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I don't have any advice but I feel that if the surgeon is saying he doesn't know what to do, then he needs to call a colleague who is more advanced to see what can be done. I hope you get better.
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Lulugirl- I have been feeling so down and so upset over this whole thing. I mean, what else could go wrong!!?? But you know what? We are going to get better. Why? Because that's the only thing that ca
I have posted a few times about this topic, but I'm still looking for some sort of similarity between someone else, because I am losing hope that I will ever ingest food again (I am not exaggerating).
Surgery on Monday, 8/6. By Friday, I can't keep any liquids down, so I go to surgeon's office. We find out through a barium swallow that I have a stricture. They think it is due to swelling so they send me home, hoping I can hydrate myself through the weekend.
Monday morning, I'm admitted to the hospital for dehydration. All weekend it was a constant pattern: 1 sip every 10 minutes, then 30ish minutes later, liquid would come up. No pain. Monday, I rested and hydrated, minimal Fluid loss, as I was not allowed to drink. Tuesday, rest and hydrate, no plan of attack by the surgeon. Wednesday, Upper GI/ Barium Swallow - indicates that there is still a stricture, same size.
Now, the surgeon says he is not sure what we should do because he believes it is too early to stretch it with a balloon because my stomach could rupture. I have been through hell here. They can't keep an IV in me, so I have to have a "pick line" through my arm and across my chest... I am trying so hard to stay positive, but I feel like I have no options. Can't go home without being able to keep liquids down (Currently 2 TBSP every hour), and it can take 3 months for the stomach heal...
SO??!! Anyone have anything like this? Any words of advice?
I'm getting zero nutrition. The past 10 days I have taken in NO calories of any kind. I'm worried I am losing weight too fast and in an unhealthy way. :/