Jump to content
Are you looking for the BariatricPal Store? Go now!
Sign in to follow this  
  • entries
  • comments
  • views

What Fibromyalgia did to me



Over the last four months I became almost unable to walk. I had so much pain in my muscles and weakness I was walking like duck. My old doctor who is now my old doctor would sit in the hallway and write me prescriptions for muscle relaxers and tell me to go home. I was in so much pain that I could not function, could barely get by at work. I had muscle spasms so bad in my lower back I was going weekly for a deep tissue massage. I never believed in Fibromyalgia because I didnt want to be labeled with something they have no explanation for.


I was so miserable I had to find a new doctor. I made an appointment two weeks ago, drove myself and almost needed a wheel chair to get inside the building. Two guys were standing outside talking and said mam do you need help? Well what the hell I am 50 years old and needing someone to almost carry me inside. So I said yes if you would be so kind.


I met with the doctor and he listened as I explained all my symptoms that started last year in July with no feeling in my leg and how I had MRI's of every part of my spine and head and nothing was wrong. He listened for one hour. Never rushed me so he could move on. After he examined me he told me I have Fibromyalgia. I cringed at those words because how can I live with something I dont believe in. I told him my thoughts and he said it's not a label we put on people when we can't find out what is wrong. It's a real disease with all the symptoms you are having and your nerves are over firing and causing muscle pain and spasming. He put me on Savella, which has been a God send, change my sleeping medication and told me to continue on the muscle relaxers and yes gave me something for pain because he believed I was having excrutiating pain. I gained about 6lbs because of lack of activity but I still tried to maintain my diet.


Two weeks later I feel a lot better but still have pain but it is bearable. I am thankful to my new doctor and my husband who sends me weekly to get a massage. I dont know if I still believe in this disease but I know the medication I am taking makes me feel so much better.


Recommended Comments

Cheryl, there is some discussion regarding a link between aspartame and auto-immune disorders, such as fibromyalgia. It was thought by many to be the band, but now it appears to be diet related. I don't know if you use aspartame, but if you do, avoiding it might help your condition. I don't use it, since it gives me aural migraines.

Hope you feel better soon.

Share this comment

Link to comment

No I dont use aspartame. I use stevia. Although I have read some things about diet and fibro I found a video a rheumatologist made on youtube that helped me understand about it more. It is dibilitating to say the least. I would not wish it on anyone for the world.

Share this comment

Link to comment

I wish you continued relief and improvement. My sister, a nurse, has fibro. It's awful for her....It's sad to see what it did to her in such a short period. Hoping they find a cure soon. Best wishes.

Share this comment

Link to comment

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Recent Blogs

  • Blog Comments

    • I already planned to do some "lower"-carbing this week, though I may consider going ultra-low if I feel up to it
    • The "swelling" is from lymphedema. The PS interrupted your lymphatic drainage system And it takes a while for the body to "reconnect." And what you're experiencing with the compression gear is absolutely true! If you don't have the proper garment in place, it will cause worse swelling below the area due to the inability for that lymph fluid to drain. I wear my sleeve every day. If I don't, then my arm gets huge and if I don't wear my glove with it, then my hand turns into a balloon. I do feel better with it than without it. It gives a comfort/secure/structure feeling. LOL. So glad you are feeling better girlie!!! Oh also, you know me...biased low carber, but $10 bet says that if you ditched the high carb crap and went back to low carb, you would notice the end of your belly bloat starting in as little as 3-4 days and maybe a complete resolution of it in 2-3weeks. hehe. Sorry couldn't resist. You know me...always biased. TY for sharing your journey girlie!! You are so brave and have been a true warrior during this time!!
    • I hear ya. So I'm taking a sewing course soon on how to alter clothes. That way I can change all my post surgery clothes to the right size when needed. Also, I will get the right fit for me and not just the generic size. If you have a sewing machine, why not try taking them in yourself?
    • I'm also trying to cut back on buying clothes! My problem is the opposite of yours though... I started buying new clothes after my surgery because it was so fun to look good in everything. When I would find something I really liked, I bought multiples of it. Plus on line shopping is so easy. Click, click, and a present gets delivered to your door I've done better in January, but still found myself shopping. Just this week I had an inspiration though... when I see clothes I like, I am just taking a picture of them or of the outfit, and then replicating it with things I already own in my closet. This is fun also. I swear if I had all the money I've spent on clothes since my surgery I could have gone on an extended vacation in some exotic locale. Live and learn right? When we know better, we do better. Good luck to you on your resolution. Have you tried selling your extra items on Ebay?
    • I know you will get the chance to do everything you used to do because I am convinced of the same for me! 😉 (Thanks for commenting on my blog.)
  • Together, we have lost...