livingwithdercums

"Boomers" is an unflavored protein powder that is available in Australia..check their website to see who sells it near you.. it is expensive...I paid $53 for a 1kg bag.......it is meant for cold drinks etc but my dietician said you can add it to soups etc once they are ready to dished up but not added to the soup while cooking as it kills the protein..it is quite rich so I only use 1/2 scoop in a shake instead of a full scoop ( but other people rave over how rich and yummy it is )

HI I have had Dercum's for over 25 years now..... I used to be very slim and active but following a car accident I very quickly put on a huge amount of weight even though I did not eat much more or do less than I had previously.... all the doctors I saw said I was eating too much and needed more exercise...no one believed me when I said I was not over eating......... I also had a lot of pain in my bones and muscles as well as pain in my body fat (which doctors told me was impossible) I had trouble sleeping,felt hot all the time,had memory and concentration problems and many more symptoms.. it was all put down to the car accident and I was given painkillers.... I soon developed some very noticeable lumps under my skin which were very painful ... my doctor told me they were lipomas and did not hurt...but they did !! I googled painful fat/lipomas and pages and pages about Dercums came up.. . When I started to read it my stomach hit the ground,it was like reading all about me !! wow,I wasn't going nuts after all !!! I read that Dercum's often seems to be triggered by trauma or even stress.. and that it often causes generalized obesity as well as the fatty tumors.... looking back I can remember slight symptoms and changes to my body but my troubles blew up after my car accident.. I have been able to keep my weight steady but just cannot lose it as the fatigue and pain makes exercise difficult. I have since been to a pain clinic as well as my general practitioner who have found a pain med schedule that works well enough for me to be just comfortable at rest..if I over do things I pay for days afterwards .There is not much else to do except surgical removal of the worst lipomas... Sadly I have arthritis in my right knee and need a knee replacement urgently so my doctor referred me to get Gastric sleeve surgery to get my weight down so that I have the best outcome from the knee surgery.Apparently Gastric sleeve surgery is quite good for those with DD according to several women on DD forums that I have spoken to who have had it done. I am waiting on the public list to get it done as I do not have private health insurance and cannot afford to pay outright.