Mygirl0226

Hi - I’m Phil.
I’m 54 yrs old and had a gastric bypass in 2011. I weighed close to 400lbs at the start of the journey and am currently 174lbs to I deem the process as a success.
I have in recent years though developed a chronic weakness in my muscles - mainly legs, shoulders etc (I also have a heartbeat issue). I walk with a waddle and struggle to get up from a sitting position and struggle with stairs etc.
I have had many tests including MRI (x 2), nerve conduction tests, many different blood tests and finally this week, a muscle biopsy.
My neurologist cannot diagnose the issue - the biopsy is the last attempt. We met recently and he has now said that he thinks that I have ‘idiopathic myopathy related to chronic nutritional deficiency secondary to gastric bypass.;
I am concerned about this since none of my routine bloods have ever thrown up a deficiency - in the past few years I have had many different blood tests in addition to the usual monitoring and apart from a mild case af low Iron which is sorted now, I have not had any levels that have been flagged up as abnormal.
So - I’m not here for medical advice as such - I just wanted to ask the experienced members - have you heard of many people who have experienced muscular issues (eg atrophy /stiffness etc) ? My research so far has not found any examples - apart from a few cases but they were down to vomiting which I have never suffered from.
What do we think - any opinions on this? Thanks in advance.
Phil

I’m 2 1/2 years out from Bypass. Highest 227, lowest 138 and I settled at 142-144. I just had a recent weight gain for the first time and saw 153. Went back to surgeon, scheduled a nutrition appointment and trying phentremine for the first time. Back at 151 and this is part of expected maintenance. I can eat/drink just about everything except for bread, only in small amounts. Working on bringing some numbers back down and I know I have all the tools to do it.

I think you have to be 100% ready for change. If you needed to pause and think about it, that’s great. Surgery is scary and change is scary. I had major doubts the morning of surgery but I told myself that was just anxiety and went through with it. Bypass was the BEST thing I’ve ever done for myself. You have the rest of your life to look forward to.