medical mystery

I have the same problem! I have pseudo tumor cerebri. The body responds as if you have a tumor in your brain and you gain an excessive amount of spinal fluid even though there is nothing there. Because of the excessive spinal fluid it causes the optic nerve to be swollen. I had the MRI and a CAT scan which showed nothing. They did the lumbar puncture (worse pain ever!!!!!!!) and the fluid was perfectly clear. They put me on Diamox (an anti diuretic) to reduce the amount of fluid back in October. I take it twice a day and I rarely get pressure headaches. I just had a follow up with the neurologist last week and he said that it appears there hasnt been any improvement but my pressure levels are staying steady so I guess that is good. He says that weight loss should improve it so I'm really hoping to see some drastic improvements in the next couple of months. Are you having trouble with your vision such as occasional blurriness? Most people experience it in both eyes but for some reason I'm weird and it's only in one. If it's left untreated though your vision will continue to get worse and you could lose your vision altogether. Let me know if you have any questions. I feel your pain (literally) and I'm sorry you are going through this but I'm glad I've found someone else with a similar situation since it is so rare. Hope you start feeling better!

good luck with that!...make sure to ask questions sometimes Dr like to do all kinds of test to our bodies without bothering telling us anything.

Well, I have been dismissed from the neurologist.. There isn't anything wrong with me.. Well, WTF right.. but its okay..