Reputation from Yourgirlnina

Yourgirlnina reacted to melmssc in My experience with a leak September 4, 2018

I was one of the unlucky few that developed a leak. They are life threatening! I want to tell my story to be a resource for anyone who has this type of complication. My surgery date was 5/1/18. Non- smoker, good health, surgery went smooth. 3-4 weeks post surgery, something was definitely off. I had rigor, trouble regulating my body temp, foul smelling burps. I called my surgeon's office daily that Memorial week. I took myself to the ER thinking I was dehydrated. They ran a CBC and my WBC count was 30,000. They sent me home to follow up with my surgeon. Next day, took results in and according to the nurse, my surgeon wasn't concerned. Next day 6/2, had trouble urinating and pain under my diaphragm. So at 9pm, my husband took me back to the ER. They thought it was kidney stones, but the CT scan revealed a leak. They transferred me via ambulance to a larger hospital. My surgeon was out of town (I refused to be seen by him again- so it didn't matter), and I got blessed with the on-call surgeon. I was in the hospital 9 days. He did exploratory surgery 6/7due to the location of the leak. Mine high up like 85-90% are. Thank goodness, I did not have an abscess like the CT showed, but I did have inflammation that he cleared out. All of the samples they took were negative. He also installed a drain that remained in line 7/10.They did an upper GI on 6/8 that showed the leak was still there. Up until this point, I was NPO and on round the clock antibiotics, Saline bag, and potassium bag via IV. On 6/8 picc line was installed and began TPN. They sent me home on 6/12 with TPN, antibiotics and Home health. On 6/20 back into the hospital with surgery to place a stent. Discharged next day. I could have Clear Liquids, but had to remain on TPN for 1 more week until X-ray showed it had not migrated. 6/27 X-ray showed it hadn't so off TPN and allowed food. Living with the stent was tolerable. Your esophagus is open, so acid reflux is a big issue. I never took a pain pill and found heating pad helped with the upper back pain. I could drive, do small outings with my kids, etc... I even went on a girls trip to see Smashing Pumpkins. This made it easier on my kids mental health, because mom didn't look sick and could do little things with them. I took everything really easy. On 7/19- stent came out and leak healed!!! I'm now on liquids for 1 week and then can advance my diet slowly as tolerated. My new surgeon was with me every step of the way and family and friends were very supportive. They even took my kids out of town on fun adventures. My faith in God strengthened. Luckily my Insurance covers bariatric surgery and complications. I would easily be out $120,000 or more for the hospital stays, home health, 3 additional surgeries, TPN - $1000 a bag, etc...Thank goodness I'm a teacher- so I didn't miss any work. I'm down 50 pounds and regaining my energy daily. If you are diagnosed with a leak, please reach out to me and remain positive. This is a very isolating time, but they do heal. Be assertive, listen to your body, and switch surgeons if necessary. I messaged a recent leak survivor on here and she was a great resource. Everyone's story and experience is different, but knowledge is power. I would love to be a support for you.