Update on my problem port
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I edited the original version of this post cause things changed during the day; I originally posted that my wound had finally closed for 2 days, but it opened up again this afternoon. It was a thrilling 2 days while it lasted! So I'm shortening this long post.
For newbies, my port site became badly infected so they removed my port in June, and the wound remains open. It's not infected but it leaks every day so I have to keep it clean and bandaged.
My second update had me in tears this morning after hubby gave me my one-month-weigh-in-smooch. In November, I gained 6 pounds on vacation. It took me 2 weeks to lose it, but then I went to California and gained it back. Add Thanksgiving, indulging in countless no-nos (food wise) and the fact I work with the Erin, the world's biggest diet saboteur, PLUS, My period will be here in a day or two so I'm probably bloated, PLUS I DON'T EVEN HAVE A PORT, and I managed to lose an additional 2 pounds (crying again) bringing my total loss in 7 months to sniff, 66 pounds. SIXTY-SIX. It's unreal, unbelievable, insane, baffling, cunning, powerful, righteous and indescribably miraculous. And I didn't diet - not one single day. I'm going to copy this part in the weigh-in thread also, cuz I'm on top of the world so duplicity is okay.
About my port: I've shared with a few people because I didn't want everyone to know; but now I realize how unfair it is to hold information back since this board is integral to our safety, success, and general band health. We need all the info we can get, right? Here goes: In the past months I've been to Urgent Care 3 times, the veterinarian, my primary doc, my secondary doc, my gastroenterologist, a local surgeon, an official band doctor, two radiologists, and I've shown my open incision to over 25 people including several nurses. Everybody says it looks great (even though it leaks.) 45 days ago, both surgeons agreed it would heal. But I was still lost since none of these doctors are capable of giving me a new port. So I called Inamed last week and gave them an earful and cried and complained and vented my anger. Larry got Lopez to call me. Inamed & Lopez refused to let me bring up the past, and I felt at their mercy, so I talked to Lopez and gave him my history since being banded. His first statement was that he needed to open the wound and let it heal from the inside out. That pleased me greatly since he was in sync with the local surgeon - at least they both had the same opinion. But I told Lopez that the surgeon already did that over a month ago, and it never healed (remember the pics I posted of the hole the surgeon made in my wound?) So Lopez was glad I had it cleaned out, but he said the only other reason it wouldn't heal was infection. I told him all the folks that looked at the goop ensured me it's not infectious fluid, and based on all the information, Lopez was 99% sure the tube is rejecting. He said since the tube and band are made of the same material, that my band would eventually reject as well, and that he needs to remove my band. We went over a lot of details, but he wants me in Mexico ASAP to do an endoscopy to confirm his beliefs. I asked if rejected bands erode, and he said, "most likely." He said a small percentage of people reject the material, and I'm one of them. I told him, "no, you can't have my band" so we started making deals. He said if there's no erosion, we could "milk" my band a little longer. He was extremely impressed with my weight loss - pleasantly shocked. Based on my loss, he agreed to put a new temporary port in to see if I can lose more. But he said that I'd have to come to TJ prepared to have the band removed, cuz they'd do the endoscopy when I was under the anesthesia, which means I'd go to sleep but won't know if I either have a new port or no band at all till I wake up in some Mexico hospital. He said if I'm 100% no erosion, he'd put the port on the opposite side. He said it will most likely react the same way my first did, which is to leak and never heal, but based on my experience dealing with an open wound, if I keep it clean every day, I may be able to get the same mileage out of a 2nd port before needing to have the entire contraption removed,
I'm taking everything with a grain of salt till I get the endoscopy results, but I'm not headed to Mexico yet because I don't have the money. Lopez won't charge me surgical fees, but I'd have to pay the hospital and endoscopy, but he said he'd get me discounted rates. I don't have the money now so thank God he said my situation is not an emergency. Meanwhile, I've got my wheels spinning in many different directions checking out other options, other doctors, other prices. I'm extremely grateful this isn't an emergency so I have time to kick it around and get other opinions.
I'm preparing for the worst but hoping for the best. I'm handling it super well. And I STILL HAVE RESTRICTION!!!!!!!!!!!!!!!!! So no hurry.
Blessed. Truly blessed. There's something to that "one day at a time" that keeps my spirits rejuvenated. Just for today I have a band. Just for today I can eat one taco and a couple bites of burrito. Just for today I can be free from compulsive binge eating. Just for today I am alive and well and damn it, crying again.
I wish I could bottle this feeling and share it with the world. Thank you, every one of you, for being my backbone. Please pass me a tissue – rolling alligator tears – the good ones. Thanks for reading. I love you.