Hi Mom!
I've been lurking for ages now, but finally joined to jump in on this thread :eek:
I'm surprised there's so many PTC folks on here, there's supposedly only 12,000 cases in the US. I was diagnosed 8 years ago at the age of 15. In my case it got so bad that it was debilitating. I could barely move from the pain, and had to be in a dark room or wear sun glasses all day long because of the damage to my optic nerves. My entire right arm was numb, and I had huge blank holes in my vision. Sorry, not meaning to scare anyone out there, just pointing out that every case is very different!
After the doctors finally figured out what it was (they insisted it was a pinched nerve for the longest time!?) a spinal tap provided immediate relief and a real diagnosis (in fact, Dr's aren't supposed to give a PTC diagnosis without a spinal tap). The spinal Fluid regenerates rather quickly, but I had a good few hours of normality, and the pressure never got back to the point it was before.
I lived with PTC for about 6 months, and then it just cleared up. I attempted to lose weight after the fact, but I don't think I had much success at the time. I know that your chances for reoccurances goes way down if you lose weight, but I'm not sure about it helping you to recover. PTC is really an understudied disease....
Anyway, I'll wrap this novel up. I'm fine now, no reoccurances, and the only permanent damage is some vision loss from the papiladema. Hope this was a little useful, I wish you the best!