Good evening everyone. I have a question. Do any of you have factor 5 (blood clotting disorder) and had surgery? I was told I will be on blood thinner shots for 4 weeks after surgery, but wanted to know if anyone else had this and what did you do to prevent getting blood clots. TIA!!

Oh do be careful, I remember an NBC reporter during the Gulf War died of this.I think his name was David Bloom. And I think he was only 40 years old.

I have that too but I didn't have any trouble with blood clots. I made sure to walk around a LOT in the hospital and once I got home post-op and while you're in the hospital they use those things that massage your calves to prevent blood clots and I made sure to use them any time I was in the bed.

On 05/22/2019 at 20:51, Frustr8 said:

Oh do be careful, I remember an NBC reporter during the Gulf War died of this.I think his name was David Bloom. And I think he was only 40 years old.

I did read about him, but his clot was caused by being in cramped quarters for so long.

On 05/23/2019 at 05:13, GradyCat said:

I have that too but I didn't have any trouble with blood clots. I made sure to walk around a LOT in the hospital and once I got home post-op and while you're in the hospital they use those things that massage your calves to prevent blood clots and I made sure to use them any time I was in the bed.

Thank you! Did you have shots to take home also? I planned on walking a ton and I also have the massaging calf thing at home I plan on using!

1 hour ago, momof2mnm said:

1 hour ago, GradyCat said:

I have that too but I didn't have any trouble with blood clots. I made sure to walk around a LOT in the hospital and once I got home post-op and while you're in the hospital they use those things that massage your calves to prevent blood clots and I made sure to use them any time I was in the bed.

Thank you! Did you have shots to take home also? I planned on walking a ton and I also have the massaging calf thing at home I plan on using!

No, I didn't have to do the shots or blood thinners

Take care of yourselves, all of you. I read somewhere that factor 5 ladies have an increased rate of miscarriage, and often that happens before they even get the diagnosis. And yeah, you are correct momof2mnm, it was from prolonged sitting in those tanks, he threw a pulmonary embolism, he had no clue he had this condition, autopsy is a horrible way to find out!
I had a son die at 31 from undiagnosed congenital heart defects, his aorta basically exploded and he bled out within seconds. And no one in the family, including his late Daddy and I had a clue. To know him you would thought him the healthiest of our entire family. 11 years and I will never stop missing HIM in my life. And it took an autopsy to tell us what happened.??

And although I do not share this syndrome with you and Grady Cat. I was super-conscientious. about my Lovenox shots, every 12 hours on the dot for 2 weeks. Didn't hurt, those needles are a very fine gauge, and the clots I had feared didn't happen. And I too had the pumper socks , due more to my age. Very nice things, wish I had invented them, imagine the royalties on each,usuage!

I have factor 5 Leiden and had a sleeve done in January. I had heparin injections while in the hospital and then did Lovenox injections for 2 weeks after surgery. My hematologist said my risk from the surgery was less than a normal person, as long as I took the Lovenox. I have had other surgeries also with no problem but I always do the Lovenox after. Just keep hydrated, walk, walk, walk, and take your Lovenox!