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They think I have a stricture



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I'm just 4 weeks post surgery and having loads of pouch pressure and nausea. Can no longer tolerate liquids or purees. Unfortunately they can't do an endoscopy because my pouch is still healing. Guess they have to wait 6 to 8 weeks post surgery to do an endoscopy so they sent me to have some sort of barium study. Waiting at the hospital now.

Does anyone know if a stricture will show up on a barium test? What can they do for a stricture if they can't do an endoscopy? Do I just have to suffer for another month? Ugh!

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Don't worry , I'm the Endoscopy Kid, had 11 lifetime now. I had an endoscopy exactly 6 weeks after surgery, I told them 2 weeks in there WAS SOMETHING WRONG. And I got poo-pooed, I was inpatient, I wasn't giving myself a chance to heal, I didn't know what I was speaking of. Acted like I was feeding their Dear Granny Poison.
Finally , I suspect to try to shut me up, an EGJ was scheduled. See as kangaroos with pouches out duodenum can no longer be visualized. When I woke back up afterwards, Dr Noria, my surgeon's partner shook my hand. Admitted ,yes Frustr8, you were correct and we were wrong. There is definitely something going on. I had 2 ulcers within my pouch, the opening was structured to the point only liquids were getting through and those at slow rate. And I had 5 evil-looking ulcers in the back wall of my jejunem, and we are still fighting the battle to get better. I was so bad the 28th of November I got rehospitaluzed, I had dropped 15 pounds the wrong way, dehydrated and Protein anemic. So they interceded, the next day I received a PICC line and received 12 hours daily of TPN, this insured a sufficient amount of protein coming in,more than I could ingest, and it gave my beleagured g.I. system a chance to heal. Had it for 3 months, just when I had got used to its limitations they took it away. I actually cried because I feared I'd regress again. But I am still chugging along, losing 2 pounds a week, now at 224, sounds like a lot to many people but I started 365+, so it's a Dream coming true for me. Maybe in a couple or 3 months I might go into Onederland, can you understand how thrilled I'll be when there is a 1 beginning my weight?
When you have your endoscopy, and I would say from what you describe, you'll be a candidate. They will attempt to stretch that opening, if you are not on Carafate they will start it. I take it 6am,noon, 6pm, midnight, my Medicare part D drugplan are cheap cheap cheap. Thanks to Silver Scripts I get the big white horse pills to dissolve in warm Water and drink down the slurry. About as appealing as flour paste, it comes also in a liquid but that's not budget efficent, so they sit in Phoenix Arizona and snicker at me. One of my problems is my stricture does not like being stretched so it won't retain an enlarged opening. So we keep retrying, I think they should stent it open but I'm only the patient and not the doctor. You know how that goes.
Not sure if barium will show it, although it is pretty heavy. Sure hope you get answers, but I'm almost within reach of my smartphone at all times. If you need to talk more,just pull my chain. Like the Hunchback of Norte Dame, I almost always aswer the chime or bell! Love and prayers🙏Frustr8

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Don't worry , I'm the Endoscopy Kid, had 11 lifetime now. I had an endoscopy exactly 6 weeks after surgery, I told them 2 weeks in there WAS SOMETHING WRONG. And I got poo-pooed, I was inpatient, I wasn't giving myself a chance to heal, I didn't know what I was speaking of. Acted like I was feeding their Dear Granny Poison.
Finally , I suspect to try to shut me up, an EGJ was scheduled. See as kangaroos with pouches out duodenum can no longer be visualized. When I woke back up afterwards, Dr Noria, my surgeon's partner shook my hand. Admitted ,yes Frustr8, you were correct and we were wrong. There is definitely something going on. I had 2 ulcers within my pouch, the opening was structured to the point only liquids were getting through and those at slow rate. And I had 5 evil-looking ulcers in the back wall of my jejunem, and we are still fighting the battle to get better. I was so bad the 28th of November I got rehospitaluzed, I had dropped 15 pounds the wrong way, dehydrated and Protein anemic. So they interceded, the next day I received a PICC line and received 12 hours daily of TPN, this insured a sufficient amount of Protein coming in,more than I could ingest, and it gave my beleagured g.I. system a chance to heal. Had it for 3 months, just when I had got used to its limitations they took it away. I actually cried because I feared I'd regress again. But I am still chugging along, losing 2 pounds a week, now at 224, sounds like a lot to many people but I started 365+, so it's a Dream coming true for me. Maybe in a couple or 3 months I might go into Onederland, can you understand how thrilled I'll be when there is a 1 beginning my weight?
When you have your endoscopy, and I would say from what you describe, you'll be a candidate. They will attempt to stretch that opening, if you are not on Carafate they will start it. I take it 6am,noon, 6pm, midnight, my Medicare part D drugplan are cheap cheap cheap. Thanks to Silver Scripts I get the big white horse pills to dissolve in warm Water and drink down the slurry. About as appealing as flour paste, it comes also in a liquid but that's not budget efficent, so they sit in Phoenix Arizona and snicker at me. One of my problems is my stricture does not like being stretched so it won't retain an enlarged opening. So we keep retrying, I think they should stent it open but I'm only the patient and not the doctor. You know how that goes.
Not sure if barium will show it, although it is pretty heavy. Sure hope you get answers, but I'm almost within reach of my smartphone at all times. If you need to talk more,just pull my chain. Like the Hunchback of Norte Dame, I almost always aswer the chime or bell! Love and prayersFrustr8
Hi, Frustr8!!

Thanks for your post. Well, I had the study done and it does not appear to be a stricture but a spasm clamping my anastomosis shut and preventing anything from getting thru. It spasms, which causes massive reflux, then opens up a bit and some liquid gets thru, then it snaps shut again like a snapping turtle!!
I am waiting for my surgeon to call me to tell me what we're going to do about this problem. I've never heard of such a thing!! Maybe I should call my pouch "turtle"!!

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1 hour ago, Briswife15 said:

Update. It is a stricture. Having an endoscopy to stretch it on Tuesday.

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I'm so sorry you're going through this. Hope all goes smoothly on Tuesday!

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I'm so sorry you're going through this. Hope all goes smoothly on Tuesday!
Thank you!! I've joined ranks with Frustr8!! I'm trying to have a peaceful spirit about it.

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They did an endoscopy on me 2 weeks out because of a suspected ulcer. The endoscopy shouldn't hurt anything...

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I think it is the balloon dilation they have to be careful with. Could damage my healing pouch. We'll see today how it goes!

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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 0 replies
      1. This update has no replies.
    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

        Now I have a whole new big, bigger, biggest, best days ever. I am out there with those skinny people doing stuff i could never have dreamt of. Food is now an after thought. It doesn't consume my day. I still enjoy the good home cooked food but I eat smaller portions. I leave food on my plate when I am full. I can no longer hear my mother's voice saying eat it all up, ther are starving children in Africa who would want that!

        I still cook for family feasts, I love cooking. I still do holidays but I have changed from the All inclusive drinking and eating everything everyday kind to Self catering accommodation. This gives me the choice of cooking or eating out as I choose. I rarely drink anymore as I usually travel alone now and I feel I need to keep aware of my surroundings.

        I don't know at what point my life expanded, was it when I lost 100 pounds? Was it when I left my walking stick at home ? Was it when I said yes to an outing instead of finding an excuse to stay home ? i look back at my last five years and wonder how loosing weight has made such a difference. Be ready to amaze yourself.

        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

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