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Frustrated with leak

I have a leak. I have had one since March I am npo can't eat or drink and my surgeon had a JP drain put in me and is just letting my leak heal on its own. It is slowly healing so they say but I am just getting depressed and impatient it has been almost 3 months!!

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So how skinny are you after 3 months of NPO?

  • Author

I have lost like 30 pds I am on tpn which is very high calorie and sugar So I'm not losing a lot of weight

where did you have your surgery ? I hope that you get to feel better each and every day......

leak. since March

tkw110

I am very sorry to hear about your problem/leak :(

I can't begin to imagine how you feel

I'm glad you are starting to heal - but its been 3 long months

being depressed PO happens to many :(

but in your case, it must be extra hard

do the best you can

try and stay as strong as possible

take care of yourself

sending you healing thoughts :)

good luck

kathy

It seems like we're in the same situation. I WA admitted into the hospital 3/24 and that's when they found out I had a leak, but I was feeling really sick for a long time before that. I'm also on tpn and have a jp drain. I actually gained 5 lbs since I started tpn. I'm pretty frustrated myself, the dr is letting my leak heal on its own too. I want to have a life again!! Oh and to top it off I'm losing my hair like crazy. I had to cut it short cos it got way too tangled in the hospital and I have a huge bald spot on the top of my head :/ but I guess as long as we are getting better we have to try and stay positive.

  • Author

Yeah I am tired of feeling like I am part of a freak show.. Everyone looks at me funny bc I carry a backpack around with tubes hanging out of it ( my tpn).. I want my life back as well :-/ and I have recently started losing a ton of hair I actually just left a hair appt and I was watching my hair dresser take mounds of my hair out of her brush.. I am trying to stay encouraged although its hard sometimes when it seems as though there is no end to this!

That's exactly how I feel too. Stupid tpn backpack. And yeah it seems like forever!

Oh and I forgot to comment about being npo, I didn't have problems with it before but since I came home I keep dreaming about food.

  • Author

Yeah it didn't bother me at first but watching my family eat is brutal.. Birthday parties..bbq's it's all a tease

  • 4 weeks later...

I am so sorry this is happening to you both. I can't even begin to imagine how depressing and frustrating you feel. I hope y'all feel better and the leak heals fast I truly do. I don't get my surgery into Sept but this is what I'm mostly afraid of is getting a leak =(. My doctor said the chance if very slim but you just never know what if I'm that person. How you both feeling now are the drains out?

  • Author

I still have my drain..I feel ok... I don't have a lot of energy but I'm slowly getting better..

I'm the same. I still have the drain and not a lot of energy. I saw my dr on tue and he said I'll be having a ct scan in 2 weeks and if things look better hopefully s scope soon after. Keeping my fingers crossed.

i still have enteral feedings (j tube) and i can sympathize with the back pack thing. i keep my kangaroo joey and formula plus stuff for flushing on me. this is better than the tpn in the hospital (about 7 weeks not that i have counted correctly). i do not care about what people say or stare, it is just a b++ch to lug around. i am on for 14 hours but working up to 90ml/hour so it will decrease my time down to 10hours. hoping to go back to work (nurse at san quentin state prison) but looking for a new job. will have to run my pump at night so i am practicing nowadays. cannot think i can do my duties with a mic-key feeding tube in place but i will see if my doctor will clear me in july for august work. as for hair loss, my surgery was 7-24-12 and i am still losing...but got a super cute short hair cut that i love...and it is less dramatic seeing the shorter pieces go down the drain!!!! good luck to all!!! with the high calories of tube feedings like tpn...i am still 10-15lb away from goal weight but wear a 6 or 8 and i am 5/5 ( I NEEDED TO LOSE ABOUT 65LBS OR SO) . moRE important is the nutrition. I AM SO TIRED OF BEING TIRED!!!!!!!!!!!!!!!!!!!hang in there everyone!

  • Author
i still have enteral feedings (j tube) and i can sympathize with the back pack thing. i keep my kangaroo joey and formula plus stuff for flushing on me. this is better than the tpn in the hospital (about 7 weeks not that i have counted correctly). i do not care about what people say or stare' date=' it is just a b++ch to lug around. i am on for 14 hours but working up to 90ml/hour so it will decrease my time down to 10hours. hoping to go back to work (nurse at san quentin state prison) but looking for a new job. will have to run my pump at night so i am practicing nowadays. cannot think i can do my duties with a mic-key feeding tube in place but i will see if my doctor will clear me in july for august work. as for hair loss, my surgery was 7-24-12 and i am still losing...but got a super cute short hair cut that i love...and it is less dramatic seeing the shorter pieces go down the drain!!!! good luck to all!!! with the high calories of tube feedings like tpn...i am still 10-15lb away from goal weight but wear a 6 or 8 and i am 5/5 ( I NEEDED TO LOSE ABOUT 65LBS OR SO) . moRE important is the nutrition. I AM SO TIRED OF BEING TIRED!!!!!!!!!!!!!!!!!!!hang in there everyone![/quote']

Do you eat? Did you have a leak? And you are almost a year out and going through this? Sheesh!!

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