theantichick
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Status Updates posted by theantichick
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Made it through the weekend on the pre-op diet without mucking it up too badly.
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I've lost about 3 lbs, looks like. I'm trying to be conservative because my scale seems to weigh 3-5 lbs lighter than the doctor's scales. My scales say I've lost about 5. I could be eating cleaner dinners, but it's a heck of a lot cleaner than the way I have been eating, so I know it's an improvement.
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Made it to the gym yesterday with the trainer, I think we over-did the lower body workout, today my knee is killing me. Need to spend more time in the pool.
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Met fluid goal yesterday, need to keep it up and get the protein intake up. Just don't feel like eating/drinking, but need to get in the habit. Otherwise doing really good, feeling more energetic today, and arthritis is even less pain than it has been. Still working from home, which was a good choice.
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Mondays suck. It's a grey rainy one here in DFW, and I'd rather be curled up in bed with a good book.
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More NSV - Jeans I haven't been able to wear since LAST fall are now comfortable on the verge of loose. Soft foods are harder than I expected, so still slogging away with the shakes for protein, but it's nice to have variety. My kinesiology student daughter is developing a workout plan for me LOL.
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My poor trainer. I did some research on weight training with auto-immune arthritis, and apparently you have to start REALLY FREAKING low. 5-10% of total body weight for upper body, 25% for lower. That meant I had to do lat pulldowns with #10 of weight. Felt like nothing at the time. Slightly sore this morning, but I'm not seeing an actual flare, so we might be on the right track now. Fingers crossed. I do NOT want to give up on working out.
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It can be really tough. My wife has Lupus, rheumatoid arthritis and Raynaud's disease. She's dealt with skin cancer, cervical cancer and a brain tumor since we've been married. Every time she finally starts losing weight she ends up with a flare and she has to go back on prednisone. My hat is off to you, I can see how difficult it really is for someone with autoimmune issues.
On a side note, have you looked into immunotherapy? As soon as we have the cash we will be heading back to Mexico for immunotherapy to cure her Lupus. The medicine base that she needs should be available again by the time that we have the money. Five thousand to cure her Lupus is the deal of a lifetime.
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I'd need to know more about the treatment you're talking about. The current standard of therapy if DMARDs fail is also called immunotherapy, but it's not a cure, it's infusion of one or more biologic drugs. If you have info you can post or PM me, I'd happily look at it. Right now, we're using sulfasalazine and getting partial relief from it. I'm also very lucky in that I had a diagnosis very quickly comparatively speaking, and the diagnosis was made before any detectable damage was done to my joints. So we're working through the treatment protocols to get me the best relief as well as inflammatory suppression. We haven't maxed out sulfasalazine yet, if we do and need something else plaquenil is the next therapy to try, then if that failed we'd move to biologics.
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My previous status should have said 1 week PRE-op down, 5 lbs lost, 1 week to go. 7 days until S-day.
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New BP meds are working! BP has been consistently at or very near normal all weekend. Yay!
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Oddest thing... was eating chicken last night and was doing OK with speed, but got super nauseated after dipping some in BBQ sauce. Closest I've come to throwing up since this all started. What gives?
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This was full-on "I'm going to puke" complete with chills/clammy feeling. I ran for the bathroom, I was so convinced it was coming. I was able to stand and deep breathe and move past it without puking (I despise throwing up and will do anything to avoid it) but it was about 15 min of is-it-gonna-happen and another 15 before I felt OK again. Weird thing is, since I have to get carbs in, I've eaten stuff with a LOT more sugar content than the tiny bit in the tiny bit of sauce I put on the chicken. I've also had pork and chicken crock potted in that same BBQ sauce since surgery with no problem. This was just the first time I had it straight out of the fridge on food. BBQ sauce is already cooked, so I wouldn't think cooking it more would change any of the components, but maybe it makes it blend with the meat somehow that doesn't happen as a dipping sauce? Now I'm leery of ketchup or anything else along those lines.
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that's exactly how felt after having something with monkfruit. I didn't realize that was the cause initially, until it happened again the next day. When I need a "dip" for meat and don't feel like my usual greek yogurt/herb concoction (or if I don't have any), I use mustard. Super low cal/low carb as condiments go, still provides some moistness to help the meat go down and strong flavor. I find some days I just need something with a strong flavor to it
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I dump randomly. Almost always if it's something rich like a cream based soup or ice cream. Hot sweat/cold chills/stuff coming out of both ends at the same time. Sometimes (usually) it's immediate, sometimes it is 20 minutes later.
I have to get it out because I am dizzy, weak, and hyperventilate until it passes. It's horrible.
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Officially off all BP meds, and PCP agreed I don't need to start migraine prevention just yet as the latest migraines were caused by dehydration (bad antichick, drink your water!!). So the medication count is dropping along with my weight, and she's very happy with the trend. I also get to keep my Mirena another year, yay!!
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Oh, and my hair is now falling out. Not enough to cause bald spots, but the shower drain and sink look like they're growing their own fur at this point. Yuck!! Hope that stops soon.
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I'm pretty convinced it's inevitable and unstoppable. The amount of hair between my fingers, stuck to my back, all over my bathroom floor, clogging the drain, all over my pillow, car, carpets, coats...it's stunning. I check for thin spots very, very often On the positive side, my humongous head of hair is somewhat manageable these days!
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yeah, I agree it happens or it doesn't. The supplements and stuff can't really change the underlying situation that the body is dealing with a trauma, and one way it does is to recycle hair and skin cells. It's more of a PITA with the drains than anything else. My daughter has Alopecia Totalis (entire scalp bald), currently in remission... so I know how bad it CAN get, and am just always grateful when it's not. LOL
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Oh, I hate insurance companies (reimbursement problem, not a problem with the surgery approval or anything... just terribly frustrating)
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One week out. Working from home is going well. I think I'll be able to handle the office 3 days next week. Finding myself just not hungry, having to set reminders on my phone for drinking and protein and walking around. Which is what I'd hoped for, but it makes it a struggle to get in enough.
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Pre-op testing today, continuing to slug along the pre-op diet. Found out how versatile the unflavored powders are. (Yeah, I'd know that if I'd actually try all the stuff I read... sue me. LOL)
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Preop Day 3 was good. Managed to make good choices eating out even. Now for the weekend.
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Scale hasn't gone down much, but my "skinny" pants are fitting much better. I'm going to need a new set of "skinny" pants!!
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So my work pants are getting looser but not so loose that I have to pitch them, except for the fact they're now about 4" too long!!! Not worth hemming because by next week I'd have to ditch them anyway. I didn't realize my girth was taking up length. ::headdesk::
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Some days it doesn't pay to chew through the restraints... (is it 5 o'clock yet?)
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Staying upbeat today, as I have last weigh-in for the supervised diet, and will be on vacay all next week.
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The world is ending for us poor Texans. White stuff is falling from the skies and it's COLD. Brrrr!
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Antichick, I was told that when it snowed years back in Chesapeake (near Norfolk) Va., people were so unaccustomed that they drove off the roadway and into ditches (no sewer system there at least at the time). It has snowed in Texas, y'know. Alaska? Really? I did major armchair travel there to the point that I had a mail subscription to the Sunday Anchorage paper for a few months. Because of the ad circulars, I mail-ordered moose cookie cutters from one Allen & Petersen (I think that was the name). You're from Alaska, which makes you exotic & a romantic heroine.
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I was 8 when we left, and always said I wanted to move back. But I blew the one chance I had before I got married and had a kiddo with a Texan. Then I was stuck here until the custody agreement expired. At that point I'd married another die-hard Texan and developed auto-immune arthritis and lost my tolerance for the cold. So I guess I'm stuck here. LOL.
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They reloaded the snack machine at my office, with THREE ROWS of jumbo honey buns. Am *SO* grateful for my sleeve and the loss of the cravings for that stuff. Part of my brain still responds, but the other part doesn't think that sounds as good as my key lime greek yogurt. LOL
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HA! I am not a fan of pumpkin spice either. But I do love my yoga pants. And I hate honey buns. My youngest works at Panera after school and brings home pastries a few times a week. If I was a sweets lover, I'd change the locks.
Starbucks has a new Mexican hot chocolate with or without espresso that I can't wait to try.
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This continues to be the best thing I've ever done for my health. My auto-immune arthritis pain is subsiding with zero meds. I do see my rheumy next week to get back on meds because even without pain the inflammation can damage joints. But I haven't felt this good unmedicated for years. Clothes continue having to go in the "giveaway" box for getting too loose. This weekend I'll have to pull down boxes of clothes that are smaller and assess the wardrobe. Getting more active, and feeling generally pretty good. Even cleaned part of my house last night!
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Three day weekends are just long enough to get your schedule all discombobulated but not long enough to truly feel rested. At any rate, I'm getting back on the exercise bandwagon today. Solid (soft) foods are going down fine, but I don't think I'm getting enough protein or calories yet, and I keep forgetting to track. Need to do better.
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It's also hard to track when I'm not even getting a 1/4 cup of food down before I feel too full. And I'm not stressing much about the calories/protein stuff, but I like to know where I am to gauge progress. I'm not getting as much fluid in as I would like, but my urine is still light and I have no symptoms of dehydration, so I know I'm OK at least. I'm also still starting off the day with a protein shake so I'm not completely falling down on the protein piece.
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Today I'm down 75# - ILostWhat.com says that's the same as an Emperor Penguin!
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Trying to find motivation to get dressed, am providing medic support at roller derby tonight