Wow, you've had a tough road too! It would be nice if my stretch marks went away, but I doubt they will. I've lost weight in the past and they never did. We'll see about this time, but I think they are here to stay.
Thank you! Prednisone is the worst drug I've ever had the misfortune of taking. If you look at the photos, all of the stretch marks are because of Prednisone. When it was first prescribed, I was on an ultra-high dose. I gained over 75 pounds in about three weeks. My skin never recovered. A couple of years later when the doctor said I needed to take it again, I said no way. That was when I opted for the first surgery back in 1995. It is the only drug that has ever made me rage. I was a mess when I was on it. Aside from the weight gain, I was so short-fused no one could stand to be around me. Once I stopped taking it, that all went away. IMHO, Prednisone is evil, plain and simple...
As for the Keto diet, I've tried it and the high fat made me ill and gave me acne really bad. I'm basically doing a modified keto, modified Atkins, which is high Protein and low carb. It has helped so far.
Thank you! If the bariatric surgeon can do it laparoscopically, great! However, if he cannot, at least the skin he will be cutting through has never been cut through before. My upper abdomen is virgin when it comes to surgery. This will make for an easier recovery than the lower abdomen, where I have been opened three times prior and have a lot of scar tissue.
And, the bariatric surgeon really does not want to do it open. He says it makes his job much more difficult. They have perfected the surgery to be done laparoscopically and the tools work much better when used that way. They do not work as well when they are not locked within a trocar
Thank you! Prednisone is the worst drug I've ever had the misfortune of taking. If you look at the photos, all of the stretch marks are because of Prednisone. When it was first prescribed, I was on an ultra-high dose. I gained over 75 pounds in about three weeks. My skin never recovered. A couple of years later when the doctor said I needed to take it again, I said no way. That was when I opted for the first surgery back in 1995. It is the only drug that has ever made me rage. I was a mess when I was on it. Aside from the weight gain, I was so short-fused no one could stand to be around me. Once I stopped taking it, that all went away. IMHO, Prednisone is evil, plain and simple...
As for the Keto diet, I've tried it and the high fat made me ill and gave me acne really bad. I'm basically doing a modified keto, modified Atkins, which is high Protein and low carb. It has helped so far.
Wow! Am I rooting for your success with this all!!!! Prednisone is a cruel cruel (and miraculous) drug! And so is digestive diseases. I'm so sorry you've suffered and felt like you had to do this alone without a life partner. I pray this is the answer for final relief!!!
I know you've probably tried all things, but what happens when you go to a really pure diet of only protein/fat and very select veggies. NO gluten or things that cross-react with gluten (including dairy). Do you see any improvement at this point?
So, I have promised to share my story with anyone who is interested. I’m not simply a bariatric surgery patient. Feel free to ask questions about what I have gone through. I am not shy about talking about my travails and have lots of experience with surgery in general. The photos I am sharing may be disturbing to some people. I am scarred and have an ileostomy. If you are squeamish, you may want to skip the photos.
Here we go… Get your popcorn, this is a very long post.
My name is Andy. I turned 52 in early July. I am single and live alone with my dog. I’ve been heavy most of my life. But, my journey is about my chronic illness and the effects it has had on me and my body.
I have Crohn’s Disease. I started having symptoms when I was 15. It got really bad when I was in the Navy, but it was in 1990 that I was first hospitalized because of it. I was, at first, diagnosed with ulcerative colitis and started on medication. This seemed to help for a while, but it kept getting worse. In 1995, when my doctor said I had to start taking Prednisone again, I opted to have a radical surgery to “cure” me by removing the organ of choice for this autoimmune disease. On April 20, 1995, I had the first of three major abdominal surgeries at Northwestern University Hospital, in Illinois. I had my entire large intestine removed and an internal pouch was made out of my small intestine to take the place of my large intestine. The surgery took almost 12 hours to complete. It was done open incision; laparoscopic surgery of this type was not perfected until the early 2000s. (My youngest brother had this exact surgery performed in 2012 laparoscopically. Crohn’s disease runs in my family.) This pouch was connected to the exit and I had a loop ileostomy for three months while the internal pouch healed. Yes, I pooped into a bag hanging from my stomach for three months back then. Then, after the three months, I went back in for another surgery where they closed the ileostomy and dropped my intestine back inside. Things went well for a couple of years, then I got sick again.
I moved to California and started a new job in 2002. When I found a new gastroenterologist in southern California, he did some tests and said I did not have ulcerative colitis, but Crohn’s Disease. (The difference between these two irritable bowel diseases is ulcerative colitis only attacks the large intestine, but Crohn’s disease can attack any part of the digestive system.) This doctor started me on an infusion medication called Remicade. This was the first medication that ever really worked. I took it for about 14 years until I developed antibodies to it. I kept taking it even though it was not working because the doctor never had me tested for antibodies.
In 2014, I moved to Idaho. I found my current gastroenterologist, who is the best doctor I have ever had. He put me on Humira. This is a self-injectable medication that also worked for a while, this time about two years. When he saw that the Humira was no longer working, he ordered a blood test that would see if I had antibodies to it. This is when I found out that I had antibodies to both Humira and my previous medication, Remicade. I was then switched to Cimzia, which never worked. I just keep getting sicker and sicker. (The worst part of having Crohn’s disease is there are no outward signs that you are sick. I looked fine but felt like crap all the time. No one at work believed I was sick)
One of the side effects of my surgery in 1995 was scar tissue in my small intestines where the ileostomy was. Because of this, I periodically have small bowel obstructions that usually require hospitalization. To date, I have had 17 small bowel obstructions. These usually clear themselves while I am in the hospital, by not eating anything (NPO) and having an NG (Naso-gastral) tube inserted up my nose and down into my stomach, to remove any contents using suction.
Let’s jump ahead to last year – May 2017. I had yet another small bowel obstruction. I was hospitalized as usual, but this time it did not clear. I had been in the hospital for two weeks and then they decided I needed surgery to clear the blockage. When I was talking to the surgeon before the surgery, he said I had a 90% chance that I would come out of surgery with a permanent ileostomy. This was not the case. In this second major open abdominal surgery, the surgeon was able to remove scar tissue strictures from the outside of my small intestine and they immediately inflated and the blockage passed. I got lucky. The surgeon told me that if I had another small bowel obstruction, he would be forced to remove my internal pouch and give me a permanent ileostomy.
In August of 2017, this is exactly what happened. A bit after 4 am on August 21, 2017 (yes, the day of the total solar eclipse – I’ll say more about this in a minute), I went to the emergency room and was admitted about 8:30 am for yet another small bowel obstruction. I had been up all night throwing up and getting sicker, so I was exhausted by the time I got to my room. About 10 am, the nurse came in and asked if I wanted to go out to the parking lot and watch the eclipse. I was so sick and exhausted that I said no and slept through the entire event. (I live in one of the areas where people came to view the event (eastern Idaho) and I missed the entire thing because of this damn disease…) When the surgeon came in later that day, he said that he had scheduled me for surgery on Wednesday, August 23, 2017,, for the removal of my badly diseased internal pouch and give me a permanent end ileostomy. So, again, I poop into a bag.
So, on August 23, 2017, I had the third major open abdominal surgery. One thing to note here is this was the third time I had been opened up in the same place – from just above my belly button, vertically down into my groin. My wound had barely healed from the surgery in May and the surgeon was cutting me open again. This ended up being a long recovery.
There were two issues with this surgery: the first was the placement of the ileostomy. The surgeon placed it in the scar tissue from my ileostomy that I had back in 1995. This has caused issues with the seal on my bag.
The second issue was the surgical wound. While I got much better since the badly diseased part of my small intestine was surgically removed, the wound did not want to heal. I was in the hospital for over three weeks and eventually sent home on with a wound vac. This device keeps constant suction on the wound and removes any blood and body fluids from the wound, preventing infection and speeding healing. The problem with my wound this time is it was not closed properly and it took over four months for it to close enough for me to stop using the wound vac. I was able to finally return to work in January of 2018.
Back to my gastroenterologist. I went to see him in Februar 2018 for a checkup and an intestinal scope, called a sigmoidoscopy. This is basically the same as a colonoscopy, but they use a much smaller device. It is about the same size as an endoscope. When this procedure was over, he said to me that I needed to lose weight. (He basically says this every time I see him, about every three months) This time, I was sick of hearing about it so I asked him for a referral to see a dietician to help me with my weight and my eating.
About a month later, I get an unexpected call from a bariatric surgeon’s office near where I live and was invited to a seminar. I went and after the presentation, I went to ask the surgeon a couple of questions about whether or not I was a candidate based on my surgeries. She said that it was not out of the question, but she would need me to make an appointment to be sure. I was seen in late March 2018. When I met with the surgeon, she asked me to lift my shirt and show her my abdomen. She took one look at my scars and said she could do nothing for me. She referred me to a bariatric surgeon at the University of Utah, who I met with on June 29, 2018. Because I had already started the journey, according to my insurance, back in March, the doctor placed me on the fast-track to get everything done. Since June 29th, I have had 14 appointments in Salt Lake City, about 210 miles south of where I live.
During this first appointment, I also talked to the bariatric surgeon about my other issues and he referred me to a colo-rectal surgeon, also at U of U. I met with him on July 20, 2018. We discussed revision surgery on the placement of my ileostomy and the removal of internal scar tissue around my small intestines on the left side of my abdomen. He said that these things need to be done and that he would coordinate with the bariatric surgeon. The bariatric surgeon was more hesitant and needed much convincing. I finally was able to talk him into performing both sets of procedures during the same operating room visit. I was finally approved for everything and am scheduled for surgery on September 6, 2018.
In early August of this year, I was finally approved for yet another Crohn’s medication – Stelara. This, by the way, is the second most expensive medication in the United States, behind only Harvoni (which is used for hepatitis C). Stelara costs about $20,000 per dose and I have to inject one dose every two months. So far, it is working.
So, to recap – on September 6, 2018, I will be having a vertical sleeve gastrectomy, performed laparoscopically (prepped for open, but he is going to attempt laparoscopically first) by Dr. Volckmann as the first procedure performed. While I am still under and after Dr. Volckmann finishes, Dr. Pickron will come in and perform a revision on the location of my permanent end ileostomy and attempt to remove as much scar tissue from my small intestines as he can. This will be performed open, through the same incision location and scar tissue that has been used now three previous times.
I am also posting photos of what I look like without clothing, with privates blocked out. Since my surgery on August 23, 2018, only my doctors have seen me this way. And the last photo is of my "surgery" haircut. I hate to deal with my hair in the hospital so I just cut it all off before I go in.
If you have made it to this point, thank you for reading my story. I have never written it all down before and as such, have never shared everything with anyone.
Thanks for sharing your story! You have had a difficult journey. I will be thinking of you tomorrow and wish you much success in this next step. You've got this!
Thank you for saying so! You have been such an inspiration to me since I came here. Your posts are always informative and well written. I appreciate what you bring to this forum. (-:
I lowkey received something similar from the psychologist! when I didn't understand one of the questions, rather couldn't answer it he told me to join this site... Then he gave his approval referral.
The app is not intuitive, nor is it easy to change anything (it is possible, but you have to know where to find it). It is a decent app, but it needs improvement. The website version is better, but you still have to know where to go to change anything.
Way to go on your journey so far! Very impressive and inspirational!
Those are some very interesting observations. I'm still pre-op (surgery Thursday 9/6/18) so I have not experienced anything like this. I tend to shy away from people and do not have any true friends. I'm hoping this will help my confidence around people. But even if it does not, I'm still going to be happy about being more healthy and thinner. The people I have shared with are supportive, so far. I have only told two people at work and they have been great. My supervisor is a very vain person (and in very good shape). He is very cold to me and acts like he does not like being around me. I have always chalked it up to his personality being lacking, but it is probably my weight that triggers him. I'm going to laugh at him if he starts trying to be friends with me after I meet my goal. Luckily, I work in a completely different site than he does, so I do not have to deal with him face to face except for a couple of times a month.
I know me so I know exactly when I can eat pizza again... never. Pizza for me is one serving size - the whole thing. It does not matter what size it is, I will eat all of it. It is one of my trigger foods, so I will avoid it at all costs. I'm not going through all of this to keep eating what got me here.
I know me so I know exactly when I can eat pizza again... never. Pizza for me is one serving size - the whole thing. It does not matter what size it is, I will eat all of it. It is one of my trigger foods, so I will avoid it at all costs. I'm not going through all of this to keep eating what got me here.
Thank you! But that is only my first set goal. My surgeon thought it was appropriate to say that I could aim for my high school weight. But, I was very athletic in high school and I think 180lb on me now, will be too heavy. I think ultimately 150-160 will be a lot better.
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