2014malves

Sorry I feel foolish for the mistake. You are right so thank you for pointing out out my error causing me to check and clarify my info. I checked my discharge report "MRI/MRCP October 27, 2016, dilated biliary tree with common bile ductmeasuring up to 17 mm. " 17 cm equals over 6 inches which I doubt would even be possible . Forgive me I grew up learning measurement in inches. I don't know metric measurements I get confused which is one smaller or larger than the other lol

I had Roux en Y almost 10 years ago September 10, 2007. I had my gallbladder removed long before in 1997. I have a very high pain tolerance. I've given birth to 7 children all naturally no pain meds each time. I've been a chronic pain management patient since 2012 due to an on the job injury. After 3 failed surgeries attempting to repair them both of my shoulders have multiple full thickness rotator cuff tears. I have 2 tears on my left side and 3 tears on my right side that aren't surgically repairable. I can handle intense pain. On October 26, 2016 I experienced sudden extreme abdominal pain. I've learned to live daily with pain but this was different. I've never hurt like this in my life not even when my appendix burst. That night I went by ambulance to the ER after waiting about 6 hours hoping it was gas or something simple that would just go away on it's own. But when 60 mg of Percocet couldn't touch the pain I caved in and went. After multiple blood test, 4 internal pelvic exams, a vaginal ultrasound, a CT Scan, an MRCP and being seen by 4 different medical specialties I was diagnosed with acute pancreatitis. I stayed 3 days in the hospital, with no food or drinks, on serious IV pain meds and pushing heavy fluids. I only had ice chips to suck on. On day 3 I was put on a liquid diet. Finally pain free tolerating liquids so I got discharged. I was told to follow up with Gastroenterologist. Gastro specialist said I was a rare kind of person who makes stones in my common bile duct. I had passed a stone that had dilated my duct to 17 cm in order for it to pass into my small intestine. I was told I needed to have an ERCP to clean out bile duct and have the duct surgically enlarged to guarantee no further stones would get stuck. An ERCP procedure is normally performed through the esophagus but due to my rearranged plumbing from Roux en Y mine had to be performed laparoscopically. It required both the gastroenterologist and my bariatric surgeon together going through the detached part of my old stomach. I wasn't scared cause laparoscopic surgery was no big deal to recover from. On Dec 2 2016 I woke up in the recovery room with such severe pain that I needed multiple shots of Fentanyl to manage it was so bad. I had 2 regular little incisions like I had expected and one 2.5 inch incision from where scope was inserted the nurse explained. I was never informed about the size of the scope incision prior to the procedure. I stayed overnight in the hospital and then got released home in terrible pain. I hardly could move, it felt like my guts had been ripped out, stuffed back in and might burst thru the large incision site any second. Tugging/pulling/aching pain right at large incision site that kept me totally immobile 3, almost 4 days. For weeks moving was hell afterwards. Followed up with both docs who kinda acted like oh sorry my bad thought you understood it would be a large incision to accommodate scope. I wasn't really upset cause having the procedure meant no possible future attacks of pancreatitis. To me it was all worth it cause there just aren't words to discribe the pain of pancreatitis. My overall health isn't great right now due to malabsorption that recently started causing malnutrition symptoms so healing is slow for me. My side just hasn't been normal since ERCP. There's kinda always a dull ache and sometimes I have a stitch in your side type of feeling on my left side but I've just assumed it was just due to slowly healing. I had been told the ERCP would resolve the issue so I wouldn't experience pancreatitis again but guess what that wasn't true. Last Thursday March 16 2017 a little over 4 months since the ERCP and out of blue a sudden severe debilitating attack of pancreatitis. No hospital this time for me, last time was hell. I had no fever so I decided to ride it out at home without any food at all just sucking on ice chips for 3 days like i did in the hospital. Finally after almost 2 days the pain subsided to an extreme tenderness. It's now back to the same dull ache I've had the last few months. I called gastro first thing Monday for an appointment. I want answers but can't see doc till March 29th. I was told to go to the ER if pain returns and I have a fever, vomiting or diarrhea with the pain. Meanwhile I'm scared to eat, I'm scared to not eat, I'm afraid that any second without warning I'll get hit with severe pain again. No cause was found for the original attack in October. This time I was in the middle of coloring my hair, waiting to rinse it out, just sitting down plucking my eyebrows feeling like I was having a really good day. Then bang one second zero pain next second such severe pain it was hard to draw in air to breath it hurt so bad. I'm terrified I'm going to die. I have no faith in the doctors. I feel like all these issues are related and nobody's doing anything to figure out the root cause of my health problems. Very simply I'm not feeling well, my doctors don't seem concerned enough to make me feel safe in their care. I'm frightened of possibly having to experience that intense pain without any warning again. I'm terrified that if everything together continues unchecked this could ultimately lead to my death. I'm just so scared.

I'm in similar place as you trying to figure out what to do. You actually had RYGB revised to sleeve? I wasn't sure that it even was possible there's so much conflicting information online. How are you feeling now just about a year later? My health is declining rapidly due to malabsorption turning into malnutrition creating so many health issues and hitting scary lifetime low weight 103lbs having trouble even maintaining that weight. My overall appearance is of someone slowly starving to death. Pancreas issues, hair falling out, teeth decaying, slow healing from even minor scratch, poor skin condition/quality, abdominal pain, no appetite, fatigue. I just feel/look so unhealthy. I want to speak with new bariatric surgeon, my original surgeon who I loved and trusted left to start a new center in another state, about having a revision to gastric sleeve hoping it will help with absorption problem and that will in turn help resolve other related health problems. Right now I don't feel strong enough to survive any surgery though. Has it helped/worked for you so far? Any complications? Any issues with insurance?

I'm 10 years out Roux en Y with major issues suddenly from malabsorption causing malnutrition experiencing pancreas problem, poor declining general health, trouble healing from even minor scratches, hair falling out, teeth decaying, general feeling of being unhealthy and unexplained weight loss with trouble even maintaining current below normal healthy weight with numerous Vitamin and mineral deficiencies not helped by supplements. I'm wondering if a revision surgery, if it's even possible to do, from current status of Roux en Y to the Gastric Sleeve would improve my health overall. All the required plumbing is there it really seems like just a matter of creating a new pouch and changing the location of where my stomach pouch connects. Rearranging the current way my pouch connect to the gastric sleeve way of connection on my small intestine. I know I'm making this sound so simple when in fact it's probably extremely dangerous and very complicated if it even is at all possible. I just think in theory it should be possible and can happen. Wanted to ask if anyone has had it done and what your experience has been like prior to having a possible pointless discussion with my Bariatric surgeon about it. My current overall decline in health has me reaching for any possible way to help stop what feels like my slide to eventual premature death from the gastric bypass caused health problems. Any thoughts/suggestions?

Just an update. Spoke via phone to PCP's nurse who said to just said to follow up with Gastro so I already had appt set for 29th with doc who did ERCP back in Dec. Same guy who practically guaranteed me if I had the ERCP I wouldn't ever experience pancreatitis again. Been doing a lot of reading and I'm starting to think that what I've been thinking had been simple slow healing pain from surgical ERCP recovery might actually be Chronic Pancreatitis pain. The constant dull ache that really hasn't gone away only decreased in intensity over time at the large incision site where scope was inserted in my upper left abdomen and occasional sharp stitch in your side kind of pain isn't normal. No one is ordering any pre appt testing even bloodwork. All gastro in my area is part of huge group practice affiliated with local hospital. Don't even know where to go for second opinion. Haven't called bariatric surgeon office don't know if there is even a point. I feel like no one is seeing the big picture of my medical issues as whole and connecting the dots like I'm beginning to do as a simple layman. Very frustrated and extremely scared another attack could just happen out of blue with no obvious apparent reason at any second. Feeling totally helpless. I'm keeping a food log and I have stopped all non perscription meds and all vitamin-mineral supplements till I see doc next week. I'm praying I don't have to go to ER in pain meanwhile. Can't ride out that intense pain at home again I'm simply not strong enough at this point. Will update after seeing Gastro next week. I'm upset and it isn't boosting my confidence in this doc that no pre appointment test have been ordered. I would think basic lab work may show something doc can run with starting next week instead of wasting appointment just to tell me I need XYZ tests to see what's going on then following up after. Seems like a drawn out way to approach the problem of your patient who is experiencing severe pain. I'm also wondering if a revision bariatric surgery, maybe gastric sleeve ( if it's even a possibility ) instead of my maintaining my current Roux en Y status, would be helpful to restore absorption and alleviate malabsorption/malnutrition issues before permanent damage to my other organs occurs if any haven't already occurred. Anyone's thoughts on that possibility would be appreciated?

I had Roux en y 9/10/07 went well for about 4/5 months then developed twisted-kinked intestine need additional surgery to place stitch to hold in place. All seemed well lost weight health improved. Developed severe anemia in 2010 need Iron infusion but that resolved it. Plateaued around 135 lbs by 2011. Started loosing for no reason mid 2012 dropped to 125. Doc did numerous test but everything came back normal no worries. Have been dropping steadily for past 2 years now 109.4 lowest was 104.3 in Dec 2016. Still docs say no reason to worry . On Oct 26 got hit with severe abdominal pain felt like when I needed my gallbladder removed back in 1997 but a million times more painful. Needed to call 911 i couldn't move. Blood-work, ultrasound, CT-scan, MRI all said popped ovarian cyst and acute pancreatitis. I had developed stones in my bile duct and it had dilated to 17 cm. 3 days no food hooked to an IV with only ice chips then discharged to follow up with Gastroenterologist. Dec 2, 2016 I had to have laparoscopic ERCP due to bypass. I was told the ERCP was a 99% chance that I'd never experience it again. Procedure went well recovery was painful as hell for weeks after though.They told me laproscopic so I thought easy peasy no big deal. They didn't tell me they needed to make 3 small incisions but one large 2.5-3 inch for the scope to be inserted that causes killer pain after. Now March 16, 2017 pancreatitis symptoms back mid day out of blue hadn't even eaten anything that day. Kept me in bed I refused to go to hospital cause they don't do anything I couldn't do at home. No food stay hydrated till symptoms pass. 2 days later I'm tender but pain gone going to start a liquid only diet very slowly see how it goes. Scared my pancreas is wrecked I'm suffering from malnutrition caused by malabsorption. Pancreas has a lot to do with absorption it secretes enzymes needed to absorb nutrients. That's why I'm still losing weight despite eating large amounts and taking Protein and other supplements. Afraid I'm going to die I just turned 48 I have 7 children and an amazing husband I don't want to loose. I feel like docs aren't taking it seriously even my weight loss. I have classic signs of malnutrition that they are all ignoring, primary care doc, weight loss surgery follow up and gastro. IDK what to do? Anyone else have pancreas issues? Please any help or advise is welcome. Thank you