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Roux stasis syndrome



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Hello I was just informed that I may require anoraks Surgury. This will be my 6th Surgury in 2 years. I falling apart. I been on Tpn for few months already to meet my nutritional needs. Today o got a Call from Gastro stating he will speak to surgeon. Has anyone experience roux stasis syndrome? Anyone have information. They saying the limb that goes to my small intestine is sluggish or not working. Please if anyone have any information I would appreciate it. I am so scared.

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I'm assuming that's what I have. I had a gastric emptying study that showed that my food is sitting in my small intestine for a very long time, so I am having a revision on November 20th. Definitely wish they had found it before I had to live with it for 15 years, but glad to filly get it taken care of. Good luck to you! !

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31 minutes ago, drizz75 said:

I'm assuming that's what I have. I had a gastric emptying study that showed that my food is sitting in my small intestine for a very long time, so I am having a revision on November 20th. Definitely wish they had found it before I had to live with it for 15 years, but glad to filly get it taken care of. Good luck to you! !

@drizz75 What revision are you going to have that will help this?

((hugs)) and prayers to both of you!!! So scary Larry!

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On 11/7/2017 at 9:28 AM, FluffyChix said:

@drizz75 What revision are you going to have that will help this?

((hugs)) and prayers to both of you!!! So scary Larry!

I'm not sure what it's called, but my surgeon has been doing a lot of research on it and said he "is probably the only surgeon performing it." I dunno. I had a gastric emptying study, and food is stalling in the small intestine for a very long time, activating hormones. From what I understand, it's almost like you're keeping your body in starvation mode so it tries to hold onto every calorie.

My surgeon is going to shorten my small intestine, which they now know should have been done with my initial surgery, but had no idea about it 15 years ago. :-)

Edited by drizz75
Misspelling

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I am 11 days out, and am having a hard time. Surgery went perfect, did great in the hospital. Came home and started throwing up. Constantly. Every night it would start, go all night into morning. Had to have iv fluids several times. I was up to smooth liquids phase. Dr. Moved me back to Clear Liquids only. Had a barium swallow test yesterday and found I was constantly refluxing. Back to Dr. For more fluids. He thinks due to inflammation the Fluid in drinking isn't draining quickly enough & it's backing up, hence the vomiting. Now I am only allowed popsicles & ice chips for the next few days to see if the swelling goes down. I am feeling pretty down at this point. Anyone else have anything similar? Thanks for any input/advice.

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      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
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      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

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