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Hi!! I was wondering if anyone here has MS or knows someone who does and had the sleeve... I have ms and my surgery date is 1/7... So excited.... But just wondering how others with ms fared ?

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I have ms

@@jmscout6

i do not have MS, i can't tell you other peoples experiences :blink:

but i wanted to respond to your post :)

i see B) you are a newbie

WELCOME WELCOME to SLEEVELAND :)

you on your way to a healthier, happier, longer life :)

who deserves it more?? :)

you will probably experience many different emotions between now and surgery

excited. happy, nervous, scare, anxious - maybe 2nd thoughts :wacko:

these emotions are common to many who are about to enter "sleeveland"

you chose the sleeve, so you are definitely a smart cookie :)

i'm sure you have already/or plan to talk to your surgeon about MS and the sleeve

he can help you with questions and hopefully ease your mind

maybe your doc has a former patient that had MS

first hand knowledge would be helpful/ great

i'm sure you have done plenty of research about the sleeve

read this board thoroughly

wonderful people here

you'll read lots of good questions and great answers

you "might" ;) find some questions you were thinking of too

there is also a search button in the top right hand corner :)

good luck

speedy recovery

kathy

Edited by proudgrammy

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Hi JM!

I have MS, (relapsing remitting) my surgery is scheduled for February 3rd as my last two surgery dates were cancelled due to a bad relapse back in July. I had very bad vertigo and went numb on my whole left side. Did two rounds of steroids to calm the inflammation of the nerves but I am doing fine now. I see your surgery is tomorrow and wish you the best of luck as I will say a prayer for a quick recovery and relapse free. The MS will not kill you it is just very unpredictable which sucks. My trigger is stress as I found that out 4 yrs. ago when I was first diagnosed. We can talk more once you recover. I think this surgery will provide more benefits to us that have this chronic disease as I am looking forward to becoming more energetic and healthier. God Bless!

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I have MS as well, and I am working on starting all the evaluations. I haven't spoke with my Neuro yet, but I am sure he will be supportive. My family is worried that having surgery will cause a flare (RRMS as well) and I'll be in more "trouble" than just recovering from surgery. I hope both of you had successful surgeries.

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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. LeighaTR

        I hope your surgery on Wednesday goes well. You will be able to do all sorts of new things as you find your new normal after surgery. I don't know this from experience yet, but I am seeing a lot of positive things from people who have had it done. Best of luck!

    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

        Now I have a whole new big, bigger, biggest, best days ever. I am out there with those skinny people doing stuff i could never have dreamt of. Food is now an after thought. It doesn't consume my day. I still enjoy the good home cooked food but I eat smaller portions. I leave food on my plate when I am full. I can no longer hear my mother's voice saying eat it all up, ther are starving children in Africa who would want that!

        I still cook for family feasts, I love cooking. I still do holidays but I have changed from the All inclusive drinking and eating everything everyday kind to Self catering accommodation. This gives me the choice of cooking or eating out as I choose. I rarely drink anymore as I usually travel alone now and I feel I need to keep aware of my surroundings.

        I don't know at what point my life expanded, was it when I lost 100 pounds? Was it when I left my walking stick at home ? Was it when I said yes to an outing instead of finding an excuse to stay home ? i look back at my last five years and wonder how loosing weight has made such a difference. Be ready to amaze yourself.

        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

    • CaseyP1011

      Officially here for a long time, not just a good time💪
      · 0 replies
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