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Complications....so broken and sadden

as im writing this i am uncontrollably crying. I had gastric sleeve surgury on 8/25. I was fine the first week, the second week i noticed I had lots of gas pain...so i thought...then i thought it was constipation. Called the nurse at the office and she gave me more pain meds and told me to take a mirilax. After i did all that I did feel better, but my upper left side of stomach still was hurting. I also felt that i couldn't drink enough so I felt dehydrated. So on 9/7 I went tot he hospital. I was admitted once they did a CT scan and found an infection and abcess with a small leak. I was then rushed to surgury and admitted to the hospital. I had a horrible time at the first hospital I was at because the nursing staff seemed to not know how to do anything. They even had me miss a dose of antibiotics. I got a PICC line and was told that my white blood cell count is high and needed to come down to normal range. Throughout the week, things only got worst. Finally on that friday my doctors wanted to transfer me to another hospital in case they needed to put in a stent. I went there and everything was seemed to turn around. On that saturday, I got a CT assisted procedure where they sucked out the bad stuff in my abcess and put in another drain. Afterwards my white blood cell count decreased and I felt better. Well Im home now with 2 drains, a PICC line, and TPN and 5 days with of antibiotics.

Im so sad and hurt because I don't know what to do. Im so scared this is going to go on for months. I'm only 29 years old. I look at all these boxes of medicine and I break down crying. And the thing about is is that I did it to myself. I was pefectly healthy. I was 297 lbs, but i was active. I have faith in God that he will bring me through this and take care of everything. Its just so hard right now. I am out of work, I can't bathe myself, or even comb my hair. And my poor fiance. He is hanging in there with me and supporting me. He helps me do everything while still working. I just cry everything I think about what I did to him. I love him so much and i never wanted this for him. He was fine with me, he just wanted me healthy and thats all. Not a certain size or anything. I did this because I couldn't control myself and displine myself to stay in a healthy lifestyle on my own. I didn't think it would be easy, but I didn't think it would be like this. I am sooooo scared.

i have an appointment on monday for a swallow study (don't know what that is), then an appointment with my surgeon the next day. I pray that everything goes well. I don't know how much I can take of this.

Has anyone went through something like this?

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:( I am so very sorry u have to go thru this- but I am an xray tech and we do swallowing studies, message me with ANY questions and I'd be happy to explain what will happen and what to expect.

I'll be thinking of you.

Stay strong, this too shall pass.

thanks everyone for the encouraging words...I went on monday for a GI swallow study and today I went to see my doctor for the results....LEAK HAS HEALED...AND ALL BLOOD WORK IS NORMAL (AT LEAST WERE HE WANTS IT))...

I just screamed thank you jesus...I am a woman of faith and this has been one of the hardest things I have every went through. He took out one of my drains and put me on clear liquids...still on tpn til I can eat enough Protein.

I am so happy..

This has been a long journey this month...I just thank God for seeing me through this...I pray He can continue to heal me and to carry me though the rest of this journey.

one question for all...the place where he took out the drain is leaking a lot of like pus stuff...doesn't hurt or stink...called nurse and she said it was okay as long as it didn't stink or was like a deep yellow or green color... has anyone experienced this?

The drain entrance will leak a little and or a little more. Just dab it gently and wear a band aide for a few days until it dries up. There may even form a bump where the liquid has gathered. But it is not to worry about. The only thing is if it is green or funky smelling accompanied by fever. Then go get it checked out...okay :)

So very happy to hear that at least some things are starting to work out for you!

  • 2 weeks later...
  • Author

so....leak did not heal as i thought....

a few days later I was taking my medicine and i smelled some of my jp output and it smelled a lil like the meds...so i did the blue dye Water test...blue showed up in my jp drain output...so i went back to NPO...

doc did CT scan and it showed no leak...blood work shows everything is normal ....so he just said that i still need to

now a week later I tried the blue dye test again...blue dye showed up again...so my doc said he is going to be talking to a gastroenterologist and formulate a plan....don't know what that means

I have no fever, chills, pain, or infection...i am actually feeling better than i have in a while....still NPO and kinda depressed about that

I can't wait to drink something...starting to get my hunger and thrist back

what should i do??

I am so very sorry. Wsh I could give hugs. That has got to be frustrating. Why is it they need to work with the GI? That is a surgical issue.

  • Author

my doc said something about getting a clip and endoscopy...at this point im ready to cuss everyone out and go somewhere else...i have been NPO for over a month and im going crazy...im thristy and hungery and can't do anything about it...im out of work and ready to go back...im miserable...i feel like i should not have done this and im very upset at my doc

Something isn't right and I agree with you. Who is paying for this?

  • Author

my insurance is paying for most of it...i have small percentage co-pay..

I went through the same thing thought I was healed and I was not they put a stent in for 3 months which hurt every day but I am now healed and lost over 100 lbs it was so worth it keep your head up

  • Author

so i get a endoscopy today....no leak shown...everything comes back normal...so the GI doc said he didn't feel i needed a clip or stendt....so not only does that not show and leak, my GI swallow test and CT scan shows now leak....im so fustrated...

still NPO...i just don't know what to do now...

anyone went through this?

Not that but similar types of problems. What is still ongoing now? Have they ruled out GI issues or motility issues?

  • Author

they both told me that everything seems normal as far as things moving through my GI tract...

They did a gastric emptying study? EGD/colonoscopy? There is another test I had done with swallowing a capsule, one for intestines that included just x rays 5 days apart (others do them different times apart) and another one where I had a monitor on all day and the capsule went the whole way down.

  • Author

no i haven't had anything like that...they just said i have a small pin hold size leak in the upper part of my stomach...i dunno what else they are going to do...the GI doc said he was going to talk to my surgeon and some other GI docs and get back with me tomorrow or saturday to tell me the next step

Ummm ... even a small pin hole can leak things out. You have more patience that I do. I admire that.

I would pray for you, that really bites.

I know someone who had a leak from one of the two bariatric surgeons in the group I was in and they switched to the other doctor.

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