Newly diagnosed Multiple Sclerosis Sleever. Are there any others, I need your advice.

[buplee 556]

After going through multiple surgeries and hospitalizations over the last 6 years, I just found I have MS. Are there any other Sleevers dealing with MS? How do you handle your medication and treatment? What helps and what should I expect to experience? Any advice would be appreciated.

[LivingFree! 478]

So sorry to hear of your MS diagnosis. I cannot offer you any help or suggestions as I am not an MS patient, but I just wanted to offer my support and hope that you get some good feedback from other sleevers who are dealing with MS. This must be such an overwhelming time in your life.

Take care.

[buplee 556]

Thank you for your response and support. I heard from three fellow sleevers so far, and I hope others will respond soon.

[Chelenka 827]

So sorry that you've been diagnosed with MS. That sucks.

[buplee 556]

Thank you. My life during the last 6 years has consisted of one hospitalization/surgery after another.

[Fiddleman 4,376]

What is it like for you to live with ms daily? I know generally what the symptoms are, but do you find it harder or different post sleeve? Is inflammation, pain, spasms, etc worse now? I am sorry you have to live with ms and wish the best for you. Maybe there will be a cure in the near future because just managing symptoms is a hard life.

Edited June 30, 2014 by Fiddleman

[buplee 556]

Hi Fiddleman,

Thank you for your reply. I have balance issues which causes me to fall, or stumble. I also have spells of blurred vision. I'm on oral medicine daily now and hopefully that will work. The next step would be an injectable medicine three times weekly, or a monthly IV. I have other neuro issues which complicates the disease, and makes it harder to determine which symptom belongs to a certain disease.

[kimpossible67 608]

I was dx with MS in 2007. It's relapsing remitting. I've been mostly stable. It's terribly scary at first but you adjust. It isn't a death sentence. You will be okay.