I have had this condition for almost 4 years now. Weightloss is supposed to improve or eliminate it. So far nothing : ( wondering if anyone else on this forum has it or had it and if loosing a lot of weight helped and when did you start seeing a change? I have lost 40lbs. Have 40-50 left to reach goal.

Aww no fun! Hate going through that, totally understand the pain. My sis has had over 60 lumbar punctures in her life because of the Psuedotumor Cerebri. She has to have them often, even though it is so dangerous.

60?? That's awful!

This was only my second... It hurts like hell !!! Well like I already knew my csf was high, opening pressure was 38. Just waiting to get a call from my Neuro in what his action plan will be. Laying down in the bed all day and night. Hopefully I won't get another spinal headache !

Rest up and good luck!

Thanks! Dr. Called me and is raising my Diamox back up to 2,000mg daily.... I hate taking that much because the side affects are horrible on that much! But it does help out a lot !

Just wondering how you're holding up? Hope you didn't get the dreaded spinal headache!

Just wondering how you're holding up? Hope you didn't get the dreaded spinal headache!

I did... But this time it hasn't been as severe as last time but my back killed me until today! It felt like a truck ran over my spine! My Neuro is still hoping it goes away when I loose the rest of my weight(45lbs.) but has brought up a vp shunt in the event it doesn't since I seem to have this severely. Not really sure what the heck that is but I'm sure he will explain it in Aug. if I am still suffering

It's basically a tube that runs from your brain to your abdomen to drain the fluid...

Hopefully losing the rest of the weight helps!

Jprez, how long did it take before you were symptom free???

Sorry, I didn't see your post sooner! Within the first month. I was very fortunate. How are you doing?

Still the same... I get migraines and headaches most days still probably 5-6 days a week. Some last all day starting when I wake up and others don't come till the evening. I told my dr. This and he said there's really nothing more he can do for me, but that he is convinced that with further weightloss I will see improvement. I don't know why he didn't up the dosage of my diamox to 1500 or 2000mg ? So I guess for now I just live with the pain and other symptoms. When I see him in aug I will be getting some more definite answers for sure!!!

How awful. So sorry to hear this. I can't believe there's been no relief. How far post op are you?

Im close to 4 months, had my RNY on 3-13-13. I have gone from 216 down to 161.... You would think with that much of a weight loss I would have relief. My sister had it as well but is also obese. So I think that is why he didn't think it was hereditary. But in starting to think he's wrong. He told me if it was hereditary weightloss wouldn't help. I've heard when you loose a little as 20% of your body weight you should have relief...