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Darktowerdream

Gastric Bypass Patients
  • Content Count

    380
  • Joined

  • Last visited

7 Followers

About Darktowerdream

  • Rank
    Junior Guru
  • Birthday 04/07/1975

About Me

  • Biography
    I am on the Autism spectrum. I have lived most of my life with Chronic illness, immunodeficiency and many medical conditions. It all started with M.E. (Myalgic Encephalomyelitis) I ended up on the RNY journey due to this and metabolic disorders.
  • Gender
    Female
  • Interests
    Birding, photographing birds and wildlife.
  • Occupation
    Disabled
  • City
    Boca Raton
  • State
    Florida

Recent Profile Visitors

1,195 profile views

About Me

Having lived nearly all my life with M.E. (Myalgic Encephalomyelitis) it’s impacted every aspect of my mind, body and my life. I have many medical conditions and symptoms that complicate everything. I have fought with my weight for far too long. Being diagnosed many years ago with metabolic disorders Adult onset congenital adrenal hyperplasia, PCOS, and endometriosis - as well as the fact that a large  M.E. Symptom is post exertional malaise which basically means basic life activity to exercise are damaging to M.E. And have the opposite effect that keeping active usually has. When my weight got out of control I was lost but I developed a plan and fought hard and did lose weight. But my body kept fighting me every step of the way. Little did I know I also had chronic gallbladder inflammation. I just wanted to add more vegetables, and vegetarian foods. And  Eventually, despite all efforts I slid backwards and to the weight I was then. I reached out to doctors who didn’t seem to believe I could be eating healthy and gaining weight. I counted carbs, protein, fiber, and calories. No one listened. Finally I saw an endocrinologist and we discussed how I can’t take medications for my metabolic disorders and how my body just doesn’t burn enough calories. She told me go to Cleveland Clinic for bariatric surgery. I did. And here I am. But I don’t see forums or discussions for people with chronic illness and disability. Or how to take the steps forward with many limitations. I had RNY Gastric Bypass along with cholecystectomy April 29th 2019. 

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