I hope someone else will respond. There has to be more of us that are experiencing these symptoms. All the many Docs I've seen ignore my real symptoms and diagnois what is visible. I had RNY 12 years ago. About 22 months ago I experienced what I thought was an allergic reaction to a restaurant salad. With runny nose then fever headache and feeling like I would vomit or have diaherra. As the months went on it kept happening more frequently with more foods until it evolved into anything I ate. I felt sick for several hours or more after eating. 18 days ago I started having the fever all the time I also developed additional symptoms with my thyroid and lymph node swelling a dry cough and jaw ache and fever all the time. Allergy testing was negative. The docs now say I have Graves Disease even though I only have 2 symptoms of it and they refuse to address all my other issues that led to this point. In 18 days I have lost 20 lbs and feel as though I am dying. I have no strength and basically am bed bound. The only thing that makes sense in everything I have read is leaky gut. Please does anyone else have these symptoms??

After such a long time doctors seem to be hesitant to view the RNY as the culprit. That doesn't mean that there aren't problems that occur years after surgery.

What comes to my mind when talking about "leaky gut" and "gastric bypass" is SIBO. Did anyone look into this?

4 hours ago, summerset said:

After such a long time doctors seem to be hesitant to view the RNY as the culprit. That doesn't mean that there aren't problems that occur years after surgery.

What comes to my mind when talking about "leaky gut" and "gastric bypass" is SIBO. Did anyone look into this?

hmmm..... I don't really know enough about SIBO to weigh in on this, but I just wanted to say that someone on another forum I'm on has this, and it took doctors FOREVER to figure it out. So maybe??

It's just something to consider. Chronic Epstein-Barr virus infection is something that comes to my mind because of the fever and lymph nodes but med school was long ago.

Thank you I will look into SIbo and Epstein barr. To be honest the docs dont offer me anything. I've been to 2 gastroenologists a gp a endocrinologist and had countless tests. They simply ignore all symptoms but the swelling in my thyroid and lymph nodes

Maybe you should see your (or a) bariatric doctor? This might be something in their wheelhouse.