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ClareLynn

Duodenal Switch Patients
  • Content Count

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  1. Like
    ClareLynn got a reaction from angelofnature2 in Looking for surgeon recommendation in Illinois west suburbs   
    The Kane Center in Hoffman Estates is where my mother, uncle and now I am having surgery. They work out of St Alexis in Barrington and also Alexian Brothers in Elk Grove. They are one of the places that BCBS works with in Illinois.
    My surgeon is Dr Paul Guske. Everyone at the office has been very helpful and respectful, they have the approval process pretty streamlined. I saw the surgeon in September and my surgery is scheduled for November.
  2. Like
    ClareLynn got a reaction from Maroux in Jumping in   
    I have been lurking for a while and using everyone's experience on this forum to build up the courage to do the surgery. I am nearly done with the pre-op appointments, and then I'm having a duodenal switch (the newer single kind).
    I quickly ran into a big snag when I saw the pulmonologist to be cleared for surgery. He insisted that I stop my endometriosis medication (progesterone only) for 3 weeks before and a month afterwards. I have stage iv endometriosis and am disabled without the medication, can barely walk due to pain and usually end up in the ER every month. He just absolutely refused to engage with my questions about how to be smart about blood clots, and also not undo years of work to get to a level of "able to live with endo". I understand the risks of blood clots but he just wouldn't even listen to the risks if I stop either.
    I spoke with my gynecologist and she thought that it was fine to be on it. She really blew me away with her support, she called that pulmonologist and got him to agree that the risks of me being off meds outweighed the blood clot risk. I nearly cried to have doctor advocate for me, especially to another doctor on my behalf.
    So now I can look forward to the surgery! I am dreaming of doing it before the end of the year (since I've already hit my deductible and out of pocket max) but it's beyond a long shot probably.
    Thanks everyone for sharing here on the forum, it's been a great help.
  3. Like
    ClareLynn got a reaction from Maroux in Jumping in   
    I have been lurking for a while and using everyone's experience on this forum to build up the courage to do the surgery. I am nearly done with the pre-op appointments, and then I'm having a duodenal switch (the newer single kind).
    I quickly ran into a big snag when I saw the pulmonologist to be cleared for surgery. He insisted that I stop my endometriosis medication (progesterone only) for 3 weeks before and a month afterwards. I have stage iv endometriosis and am disabled without the medication, can barely walk due to pain and usually end up in the ER every month. He just absolutely refused to engage with my questions about how to be smart about blood clots, and also not undo years of work to get to a level of "able to live with endo". I understand the risks of blood clots but he just wouldn't even listen to the risks if I stop either.
    I spoke with my gynecologist and she thought that it was fine to be on it. She really blew me away with her support, she called that pulmonologist and got him to agree that the risks of me being off meds outweighed the blood clot risk. I nearly cried to have doctor advocate for me, especially to another doctor on my behalf.
    So now I can look forward to the surgery! I am dreaming of doing it before the end of the year (since I've already hit my deductible and out of pocket max) but it's beyond a long shot probably.
    Thanks everyone for sharing here on the forum, it's been a great help.
  4. Like
    ClareLynn got a reaction from Maroux in Jumping in   
    I have been lurking for a while and using everyone's experience on this forum to build up the courage to do the surgery. I am nearly done with the pre-op appointments, and then I'm having a duodenal switch (the newer single kind).
    I quickly ran into a big snag when I saw the pulmonologist to be cleared for surgery. He insisted that I stop my endometriosis medication (progesterone only) for 3 weeks before and a month afterwards. I have stage iv endometriosis and am disabled without the medication, can barely walk due to pain and usually end up in the ER every month. He just absolutely refused to engage with my questions about how to be smart about blood clots, and also not undo years of work to get to a level of "able to live with endo". I understand the risks of blood clots but he just wouldn't even listen to the risks if I stop either.
    I spoke with my gynecologist and she thought that it was fine to be on it. She really blew me away with her support, she called that pulmonologist and got him to agree that the risks of me being off meds outweighed the blood clot risk. I nearly cried to have doctor advocate for me, especially to another doctor on my behalf.
    So now I can look forward to the surgery! I am dreaming of doing it before the end of the year (since I've already hit my deductible and out of pocket max) but it's beyond a long shot probably.
    Thanks everyone for sharing here on the forum, it's been a great help.
  5. Like
    ClareLynn got a reaction from Maroux in Jumping in   
    I have been lurking for a while and using everyone's experience on this forum to build up the courage to do the surgery. I am nearly done with the pre-op appointments, and then I'm having a duodenal switch (the newer single kind).
    I quickly ran into a big snag when I saw the pulmonologist to be cleared for surgery. He insisted that I stop my endometriosis medication (progesterone only) for 3 weeks before and a month afterwards. I have stage iv endometriosis and am disabled without the medication, can barely walk due to pain and usually end up in the ER every month. He just absolutely refused to engage with my questions about how to be smart about blood clots, and also not undo years of work to get to a level of "able to live with endo". I understand the risks of blood clots but he just wouldn't even listen to the risks if I stop either.
    I spoke with my gynecologist and she thought that it was fine to be on it. She really blew me away with her support, she called that pulmonologist and got him to agree that the risks of me being off meds outweighed the blood clot risk. I nearly cried to have doctor advocate for me, especially to another doctor on my behalf.
    So now I can look forward to the surgery! I am dreaming of doing it before the end of the year (since I've already hit my deductible and out of pocket max) but it's beyond a long shot probably.
    Thanks everyone for sharing here on the forum, it's been a great help.
  6. Like
    ClareLynn got a reaction from Maroux in Jumping in   
    I have been lurking for a while and using everyone's experience on this forum to build up the courage to do the surgery. I am nearly done with the pre-op appointments, and then I'm having a duodenal switch (the newer single kind).
    I quickly ran into a big snag when I saw the pulmonologist to be cleared for surgery. He insisted that I stop my endometriosis medication (progesterone only) for 3 weeks before and a month afterwards. I have stage iv endometriosis and am disabled without the medication, can barely walk due to pain and usually end up in the ER every month. He just absolutely refused to engage with my questions about how to be smart about blood clots, and also not undo years of work to get to a level of "able to live with endo". I understand the risks of blood clots but he just wouldn't even listen to the risks if I stop either.
    I spoke with my gynecologist and she thought that it was fine to be on it. She really blew me away with her support, she called that pulmonologist and got him to agree that the risks of me being off meds outweighed the blood clot risk. I nearly cried to have doctor advocate for me, especially to another doctor on my behalf.
    So now I can look forward to the surgery! I am dreaming of doing it before the end of the year (since I've already hit my deductible and out of pocket max) but it's beyond a long shot probably.
    Thanks everyone for sharing here on the forum, it's been a great help.
  7. Like
    ClareLynn got a reaction from Maroux in Jumping in   
    I have been lurking for a while and using everyone's experience on this forum to build up the courage to do the surgery. I am nearly done with the pre-op appointments, and then I'm having a duodenal switch (the newer single kind).
    I quickly ran into a big snag when I saw the pulmonologist to be cleared for surgery. He insisted that I stop my endometriosis medication (progesterone only) for 3 weeks before and a month afterwards. I have stage iv endometriosis and am disabled without the medication, can barely walk due to pain and usually end up in the ER every month. He just absolutely refused to engage with my questions about how to be smart about blood clots, and also not undo years of work to get to a level of "able to live with endo". I understand the risks of blood clots but he just wouldn't even listen to the risks if I stop either.
    I spoke with my gynecologist and she thought that it was fine to be on it. She really blew me away with her support, she called that pulmonologist and got him to agree that the risks of me being off meds outweighed the blood clot risk. I nearly cried to have doctor advocate for me, especially to another doctor on my behalf.
    So now I can look forward to the surgery! I am dreaming of doing it before the end of the year (since I've already hit my deductible and out of pocket max) but it's beyond a long shot probably.
    Thanks everyone for sharing here on the forum, it's been a great help.

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