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jenjenp

Gastric Sleeve Patients
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Posts posted by jenjenp

  4. Posted

    Hi all. I have. An autoimmune disease called polymialgia rheumatica. Took a long time to diagnose because the average age of first diagnosis is 70. And I was 46. I had actually lost 96 pounds on my own and was in the best shape of my life. But steroids for years has put me back up over 200. So I had the sleeve done 6 weeks ago. I am tapering off prednisone. May take a year. And my rheumatologist wants me to take methotrexate. I forget who mentioned taking that I know it's a chemi drug. Any bad side effects and did it work for you?

    Also the original poster mentioned eyesight problems. One of the side effects of polymialgia rheumatica is giant cell something and it can blind you. Pmr. Mimics other diseases and is hard to diagnose. Needless to say my weight loss after surgery has been slow. I don't eat. Much. My rheumatologist says that the steroids make your body hold onto the weight.

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    I consider myself an expert when it comes to autoimmune rheumatic diseases.

    First- let's talk your prednisone:

    See an endocrinologist. Pronto. I was taking 60 mg of pred a day for years. There was no weaning off, because any time I got down to 20-25mg, I literally could not function. In any capacity. Enter the endocrinologist. Because the prednisone does just as much (if not more!) damage than good, my adrenal function was gone, I had prednisone induced glaucoma as well as prednisone induced diabetes. I needed off the meds ASAP. She prescribed me ORAL hydrocortisone. It mimics- and tricks- your body into believing it is prednisone, and is MUCH easier to wean off of than the prednisone. It took a total of 2.5 months vs over a year or longer if it were the prednisone. Do this. Again, ASAP. Ask for it.

    Second- methotrexate, either by pill or injection: pills made me sick, puking, typical chemo side effects. The shots did not, and they actually work much more effectively than the pills, so if given a choice, it is a once a week teeny tiny needle. Side effects- don't bother paying attention to them. The benefits far outweigh any possible adverse effects. You will need regular blood work to monitor your liver enzymes. Again, I have been on a very high dosage, so mine were often screwy.

    Third: I can't imagine any surgeon doing WLS or ANY elective surgery while you are on either of these meds. I had to "wash out" before I could have my surgery, meaning get all traces of the meds out of my blood system and stored reserves. Both drugs make you more susceptible to infection and the prednisone especially makes healing hard. And keeps weight on. Again- seeing an endocrinologist will get you off the pred by using oral hydrocortisone pills.

    Usually PMR goes away after a year or so. I wonder if you don't have true rheumatoid arthritis? The tests- a sed rate and C-reactive Protein screen are used for PMR as well as other autoimmune arthritis diagnosis. Just a thought.

    So- don't worry about side effects of the methotrexate and get off the pred!!!

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    Hi am just seeing this now. Thank you for responding. I did get off prednisone about 8 months ago. But it started to come back and about 2 months later I couldn't take it and went back on. My rheumatologist says cut down till I feel pain. Then start methotrexate. Shots. So I can continue to get off prednisone. I did have all the testing done. They did suspect fibromyalgia ms. Lupus RA etc Till all tests were done.

    I will look into seeing an endocrinologist. I did tell the dr about prednisone. He said it was fine and I may lose slower. I am now 9 weeks out and lost 20 pounds. 10 more the week before surgery. I was "only" 201 day of surgery. I would like to lose faster but. I really want to get off the prednisone. Thank you and why doesn't my rheumatologist k ow about this?

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    JenniferVSG2011 reacted to this

  5. Posted

    I tried fried chicken breast the other day 8.5 weeks out. Just the meat not the outside. I ate a few bites and either I ate too fast or it was too dry. I felt bad for an hour. Tonight however I got Boston market. 1/4 dark meat. With a little creamed spinach. I definitely ate too fast. I ate 1/2 of the 1/4 chicken and some of f the spinach. Felt bad for 1/2 hour. When will I learn to slow down!!

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  9. Posted

    I'm in the same situation. Losing slow but still losing. Down 30 including pre op diet. I am finally at the point that I'm glad to have done the surgery. I dont enjoy food like I used to. But I guess that's what got me in trouble in the first place. I am 8 1/2 weeks out. I am still nauseous a lot. Hard to drink enough Water. Tastes awful. If i eat anything besides really safe food like yogurt or Soup or shakes. My stomach hurts anyone else? When does it get better?

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  12. Posted · Edited by jenjenp

    I was sleeved August 15th. Still nauseous after most food. That is not yogurt or Protein shakes. oatmeal is ok. But fish. chicken. Pork. Does not sit well. Anyone else? I also had hiatal hernia repair. Not sure that has anything to do with it. I also wake up nauseous. I see my doc

    on Wednesday. Just want to make sure it is normal and will go away. Water still tastes bad. I see so many posts with people that say their recovery was so easy it's frustrating. I am the type of person that never gets s sick either so I thought it would be easier for me. I also haven't lost a lot of weight. Started at 211. Pre surgery diet. 201 surgery day. 184. 7 weeks post op. Unfortunately I still take prednisone. Probably for 8 more months. I am tapering off and into something else I know that doesn't help either.

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  13. Posted

    I am 7 weeks out. I still eat mostly yogurt. Protein Shakes And occasionally oatmeal.

    I have tried more solid food like chicken or pork or a small homemade hamburger.

    I feel sick and nauseous after eating them though.

    I read posts here all the time where people are fine after the first week or two.

    I am definitely better as every week goes by

    But I thought by this time I would be eating a little more normal.

    Anyone else in the same situation?

    I did have a hiatal hernia repaired the same time as sleeve. But not sure if that affects his my sleeve heals.

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  16. Posted

    In all honesty. I got the sleeve so my stomach would be smaller and at least in the beginning. First 6 months maybe ? a small amount of food would make me full. That's why we all got the sleeve right? Cause we couldn't control small portions on our own. No he shouldn't have put. A 20 oz steak on the plate. But something is wrong if 20 oz of steak can be eaten and not make you throw up sick. I just ate 2 oz ground beef and 1/4 cup of black Beans. I'm 6 weeks out. I am super full.

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  24. Posted

    He should be happy for you. My husband was/ is very supportive. Men will be men though. He had a few dental implants and compares it to my surgery. But your guy seems extra insensitive. Do this for you and you will gain confidence as you progress. This site is here for support so if you need to vent. Then vent away. If you ask for advice. You will get it too.

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  25. Posted

    Did your dr put you on blood thinners when you left the hospital after surgery? I was on them for two weeks after. Anyways glad you caught it. And hope you feel better about everything. I am almost 6 weeks out. I am just at the point of not regretting surgery. I was nauseous all the time. Still not 100%. And food doesn't really taste good to me anymore. Probably a good thing or I wouldn't be where I am. But now I can see the weight coming off so it will get better

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