Thank you for your reply. I have been unable to find a specialist in my area proficient in CVS management. As it is, it took 12 years and 10 GI doctors and got nowhere. My GI doc now is willing to try the suggestions I get from the cvs group, but does not have alot of knowledge on his own about it. It is very uncommon.It was a good idea, just wish i had a doctor who would actually know to ask.