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onikenbai

Gastric Bypass Patients
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Everything posted by onikenbai

  1. Working on it. My paperwork is already in to get my band out and to convert to some other surgery.
  2. onikenbai

    Kitchener-Waterloo-Cambridge Anyone?

    You can also surf over to the obesity hep board. It's a more general board, but they definitely have weekly K-W support meetings you could attend.
  3. I do have trouble eating things that are good for me. I've had my band for almost 2 years now, and I've never really progressed out of the mushy phase. meat of any kind makes me throw up about 80% of the time, can't even think of eating things like apples. Bread, Pasta and rice are absolute no-go. What I wouldn't give for a chicken sandwich... I basically live on soup, salad and oatmeal. They can't quite figure out what the problem is with me. The band isn't too tight and my food isn't getting stuck, it just makes me so nauseated that it sends me running to the sink with the first bite. Some days it's so bad that even liquids make me hurl. It's true though, the crap foods generally will stay down somewhat better than the good foods, and you get to a point where you're so hungry, you eat whatever you can. It's not that I live on pizza and burgers, because no way they would stay down, but the less obvious crap foods like crackers, melba toast , mashed potatoes, spaghetti sauce, yogurt, gallons of crystal light and other foods which may not scream badness, but really aren't meant to make up the bulk of a diet either. They're not filling foods so I'm always hungry, but the filling foods won't stay down. Then out of the blue, I'll have a day or two where anything goes down in any quantity. On those days I'm almost normal and try to get some Protein into me in the form of chili, meatballs or fish. I still won't tempt fate with trying larger cuts of meat, breads or crunchy veggies as I'm pretty sure they still wouldn't stay down. Everybody is different and you can't really predict these things before your band goes in. You may luck out and be able to eat anything, or you may end up hypersensitive like me. I will likely end up revising to another WLS, but I'm still glad I went the band route first as the least invasive alternative.
  4. onikenbai

    feeling sick on pre-op diet

    Feeling like absolute crap on the pre-op diet is normal. Not everybody reacts to being put in ketosis the same and headaches, fatigue and nausea are commonly reported. Generally the feelings subside a bit after a few days of the diet. The hunger should also go away too but if you cheat even the littlest bit and throw in some sugar it comes back with a raving vengeance.
  5. onikenbai

    Would you do it again?

    I have had my band since October 2009 and it hasn't gone all that well. I've never been able to progress out of the mushy phase and even today, oatmeal is not going to sit. Nevertheless, I am glad I got my band as I wanted to exhaust the less invasive methods before I do something that can't be easily reversed. I'm now on the wait list to have another surgery, but even then, I'm kind of hoping they can work around my band and I'll get to keep it in the end, just in case I may still need it down the road. So the band hasn't been the best thing I've ever done, but it's not really the worst either.
  6. onikenbai

    How Long to Wait?

    Update: All parties have now conceded the band isn't working for me. I have, officially, lost the band war. I am now starting a whole new war with my GP in trying to get a revision to something else. She is anti-surgery. Even worse, she is not computer literate, a complete requirement now that Ontario has moved to a totally automated referral system for the bariatric network. Me getting the proper healthcare I need may be completely sidelined by my doctor's ability to register for a username.
  7. My doctor is at a loss to explain what's going on with my band. I've had it a little over a year now and it is causing me grief, but not in the usual way. I have only ever been stuck once (not complaining about that) but my problem is nausea. When I eat, no mater what I eat, I take a few bites and then this overwhelming nausea comes over me. Sometimes I can manage to keep the food down for up to a half hour, but it generally comes back up again. It's not a problem of eating too fast or too much because it very often happens on the first bite and I have always been the slowest eater on the face of the earth. I don't have to make myself throw up as it comes up all by itself, although I will admit to the occasional thump on the sternum to hurry up the inevitable. My other problem is restriction. There does not seem to be a sweet spot for me. I can either eat anything pretty much as much as I want, or first bite leads to puking not being able to eat ever without a plan of where I can throw up. My problems don't correlate to specific foods, times of stress or even time of the day. The doctors are stymied. My band hasn't slipped, it's not too tight, not leaking, not eating through my stomach, and not causing pain. There's just the massive nausea and the all or nothing restriction problem. I've tried the band forums but I still haven't found anybody who has this problem. I'm now considering a revision to the sleeve because my weight is causing the CSF in my brain to push on my eyes and it's threatening to tear apart my eyes from the inside and blind me. I've also had a headache for the past 6 years. Something has to happen. I'm a little apprehensive because my band appears to have been a huge failure, but at least it's reversible. The sleeve is a one way trip. Has anybody experienced something similar or am I just a special snowflake?
  8. How long are people usually in the hospital after their sleeve operations? Is it day surgery, overnight, do I pack a long book? My band surgery was an in and out thing and I was only at the clinic for five, maybe six hours. My band is not agreeing with me at all well and it looks like it has to come out. Hopefully with a sleeve I won't have to plan a place to throw up before I put anything in my mouth.
  9. onikenbai

    Doctor is at a Loss to Explain

    I've started the process for getting on to the list for a VSG or RNY in Ontario, although I've been delayed a week. Ironically, my doctor called in sick. It may take a while, but it will be free. I don't have the cash for another self-pay surgery. Until they've exhausted all the options with me losing weight, they're not going to put in a shunt. Basically they're waiting to see if I put an ice pick through my own head to relieve the pain before they do anything... some days I'm sorely tempted.
  10. onikenbai

    Doctor is at a Loss to Explain

    Went to the neurologist yesterday and that was a complete waste of time. He told me to lose weight. Um, yeah, I know... that's why I spent $18K to get the band. Back to my band surgeon I guess. Hopefully I can get him to refer me to the bariatric clinic downtown. If that's a no go then I'm going to have to push my family doctor to refer me. Gotta be referred here. That's how it works. You want free surgery and lifetime after care, you have to jump through a hoop or two.
  11. onikenbai

    Doctor is at a Loss to Explain

    I can't put a thing in my mouth without a plan of where I'm going to throw up. People keep harassing me over having cups in my car and about how sloppy I am not to throw them out. Um, they're there for a reason. You never know when you have to hurl while driving. Sometimes that glass of Water didn't go down as well you thought it did at first. Yes, the band seems to be incredibly fickle. The other day I ate this HUGE bowl of meatballs... I was soooo hungry. It went down fine like the band wasn't in place. The next day I threw up a tablespoon of yogurt and couldn't put solid food in my mouth all day.
  12. If you contact the airline and explain that you are booking for medical reasons you may be able to sweet talk them into upgrading you for reduced cost. Otherwise, I say suck it up and pay for first class. You have to think of your seat neigbour too... you will be somewhat fragile at that time and your neighbour may unintentionally bang you with an elbow or something because you're all crammed in so tightly. I know I would be kind of uncomfortable if I got on a flight to find out my seat mate just had major surgery. I would be nervous the whole flight about hurting them.
  13. Normal. I was told after my surgery to steer clear of the dentist for at least 3 months if possible due to increased bleeding potential after being given a thinner during surgery. They have a longer residence time in the body than you would expect.
  14. onikenbai

    Approved Snacks for Liquid Diet

    My pre-op diet was all food, no Protein shakes because I discovered an incredible intolerance to Protein Shakes in my pre-pre-op trial diet. I had to stick to 800 calories a day with almost no sugar, carbs or fats, including natural ones such as fruit or dark meats. I ate a lot of zucchini, eggplant, lettuce, avocado, raw carrots (not cooked!), plain chicken, plain fish, broth and endless celery. That was basically all I ate for a month. The sugar free drinks and popsicles were also ok, but no coffee or caffeine because of the dehydrating factor. Although it sounds better than shakes, the diet was longer and it really isn't that much more fun. Go easy on the broth because of its sodium content. On the up side, after about the third day I pretty much lost my appetite and some days I had trouble getting in more than 500 calories. 500 calories of zucchini is a lot of zucchini.
  15. Lap band is not a quick fix by any means as it is a major adjustment to your way of life, for good or bad. Some people have great results and some don't, and that gamble is why a lot of people say it is a waste of money. Personally, my band experience has turned out to be not all that great but I'm not doing to give a blanket statement that bands are bad. I seem to be a special snowflake medically as they can't quite figure out why my band isn't playing nicely. It happens in some people. Am I pleased that I had to shell out $18K to find out I am a special snowflake? Not at all. I am glad that I tried the least invasive and permanent solution before I moved on to pursuing an RNY or a VSG because now I won't always be wondering about what could have been... At your height and weight, you have a lot to lose and are similar to my situation. Before you commit to a band, make sure that it really is the best option for you. Consult a surgeon who does all the surgeries, not just one whose bread and butter is bands. Get an opinion from somebody who is fully informed and hasn't got a financial interest in your decision. Start going to a WLS group meeting (actually in person not online) before you make your final decision for a really good idea of the subtleties of each surgery. Reading the side effects and consequences of each choice and hearing them in person are two completely different experiences.
  16. onikenbai

    Pre-op diet, WHY?

    I don't think the bit of plain chicken would really hurt, but it's a slippery slope. Face it, plain chicken sucks and it's sooo tempting to put something on it for a bit of flavour. Most of the time the flavouring is high carb. During my pre-op diet I made a Soup of chicken, low sodium broth, zucchini, eggplant, celery and onion. Wasn't half bad actually once you threw in a whole lot of basil. The bummer was that no noodles or carrots were allowed because of the carb factor, meaning I couldn't just crack open a can of Campbells and call it a day.
  17. onikenbai

    Doctor is at a Loss to Explain

    I just have too much CSF. The other option would be to put in a shunt which will siphon off excess to somewhere else in my body, but they have a history of getting clogged from time to time so it's really not that great a fix. I was on meds for a while for it, but they didn't really help much and they were really expensive so I ended up stopping them. The one thing that did work really well was a spinal tap. They actually did the tap to see if I had meningitis but they had to remove Fluid for the test. I had a whole blissful week without a headache. Unfortunately the body creates new CSF to replace the old so it didn't last and it's far too risky a procedure to do weekly. I'm off to the neuro-opthamologist later in the month and I'm hoping that he'll refer me to a surgeon for revision. Because I'm Canadian, I can get my surgery fully paid for if there is a medical need. It's not the fastest route, but after paying $18K for my band, I am deeply in debt and cannot afford another self-pay. My band current band surgeon (not actually the person who put it in, but the guy who took over the practice) thinks I should give it another last go at restriction and then I should start looking at other options. I'm cool with that. My neuro appointment isn't until the end of November anyways and I want to know what he thinks before I move forward.
  18. onikenbai

    Pre-op diet, WHY?

    I'm completely intolerant of all the Protein shakes out there... and I tried many. Still thinking about the sleeve, but my pre-op diet before my band had to be protein drink-free. Yes, you can shrink your liver quite well without those shakes. I had to stick to fish, chicken and veg for a month with very very very little sugar or carbs. I wasn't even allowed fruit because of the sugar. I had a complete physical about a week before my band went in and my GP did the dip stick test and it showed I was way into the ketotic state so the all food method does work. I also lost 30lbs in 31 days. On the down side, my hair started falling out in handfuls during my second week of the diet, but I think that would have happened even if I had gone the Protein Drink route. If I have a revision I am really not looking forward into do all of it again, but you gotta do what you gotta do.
  19. onikenbai

    Lupus / Lupus Nephritis Question

    I'm also having problems with my band and I also have an autoimmune disease. Every time I get a fill enough to even border on restriction, my body goes nuts and epic hurling ensues if I try to eat food, good or bad. So for me it's all restriction or no restriction. I've had my band for a year now and not lost a single pound. Before I had by band put in, I asked lots of questions about my fibromyalgia and if it would be a problem and I was assured that it wouldn't. They lied. I am considering a revision to the sleeve and I am again concerned about the autoimmune disease aspect and will I end up even sicker? The sleeve can't be reversed, which makes me a bit apprehensive. If I don't lose the weight, there's a possibility I may go blind because the pressure in my brain is threatening to tear apart my eyeballs from the inside so something has to be done. Rock==>ME<==Hard Place
  20. onikenbai

    What is eating you???

    I've had my band for a year and I can sort of see how bulemia comes into it. Every time I even sort of reach any sort of restriction, I can't keep anything down and end up throwing up 7-8 times a day. For me it's either restricted or not; there is no middle ground. I've not lost any weight since my surgery a year ago, but now I'm to the point where I just want them to fill me to where I just can't eat. Yes, I'll be miserable but I'm miserable now. Plus I'm so broke because of the cost of the surgery, I really can't afford food anymore. Too tight to eat is starting to look pretty good.
  21. onikenbai

    Motivation has Left the Building

    So apparently you can throw up 5-7 times a day for five months and not have your band slip. Still not recommended by any means, but my upper GI scan shows everything is where it's supposed to be. It also showed that I have zero restriction and that stuff is just flying through the band. No kidding. Maybe this is why I'm so damn hungry all the time? With the nausea, the hunger, the puking and my doctor's apparent lack of interest in why I'm having so much trouble, I have to say I've lost all motivation to make this work. Every time I get remotely close to restriction, I start puking my guts out. I'm not too tight, we've got pictures to prove it. My doctor is baffled as to why six days out of seven food sits in my stomach like a lead ball until I puke it up, and on the seventh day I could eat the entire grocery store. There is no pain, just nausea. The food is not stuck. On an empty stomach I can put back a litre of water in less than five minutes... none of this 'small sips to feel it trickle through' required. Still haven't lost a single pound since the pre-op diet, which also made me sick. Just once in my life I wish something would go my way when it comes to my health. Band problems are the proverbial last straw to years of constant pain, exhaustion and illness. It's not so much that I want to give up on the band as I want to give up. I'm tired; there's no more fight in me. All I have are memories of the things I've had to give up as I got sicker: soccer, bicycles, violin, piano, walking, school, jobs... 24 years of drugs, doctors and hospitals and I'm done. I'm genuinely happy for those who are band success stories. Keep on going! :rolleyes2: Just because I'm too broken to be fixed doesn't mean that nobody around me can be happy. Maybe I'll make a last ditch effort to see if I can make some other surgery work for me. Given my track record of medical problems though, I don't think another surgeon is going to want to go anywhere near me. Time will tell.
  22. onikenbai

    Allergic to bandaids???

    I have an extreme reaction to the adhesive on pretty much all products, as in I woke up from surgery screaming get it off me! My skin puffs up about a 1/4 inch and then comes off completely, leaving large wounds behind. It's itchy and painful for at least a month afterward. Despite telling the surgical team quite clearly that I was extremely allergic to the bandages, I woke up from one surgery with about 5ft2 of my skin covered in them. The nurses assumed I was exaggerating my allergy. Nope. I was lucky not to have suffered permanent scarring from that incident as I lost most of the skin on my torso. I've never since seen such horror as the faces of nursing staff when they saw my back... It's not common to have such an extreme reaction, but it's not an uncommon allergy. You could be allergic to the latex, or it could be the actual adhesive. For me, it's not the latex. If you have to do medical stuff in the future, it would be best if you raided the pharmacy to figure out which of the products you can use and then take them with you to the hospital with you to be used. You can find a useful product in most pharmacies that can be used instead of band-aids. It's a stretchy material that sticks to itself only, not to skin. It's good for finger cuts and small things, but since it has to go around something to come back and stick to itself, its utility is pretty much confined to fingers and toes. Better than nothing though.
  23. onikenbai

    Dry Heaving...Help!

    Positive feedback loop. Heaving causes swelling which causes heaving. As far as I know, you just have to ride it out until it peters out. Happens to me a lot.
  24. onikenbai

    Band Slippage??

    Sounds like general post-op swelling but if you're not getting any liquids down, you really should call the doctor. Don't drink then go lie down. It will come back up and you will not enjoy it. Take smaller sips instead of doing half a glass at a time. For the first few weeks after my surgery I could feel and hear the sloshing sound of water sitting above my band in my stomach when I walked.
  25. onikenbai

    Pain Better, Restriction GONE!

    Finally, after five months of throwing up daily, I have finally annoyed my doctor into action and he sent me for an upper GI, which I had yesterday. Thank you very much for sending me right downtown on the first day of the G20... I've always wanted to see every single piece of riot equipment the city owns. What do you call 20 cops on bicycles? A gaggle, flock, murder, cute as all hell? What? He also took out 0.5cc of fluid from my band. I have mixed feelings about this. On the one hand, my puking 7-8 times a day as soon as I put any morsel of food into my stomach stopped, so yay! I cannot tell you how good it felt to eat something so simple as an apple slice, which I haven't been able to do ever with the band. It was like a foodgasm. I have been fruitless, with the exception of raspberries, for almost a year, and the same goes for raw veggies. Oh carrots how I've missed you. For months now, if it hasn't been stewed into a wretched pulp, I couldn't eat it. I think we can all grasp the irony of not being able to eat either fruits or vegetables with the band. On the downside, we had already agreed before I got my unfill that being overfilled wasn't the root problem. What didn't make me puke on the first bite, I could eat 2 cups of easily. I have endured more soup than the average person should ever in my life. Seriously, I'm taking out shares in Campbell's. Some days I could even go so far as to eat a couple of huge skewers of chicken souvlaki or a half a tub of yogurt at one sitting (again, Yoplait, I'm taking out shares). On the days I could eat, it was smooth sailing for just about any food. Unfortunately, that was only about one day in six, which is crappy odds. Now something is driving me to just keep eating. Today I ate nearly half a watermelon! In one sitting and I'm still not full! Granted, I still have 7-something cc in my 14cc band, but the restriction is gone, gone, gone. The doctor that did my upper GI said that things looked ok on the first pass but that he'd have to look into it more closely later, which is good because I was expecting a "Holy crap! Your band is down around your ankles!" after months and months of daily retching. So I'd like some of my restriction back please before I decimate the country's watermelon population. I guess now the search is on for what is my problem if my band doesn't appear to have slipped. Whenever I get enough fill to have any sort of restriction, I immediately fall back into the daily puking problem. We've tried the trick of inching up the restriction by 0.1cc increments already in the hopes that maybe I just got one over zealous fill, but no, that does not seem to be the problem. I'm not getting that typical 'stuck' feeling of incredible pain radiating across the chest. I've had that before when I really was stuck. Nope, I eat my bite of food, chew it to a mushy pulp, and then it goes down and sits like a big ball of lead. No pain, just a growing nausea and pit in the stomach feeling that makes me want to know where is the closest loo. I keep hearing from other people that they have to go make themselves throw up in the bathroom. Not me. The mere sight of a sink usually does it like Pavlov, although I will admit to giving my sternum one or two good thumps occasionally like burping a baby to help things along. So what is the problem? Gallbladder maybe? That would explain the weird stomach pains I've been getting in completely the wrong place to be band related. Over sensitive vagus nerve? Who knows? All I know is that this band thing doesn't seem to be working out for me as planned. The only tool it appears to be acting as is to make me a better bulimic. That makes my mother happy as she is an eating disorder on wheels, but I'm not too thrilled about it.

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