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- GLP-1 medication Zepbound, Wegovy, access, side effects, progress, and support.
- Before surgery Compare procedures, plan ahead, and get honest pre-op answers.
- Post-op Recovery, food stages, symptoms, and support.
- Long-term Regain, labs, habits, and life after the honeymoon.
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Everything posted by serenity55
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Aspects of Blindness
Kat817, what a wonderful but sad story. I'm sorry you lost Dave to diabetes. A lot of the people that come to the place I work are blind as a result of that disease. Thank you, Globally Yours, for the warm welcome. I'm still reading and learning, but I look forward to reading all your posts and following your journey. Where are you in the process? I will post some myths tomorrow. I was accompanying a musical theater class today, so my brain isn't functioning very well. (That's my excuse, anyway.) :-) Thank you all for being here I also want to try and add things to my signature the way a lot of people have. Even that's part of the journey, but I like it! Debbie.
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Aspects of Blindness
Hi, travelgirl, I am sort of sighted in my dreams, meaning I see things the way I imagine them to be, which isn't necessarily the way they really are. But my other senses are definitely working. For instance, I often dream about being outside during the day, and I feel the sunshine, and actually see the sunlight. I wrote a little more about this earlier in this thread, in case this doesn't answer your questions. But if it doesn't, ask away! Sometime this weekend I'm going to try to post about myths people have about blind people, like our supposed heightened sense of hearing. Or the fact that we're either superhuman or totally helpless, both of which annoy me no end! Debbie
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Aspects of Blindness
Foofy, I went to have the blood work done today, and the lab tech tried twice. He was pretty good, though, meaning he was friendly. I always tell them I'm scared of needles. I think it has to do with my having had Fluid drawn from my eyes when I was a few weeks old. (Or the surgeries I had when I was seven, or any excuse.) :-) Anyway, though I can't see the needle, it's the feel of the alcohol that alerts me to its coming. Thank you, and I'll definitely keep hanging in there! Debbie
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ACoA
Hello, One of the things I've always cherished about twelve step programs is the honesty I found there. I come from a large family, ten girls and three boys. My mom died of metastatic breast cancer when I was nine, and after that were my first memories of my father's drinking. As a blind child I was sheltered, according to one of my sisters, from lots of things, but his rage wasn't one of them. Or his live--in girlfriend. I live with a lot of physical and emotional neglect, broken windows, horrible living conditions which I won't go in to, unless someone really wants to know. My father was the only one in the family allowed to get angry. He used to introduce me to his alcoholic friends as "my blind daughter,," and one time I made the mistake of pointing out how obvious that was. He was taking most of the money given to me by the state as a disabled child, until one of my older sisters stepped in. When his girlfriend pointed out that I had a broken window in my room, his response was, "She's got money. Let her pay for it." When I first joined Al-Anon, I was very angry, and refused to see my father's alcoholism as a disease. I'm sure my sponsor wanted to strangle me at times, because I wanted to just tell him what a jerk he was. While I never forgave him for the way he treated me, I was able to accept the fact that I couldn't change him. When I moved in with my sister, I thought that all my trouble was over. Little did I know that the effects of my father's drinking would follow me, and they would be things I'd have to work on, be aware of, probably for the rest of my life. My family can't understand why I refused to see my dad when he was dying. I felt nothing for him. He never denied he was an alcoholic, and told my sister he didn't want to beg anyone to come to see him. But he also asked me years ago if I believed he loved me, and I said no. That was very empowering to me. I have lost four of my sisters to illness, and a brother who was shot to death. I think they all went to their graves bearing the scars of my father's alcoholism, but for the most part, they had contact with him before they died. Not my brother, though. He was a pretty troubled young man. Thank you for reading this, if you've gotten this far. Thank you, Green Chrysalis, for this thread. Debbie
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Aspects of Blindness
I get asked about dreams quite a lot. In fact, I sometimes get to talk to actors interested in portraying blind people--I can't answer for those who are legally blind--and that's one of the questions people ask. Yes, I do dream, and yes, I see, but it's not in the way you'd expect. Because I've been blind since birth, I imagine things the way they are when I touch them. My piano, for instance. It is a baby grand, and I know its curves, how the lid feels (looks) open and closed, and what it's like inside. If you can imagine the shapes of things without color, that's sort of what it's like. As for colors, I can see them if they are bright. But I'm not always sure what they are. My sister had a color wheel, I think that's what it was called, that was on or near her Christmas tree. She told me what each color looked like as the wheel turned and I was able to remember them. So, I don't really know much about shades--royal blue, emerald green, but I do associate colors with different things. I usually think of blue when I'm outside and the sun is shining, and there are no clouds--clear blue sky, in other words. Rain I can hear, unless it's sprinkling, but you can also smell rain. And there's always weather reports, though I'm not sure how much I trust them! :-) As for clothes? I often recognize certain outfits by touch, and I usually remember what color they are. I also pretty much know what colors go together. If I've worn mismatched socks I can't remember, but that's not to say it hasn't happened. Oh, I live in a part of California where we don't get snow, but I have a friend in Pennsylvania, and I've asked him how he travels in snow. He says it's pretty interesting. It can mess up your ability to hear traffic sounds, especially if there's a lot of it. I'll have to ask him again exactly what he said. I work at an organization for the blind and we provide services for deaf-blind as well. Many read braille, and carry on pretty active lives. I know one woman who lost her hearing when she was a teenager, I think, and can still speak, but can't hear or see, and she volunteers in the press department. Hope this answers some of your questions. Debbie
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Aspects of Blindness
Hi Foofy, Thank you for your post. To answer your question, I haven't yet been banded. I'm just starting my journey, trying to learn all I can. I talked in my introduction about how terrified I am of needles, which has been a big deterrent, but I'm tired of being fat, so I've decided to start the process. I have to have blood work done. I'm going tomorrow to have that done, and then I'll see my primary care doctor to get the ball rolling. I'm grateful to have a place like this to come to. Debbie
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Aspects of Blindness
Hi, Ang1982, There's nothing for you to be sorry about. I use a screenreader which is called JAWS (Job access with speech) which speaks everything that appears on the screen. When there is a picture, though, it doesn't describe it--it just says "graphic, smile," for example. There is also a braille display, which blind people read with their fingers. I have one, but haven't hooked it up, yet. Thank you for asking, and remember, no questions are too stupid. You should hear some of the stuff I ask my sighted friends! Debbiequote=Ang1982;757621]I'm so sorry for asking this and feeling very stupid about doing so (although I'm probably not the only person to wonder), how do you use the internet and post on forum sites, and all that? Are there computer programs that read it to you? I am one of those people who have never been in contact with a blind person and I don't mean to seem ignorant in my question. And I agree with Wheetsin's post that it is very admirable for you to open yourself up to questions.
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American Idol '08
I really was sad when Melinda Dolittle was sent home last year. This year I've decided that if David Archileta doesn't get to at least be one of the top two, I'm done with American Idol. Simon said he was the one to beat, but they seem to change their minds about that all the time.
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Aspects of Blindness
Hi all, I'm just learning my way around, though I've been lurking for quite sometime, but I'd like to introduce myself, and hopefully, give anyone who wants to a chance to ask questions about blindness. There may be many of you who have never come in contact with blind people, and I hope you will feel free to ask any questions you'd like. Don't worry, nothing will offend me. So let me tell you a little about myself. I have been blind since birth. I am considered totally blind, though I do have light perception. I can also see shadows, though I couldn't tell you what shape the shadow takes. I am a switchboard operator by day, and a professional musician. I have performed quite a lot and have released an original CD, just to prove that I could. I have a roommate who is visually impaired, meaning she can see things generally, but needs magnification to see details. We shop, clean and cook for ourselves. I don't have a guide dog, though I have friends who do. I don't think I have the temperament for one. I am pretty independent; in fact, I've been to England twice, alone. So ask away, and who knows I may ask in return. I'm always doing that to my sighted friends! Debbie
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Totally Blind, Considering Lap Band
Hi everyone, Thank you all for the warm welcome. I knew I would love this site the minute I began lurking. Green Chrysalis, you're right; I have a screenreader called JAWS (Job Access with Speech) which reads everything to me using a synthetic voice, which actually sounds pretty good. I also have a braille display, because I've been reading braille since I was a child. Shortgirl (sorry if I spelled it wrong, I'm fat and my brain doesn't work, either!) :-) Thank you very much for what you said. I always think that it really does hurt when I have blood drawn, and I don't know if it's because I've always been afraid of needles--I had two eye surgeries when I was seven--but I'm going to try the things that have worked for you. I thought I could lose weight with diet and exercise, but the problem for me is that I loooove cookies! Those are the hardest things for me to stop eating, but with the band as a tool I have a good chance of getting past that. One more thing, which has nothing to do with anything: My primary care physician, whom I love, asked me if I'd consider bariatric surgery, and then stopped herself when she remembered how much I hate needles. But that tells me that she's willing to support me, and will do whatever she can to make sure I get the band. I work for an organization for the blind which has Pacificare as insurance, and I've had pretty good luck, so far. I have to have blood work done, tried last week and the lab tech couldn't get any, and so--you guessed it--I left without letting anyone else try. But I'm going back, and then I'll make an appointment with my doctor and get things started. Again, thank you all for being here. Debbie
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Totally Blind, Considering Lap Band
Yes, don't I know it! And I've lived through needles before, so I know I can do it again. While it's true that all the things you mentioned could happen--thank goodness I'm not diabetic--the fear is just as real. So I'm taking it one day at a time, as I did before Thank you.. Grace, thank you for the welcome.
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Totally Blind, Considering Lap Band
Yes, that's true. When I had surgery they put in the breathing tube and catheter after I was out, and I never knew, but I was scared of those, too. Debbie
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Totally Blind, Considering Lap Band
Wheetsin, thank you for such a quick response. It's comforting to know that I'm not the only one who is terrified of needles. How did you do with the fills? I've been jealous of people I thought were on the road to weight loss, so that makes perfect sense to me that others should feel the same. I know I have to get to the place where, as car50 told me (thank you very much) I have to just do it, because the fear will never go away, and it feels good knowing I've got a place to come to for support. Again, thank you very much. Debbie
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Totally Blind, Considering Lap Band
Hello: My name is Debbie. I have been lurking for a few weeks, and I love everything I've read. I like to say that I'm blind, not to elicit sympathy, but I've found it's best for me to be open about that from the start. I have been overweight for most of my adult life, and at times, pretty depressed about it, not to mention how I think others see me. I'm terrified about having surgery; I had major surgery about six years ago, and have a terrible fear of needles. I've been known to walk out of labs because I couldn't stand the thought of the sting, which is more than that to me. I've known people who have had stomach stapling, I think, and they've gained the weight and then some. This was, in fairness, many years ago. A friend of mine is taking seminars now--she's having the ru-NY--is that right? Anyway, she's the only person, so far, who is supportive of my even considering the lab band. It's interesting that the people who tell me I don't need it, are, for the most part, thinner than I am. I have a couple of fat friends that say there's no way they'd have any kind of weight loss surgery. But I have high blood pressure, sleep apnea, my knees hurt when I go up or down stairs--and I live in a town house. I'm sure you all know the story. Sorry I've gone on so long. I haven't said any of the things I wanted to. I really love this site, and am looking forward to getting to know you all, and the other way around as well. Debbie .