks for that. He will more than likely have the PET scan just before the surgery.

Dave's spirits are good, his bloodwork remains good, he is only slightly anemic, but better than he was initially. His side effects are minimal, although this session was the worst for the nausea. The staff tell us this should lessen as his body adjusts to the chemo. sleep is sporadic for both of us, but adequate. Just wish we could get some more. Dave's difficulty is mostly with the pack he carries around for 3 days. It is challenging while in bed. All in all, he is doing great! What a blessing, and that, I am CONVINCED, is from all the prayers you and all our friends/family are sending up to the Great Almighty!

We are also blessed by the fact it has cooled down (finally!) here, down into the 80's. That makes everyone's mood a lot happier! I hope you are having a wonderful summer, and thanks so much for your prayers and concern. I just love you all!

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Another sad day for us, as we had to put to sleep two of our cats, one 19 and the other 16. It seems my life is centered around death as of late, we've lost so many pets (due to illnesses associated with old age), a total of 6 in the last year and a half. Plus my husband's cancer...it is still unbelievable I am even saying that word, let alone him having it.

He finished his 4th round of chemo this week, with stronger side effects this time. His nausea (and all the "joys" that go with it) is very much a part of his days now. Plus he is developing small sores on his face. His fatigue is the worst, as it affects his mood as well as his energy level. He sleeps through the 3 days of chemo, and it very slowly wears off until the next round. It's very hard to get things done, as he wants me to be with him as he rests on the couch.

It's also been very hard to get him to follow his plan of action: eating, hydrating, taking the endless amounts of supplements, and exercising. He is drooping before my eyes. The chemo takes away the appetite, and gives the body an early satiety. So he doesn't want to eat, and he is supposed to consume 103-130g of Protein a day. And we think it's hard to do the 60-80!!!

So I'm down to 4 pets, now: 2 dogs and 2 cats. And until the pups are 5 years old, we'll not add any more. Less work, yes, but those pets have become my kids. I miss them terribly, as each one has defined their personality for us. And each one has an important role to play in the household. My babies.

Thanks for letting me cry on your shoulders for awhile. It always helps me to chat with you. You, too, are in MY prayers...

God Bless, people.

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@@CanyonBaby

Thank you for another update. Have not flagged in my prayers for you and your husband. Losing pets at this time is adding insult to injury as they say. Those pets are valuable members of the household, and I know you will miss them tremendously. Plus we all know how they bolster us up when we are sad or not feeling well. Well I guess it doesn't need to be said, but God loves you both. Sending Minnesota hugs to you.

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    • LeighaTR

      Four days post surgery. I am sipping as fast as I can and getting NO WHERE near the goal of 60 - 80 grams of protein or the 64 oz of liquids. I just feel FULL. I don't know if it can still be the gas build up (I would think by now that would be gone) but it is a struggle to drink. And so far I have not had the nausea or spasms and don't want to wander into that territory by pushing too hard with liquids. I about passed out today as it was my most "strenuous" day. Went from second story to basement for shower and I was sure I was going to pass out. Looking back on my last few days I have had a total of less than 1000 calories. Am I just not getting enough nourishment in me? Once again a friday where I can't get ahold of the doc until Monday rolls back around so I am hoping maybe someone here has some experience on how to keep energy going. I do have fibromyalgia too and that may be where some added fatigue comes into play. How did you all fair with the goals the week after surgery?
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    • Doughgurl

      2 days until I fly out to San Diego to have my Bypass Surg. in Tiajuana Mexico. Not gonna lie, the nerves are starting to surface. I don't fear the surgery itself, or the fact that I'm traveling alone, but its the aftermath that I'm stressing about the most, after this 8 week wait. I'm excited to finally be here, but I am really dreading the post surgical chapter. I know its going to be tough, real tough and I think I'm just in my head to much now that the day i here. Wish me luck, Hopefully I'm one of the lucky ones, and everything goes smoothly. Cant wait to give an exciting update,. If there is anyone else have a June bypass or even a recent one, Id love to have someone to compare war stories with. Also, anyone near San Antonio Tx? See ya soon with the future me. 💜
      · 1 reply
      1. Phil Penn

        Good Luck this procedure is well worth it I am down to 249.6 lb please continue with the process..

    • LeighaTR

      I am new here today... and only two weeks out from my sleeve surgery on the 23rd. I am amazed I have kept my calories down to 467 today so far... that leaves me almost 750 left for dinner and maybe a snack. This is going to be tough for two weeks... but I have to believe I can do it!
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      1. This update has no replies.
    • Doughgurl

      Hey everyone. I'm new here so I thought I should introduce myself. I am 53y/o and am scheduled for Gastric Bypass on June 25th, 2025. I'm located in San Antonio, Texas. I will be having my surgery in Tiajuana Mexico. I've wanted this for years, but I always had insurance where bariatric procedures were excluded. Finally I am able to afford to pay out of pocket.  I can't wait to get started, and I hope I'm prepared for the initial period of "hell". I know what I have signed up for, but I'm sure the good to come will out way the temporary period of discomfort and feelings of regret. I'd love to find people to talk to who have been through the same procedure or experience before. So I look forward to meeting you all. Hope you have a great week!
      · 2 replies
      1. Selina333

        I'm so happy for you! You are about to change your life. I was so glad to get the sleeve done in Dec. I didn't have feelings of regret overall. And I'm down almost 60 lbs. I do feel a little sad at restaurants. I can barely eat half a kid's meal. I get adults meals often because kid ones don't have the same offerings at times. Then I feel obligated to eat on that until it's gone and that can be days. So the restaurant thing isn't great for me. All the rest is fine by me! I love feeling full with very little. I do wish I could drink when eating. And will sip at the end. Just a strong habit to stop. But I'm working on it! You will do fine! Just keep focused on your desire to be different. Not better or worse. But different. I am happy both ways but my low back doesn't like me that heavy. So I listened (also my feet!). LOL! Update us on your journey! I'm not far from you. I'm in Houston. Good luck and I hope it all goes smoothly! Would love to see pics of the town you go to for this. I've never been there. Neat you will be traveling for this! Enjoy the journey. Take it one day at a time. Sometimes a few hours at a time. Follow all recommendations as best you can. 💗

      2. Doughgurl

        Thank you so much for your well wishes. I am hoping that everything goes easy for me as well. We don't eat out much as it is, so it wont be too bad in that department. Thankfully. Also, I hear you regarding your back and feet!! I'd like to add knees to the list. Killing me as we speak! I'm only 5' so the weight has to go. Too short to carry all this weight. Menopause really did a doosey on me. (😶lol) My daughter also lives in Houston. with her Husband and my 5 grand-littles. I grew up in Beaumont, so I know Houston well, I will be sure to keep in touch and update you on my journey. I may need some advice in the future, or just motivation. Thank You so much for reaching out, I was hoping to connect with someone in the community. I really appreciate it. 💜

    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. LeighaTR

        I hope your surgery on Wednesday goes well. You will be able to do all sorts of new things as you find your new normal after surgery. I don't know this from experience yet, but I am seeing a lot of positive things from people who have had it done. Best of luck!

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