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Update on the fight for my sleeve



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Okay most you probably are very familiar with my story. I was suppose to have surgery August 24th (I'm going through the VA), and have been working on my surgery since last October. Well when they sent in for my final approval VA denied, it and said I had to go to a VA Hospital to have it done, okay that was like almost a month ago.

So here is the update.

I called Hunington VA, about three times last week and twice this week left several messages, but no return calls. Then Monday I called my VA Doc, and left a message for her to call me and still no call. Well this morning I called again was leaving another message for my doc, and finally found out I have a consultation in Hunington next Friday. Good news I know, but man if I had not of called, called, and called some more I would never even known about it, they have not called me or sent me anything saying I had a consult. The good news is the nurse told me if all my paperwork checks out and I loose 10lbs they will schedule me well I have only lost 4 lbs, but lost 10 lbs since June so I'm hoping they will accept that weight loss. Of course I'm not getting my hopes up as when I do, something always happens.

The bad news is I may have to drive myself, which is not good because I have narcolepsy, and am not suppose to drive long distance by myself. My mom may be able to drive me if my dad will allows her to miss his bicycle race, (real important, NOT), I see were I rate in the family. They would rather me either reschedule which is out of the question, or take a risk and drive by myself. I feel so loved. lol Maybe she will get permission to drive me. Please get permission why don't she just tell him I have an important appointment, and that she really needs to take me, no that would be asking to much. I'm sure my dad wont have a problem, but just the thought of the whole situation really makes me mad :mad: . They know how much this means to me and knows what all I have gone through. Sorry for the rant, but I have mixed emotions right now, I'm happy, nervous, mad, hurt and hungry. I will keep you posted. Thanks for listening , or shall I say reading . :thumbup:

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Wow, that's a lot. Good luck and keep us posted. Seems like it's a long journey but it will be so worth it in the end. I feel your pain. =)

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Okay most you probably are very familiar with my story. I was suppose to have surgery August 24th (I'm going through the VA), and have been working on my surgery since last October. Well when they sent in for my final approval VA denied, it and said I had to go to a VA Hospital to have it done, okay that was like almost a month ago.

So here is the update.

I called Hunington VA, about three times last week and twice this week left several messages, but no return calls. Then Monday I called my VA Doc, and left a message for her to call me and still no call. Well this morning I called again was leaving another message for my doc, and finally found out I have a consultation in Hunington next Friday. Good news I know, but man if I had not of called, called, and called some more I would never even known about it, they have not called me or sent me anything saying I had a consult. The good news is the nurse told me if all my paperwork checks out and I loose 10lbs they will schedule me well I have only lost 4 lbs, but lost 10 lbs since June so I'm hoping they will accept that weight loss. Of course I'm not getting my hopes up as when I do, something always happens.

The bad news is I may have to drive myself, which is not good because I have narcolepsy, and am not suppose to drive long distance by myself. My mom may be able to drive me if my dad will allows her to miss his bicycle race, (real important, NOT), I see were I rate in the family. They would rather me either reschedule which is out of the question, or take a risk and drive by myself. I feel so loved. lol Maybe she will get permission to drive me. Please get permission why don't she just tell him I have an important appointment, and that she really needs to take me, no that would be asking to much. I'm sure my dad wont have a problem, but just the thought of the whole situation really makes me mad :mad: . They know how much this means to me and knows what all I have gone through. Sorry for the rant, but I have mixed emotions right now, I'm happy, nervous, mad, hurt and hungry. I will keep you posted. Thanks for listening , or shall I say reading . :thumbup:

WOW! Your dad sounds like a piece of work, honestly if I lived in your area I would drive you. This is very important for your health and you've worked so hard...I will pray your mom will be able to drive you to your appointment:thumbup1:

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GOOD NEWS, and more GOOD NEWS

My mom is going to be able to drive me, and I talked to the nurse this afternoon at Hunington, and she told me that I need to get a ultra sound of my gallbladder, and if everything is okay, that when I'm there next Friday they will send me to the anesthesiologist, and do the preop for my surgery and they would be scheduling my surgery for next month. I'm still not getting my hopes up until I am being wheeled in to surgery. I have gotten my hopes up one to many times on this journey.

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That is wonderful, I am so happy for you! Good luck and hopefully we will see you asking for some post op tips soon!!

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GOOD NEWS, and more GOOD NEWS

My mom is going to be able to drive me, and I talked to the nurse this afternoon at Hunington, and she told me that I need to get a ultra sound of my gallbladder, and if everything is okay, that when I'm there next Friday they will send me to the anesthesiologist, and do the preop for my surgery and they would be scheduling my surgery for next month. I'm still not getting my hopes up until I am being wheeled in to surgery. I have gotten my hopes up one to many times on this journey.

I'm happy that your mom will be driving you after working so hard on this journey I'm glad she came to her senses. Keep your hope up, your day will come :) Good Luck! on your ultrasound

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    • LeighaTR

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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. LeighaTR

        I hope your surgery on Wednesday goes well. You will be able to do all sorts of new things as you find your new normal after surgery. I don't know this from experience yet, but I am seeing a lot of positive things from people who have had it done. Best of luck!

    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

        Now I have a whole new big, bigger, biggest, best days ever. I am out there with those skinny people doing stuff i could never have dreamt of. Food is now an after thought. It doesn't consume my day. I still enjoy the good home cooked food but I eat smaller portions. I leave food on my plate when I am full. I can no longer hear my mother's voice saying eat it all up, ther are starving children in Africa who would want that!

        I still cook for family feasts, I love cooking. I still do holidays but I have changed from the All inclusive drinking and eating everything everyday kind to Self catering accommodation. This gives me the choice of cooking or eating out as I choose. I rarely drink anymore as I usually travel alone now and I feel I need to keep aware of my surroundings.

        I don't know at what point my life expanded, was it when I lost 100 pounds? Was it when I left my walking stick at home ? Was it when I said yes to an outing instead of finding an excuse to stay home ? i look back at my last five years and wonder how loosing weight has made such a difference. Be ready to amaze yourself.

        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

    • CaseyP1011

      Officially here for a long time, not just a good time💪
      · 0 replies
      1. This update has no replies.
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