Frustrated with leak

[tkw110 5]

I have a leak. I have had one since March I am npo can't eat or drink and my surgeon had a JP drain put in me and is just letting my leak heal on its own. It is slowly healing so they say but I am just getting depressed and impatient it has been almost 3 months!!

[soocalchic 1,087]

So how skinny are you after 3 months of NPO?

[tkw110 5]

I have lost like 30 pds I am on tpn which is very high calorie and sugar So I'm not losing a lot of weight

[phantompouch 19]

where did you have your surgery ? I hope that you get to feel better each and every day......

[tkw110 5]

Peoria, il

[ProudGrammy 8,322]

leak. since March

tkw110

I am very sorry to hear about your problem/leak

I can't begin to imagine how you feel

I'm glad you are starting to heal - but its been 3 long months

being depressed PO happens to many

but in your case, it must be extra hard

do the best you can

try and stay as strong as possible

take care of yourself

sending you healing thoughts

good luck

kathy

[mattuti86 23]

It seems like we're in the same situation. I WA admitted into the hospital 3/24 and that's when they found out I had a leak, but I was feeling really sick for a long time before that. I'm also on tpn and have a jp drain. I actually gained 5 lbs since I started tpn. I'm pretty frustrated myself, the dr is letting my leak heal on its own too. I want to have a life again!! Oh and to top it off I'm losing my hair like crazy. I had to cut it short cos it got way too tangled in the hospital and I have a huge bald spot on the top of my head :/ but I guess as long as we are getting better we have to try and stay positive.

[tkw110 5]

Yeah I am tired of feeling like I am part of a freak show.. Everyone looks at me funny bc I carry a backpack around with tubes hanging out of it ( my tpn).. I want my life back as well :-/ and I have recently started losing a ton of hair I actually just left a hair appt and I was watching my hair dresser take mounds of my hair out of her brush.. I am trying to stay encouraged although its hard sometimes when it seems as though there is no end to this!

[mattuti86 23]

That's exactly how I feel too. Stupid tpn backpack. And yeah it seems like forever!

[mattuti86 23]

Oh and I forgot to comment about being npo, I didn't have problems with it before but since I came home I keep dreaming about food.< /p>

[tkw110 5]

Yeah it didn't bother me at first but watching my family eat is brutal.. Birthday parties..bbq's it's all a tease

[Nesa 51]

I am so sorry this is happening to you both. I can't even begin to imagine how depressing and frustrating you feel. I hope y'all feel better and the leak heals fast I truly do. I don't get my surgery into Sept but this is what I'm mostly afraid of is getting a leak =(. My doctor said the chance if very slim but you just never know what if I'm that person. How you both feeling now are the drains out?

[tkw110 5]

I still have my drain..I feel ok... I don't have a lot of energy but I'm slowly getting better..

[mattuti86 23]

I'm the same. I still have the drain and not a lot of energy. I saw my dr on tue and he said I'll be having a ct scan in 2 weeks and if things look better hopefully s scope soon after. Keeping my fingers crossed.

[NORCALRN 60]

i still have enteral feedings (j tube) and i can sympathize with the back pack thing. i keep my kangaroo joey and formula plus stuff for flushing on me. this is better than the tpn in the hospital (about 7 weeks not that i have counted correctly). i do not care about what people say or stare, it is just a b++ch to lug around. i am on for 14 hours but working up to 90ml/hour so it will decrease my time down to 10hours. hoping to go back to work (nurse at san quentin state prison) but looking for a new job. will have to run my pump at night so i am practicing nowadays. cannot think i can do my duties with a mic-key feeding tube in place but i will see if my doctor will clear me in july for august work. as for Hair loss, my surgery was 7-24-12 and i am still losing...but got a super cute short hair cut that i love...and it is less dramatic seeing the shorter pieces go down the drain!!!! good luck to all!!! with the high calories of tube feedings like tpn...i am still 10-15lb away from goal weight but wear a 6 or 8 and i am 5/5 ( I NEEDED TO LOSE ABOUT 65LBS OR SO) . moRE important is the nutrition. I AM SO TIRED OF BEING TIRED!!!!!!!!!!!!!!!!!!!hang in there everyone!