john19508

I will fill you in after my Philly visit of 3/10/2026 , You you are interested . 2 ways for Copper Deficiency ( Besides Genes) : Malabsorption or Low Liver Ceruloplasmin You need to do a deep dive to ~TRY~ to understand what your problem is. At first you might try to put it together, like asking certain questions trying different things and asking for different Blood work or tests. Then you will realise that no one can put it together. I will tell you this: Ai will get you closer; it has learned alot in the past year and is a least trying to putting it together. But do not insult the Doctors with Hallucination. You must research and challenge Ai and place your questions or findings in your own words. Don't piss the providers off; A doctor doesn't want to be replaced by a Computer. Nobody- Not One Doctor will bring about a solution. You will need a multidisciplinary approach with many expert Medical Professionals under one roof that work as a team AND TALK TO EACH OTHER. A Bariatric Nutritionist, A Bariatric Surgeon, A Endocrinologist, A Hematologist, A Hepatologist, etc. - A TEAM! A University Hospital or a Research University - I WILL be going to Penn Med in Philly on 3/10/2026 to get help. I believe my problem is my Liver is not producing enough Ceruloplasmin that transports copper; but we will see................

Thank you, I am having additional blood tests for hormones- my copper transport is flawed and not being utilized. So next is a Fecal Copper Test to see if It is totally excreted. Prior 24 Copper Urine Test was negative. So where is it going? 30mg infusions, 5 days a week- Where is it??? Liver is very healthy, just is not processing Copper. So checking Sex Hormones and vit A is current plan. I had a Hickman (hanging portal) as I have had over 100 infusions and the skin and veins were hardening up.I am going to the big boys in Philly and possibly a Hepatologist and an Endocrinologist depending on my Test Results. I believe I am close to figuring out what's going on but will be scratching my a** again in looking for a solution.

Pooping on a plane is a no-no for anyone. For a DS participant, it becomes a truly most embarrassing event. Wear a hoodie, hat and scarf. You can/might set off the smoke detector. So smell and noise? You are not getting away with it..................

I have had the DS in Aug 2020. Gas will always be a problem, but you can definitely minimize it somewhat by what you eat or drink and when. You must always find the corner of the room to remain friends with everyone.