Emergency Surgery

[Frustr8 7,886]

Well you have me sitting there to keep you company. I had acute pancreatitis in May 2015, still idiopathic, love that word, medicalese for "Duh, WE don't have any idea what caused it either" and my gastro says there was minute changes in my pancreas , more likelihood of diabetes or worse setting in, so like a watched pressure cooker I'm watched to see if the gauge flies off!
Don't Worry, that's like Don't look at the Elephant in the Room. 🐘there IT is Anyway!

[ProudGrammy 8,322]

2 hours ago, Redmaxx said:

go back to the gastro doctor in January and we devise a game plan

@Redmaxx

hey dude.

I do understand the bummer in once again having to wait for more news.

Been there, done that😨

its not easy to be patient, but i truly believe in the docs when they

say "don't worry". If something is going on - but i think if it were

really bad, he would have been more honest in saying, "hmmm, there

are serious things to look at", prepared you.

Try not to worry toooo much (Easier said than done) but worrying doesn't

help the situation. Tell your wife that too 😉 Hoping all will be ok - not too bad.

good luck

kathy

[elcee 3,340]

I would be hoping that as he only wants to see you again in Jan it’s not too serious or urgent

[Redmaxx 740]

I guess that he didn't want to see the images because he has a report (not very good) and he wants the MRCP to verify and identify correctly what it is. But I don't think they can use specific terms (IPMN instead of cyst, etc) if it isn't true. I think they open themselves up to lawsuits if they did. I will wait and see. I guess if I get a call from the office saying that the doctor wants to see me sooner I will then know something is up. It isn't the fact that they found something that bothers me, it is the fact that they don't officially know what it is. Best case, they monitor me until it gets worse, worse case, the pancreas comes out. Like my primary told me, if they take your pancreas out you become a diabetic, you are already a diabetic.

[Frustr8 7,886]

Still virtually patting your hand and sitting in the waiting room. you didnt request a Buckeye foster sister but you got me now!

[Redmaxx 740]

I did the MRCP and got the results Saturday. No doctor was discussed this with me yet, but according to the report, I have a 1.7 x 1.0 CM septated cyst in the ventral neck of my pancreas. For a pancreatic cyst of this size, the current guidelines recommend a 6 month follow-up MRCP OR further evaluation with endoscopic ultrasound and aspiration. While I am happy that the guidelines recommend observation, it does bother me that it has grown from 15 x 7 mm to 1.7 x 1.0 cm in just over 2 months.

[Frustr8 7,886]

Don't know any better therapy now than watch and wait but it is still very scary. Still with you until,it's all through!

[Redmaxx 740]

17 minutes ago, Frustr8 said:

Don't know any better therapy now than watch and wait but it is still very scary. Still with you until,it's all through!

Thanks. I appreciate it.

[Redmaxx 740]

[Redmaxx 740]

So since I have had a pretty bad year, my wife decided that I could get an emotional support puppy. Please see the above photo. Her name is Lola, she is a dachshund mix and she is a handful.

[Frustr8 7,886]

She is absolutely adorable, I have that look on my face also, you see I too have a new friend, mine more of a pain. I now have a PICC line in my upper left arm and receive TPN 14 of every 24 hours. My gastrointestinal system is on holiday, I have had that unresolved stomal stenosis, the 5 evil ulcers, 2 near the stoma and the other 3 on the back wall of the jejunem, well Wedneday November 28th at my last endoscopy Precious Pouch was all disgruntled and swollen, the ulcers had not resolved, showed no signs of healing, truth be known, they were marching down towards the third segment of my small intestine, I had been on Carafate for over 6 weeks, kept my diet liquid and mild, avoided smokers like the plague, and I was worsening, not able to get a healing amount of Protein in orally so my happy Hoohah got planted upstairs in a room on Doan 10, the Bari-surgical floor. And there I was for a full week. On Thursday November 29th I had a PICC line installed in my upper inner left arm, after 24 hours of letting things settle down on Friday November 30 My first TPN feeding was started , a 24 hour seige of it, at the end of the weekend they started stepping back to 12 hours, after that we started cycling 12 on,12 off. Monday they were satisfied I wasn't going to swing into hyper or hypoglycemia so started preparing me to come home. First Medicare( and by extension Ohio Medicaid, the tag-along) said basically" We've seen her picture, She Looks too healthy!" Hey that picture was 60 pounds ago, my color is off, I now have dimples/dents in my cheeks and a hang-dog expression on my face! Tuesday they would approve a PEG tube and an LTF(aka nursing home) placement, first of all I WOULD NOT accept a placement in one of those, worked in TOO many of those, Homie ain't going There! And fact #2. A PEG tube placement, your stomach and pyloric valve need to be accessible, never going to happen with an RnY short of open abdominal surgery. Wasn't in shape for that! So tall talking from. my surgical team, much tutorials to explain and finally Medicare relented, I could go home, with instruction my son and I could take over the care, and Frustr8 could return to her little humble home. A difference is my portable pump, which I carry around in a medium sized backpack along with my solution, runs 14 instead of 12 hours. So 14 on, 10 off. Last night we were running behind because I fixed him a good meal instead of guess & by gosh sandwiches, Oh I owed him, he has put up with cranky old me, and I do get cranky at times. So didn't get it started until after 10:30-11pm so it's still chugging along now. You really can't hear it run very easily.
At a minimum we are BFF until the end of the month, and the longest,maybe FOREVER? I guess the additional protein et al is starting to make me feel better but it can be a pain in the tush to handle the logistics. But I can and shall do it, just a patch of unexpected quicksand on my Bariatric Journey😕

[Redmaxx 740]

WOW! I am so sorry. I hope you get better soon. I am there with you.