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RJ'S/beginning

Gastric Sleeve Patients
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Posts posted by RJ'S/beginning


  1. I don't mean to be a nitpicker, but I want to be sure that newbies researching get accurate information.

    When I was researching the sleeve in 2011 it was clear even then that there are some long term complications associated with the sleeve. #1 is reflux/GERD. in fact, it seems to peak about 3-6 years post op - I recall reading that about 30% are impacted. Most people can manage it well though... a few have to revise to bypass because it is so bad. I had to ask myself if I was willing to risk this.

    #2 regain. This is a risk of all WLS and the sleeve has very comparable stats to the bypass, but it is still a long term "risk"

    #3 Less common, but real problems like: ulcers and other "problems of the stomach". This seems fairly uncommon, but there is a person on this forum who developed a "leak" a year or more post op from an ulcer. Reactive hypoglycemia, vit B deficiencies and other very uncommon type problems can show up.

    I don't say any of that to scare people - just go in with your eyes open. I, like most sleevers, have no complications and am very happy with my choice, but there are long term concerns to be aware.

    Gee thanks @@CowgirlJane that's the only thing you mentioned that I haven't got yet. Reflux/ Gerd! Thanks I look forward to years 3-6 now! lol

    If you don't have humor you have nothing right! :)


  2. I read on here once a lady who said she couldn't wait to stop wearing glitter on her clothing. Big flowers and painfully unattractive outfits that never fit right.

    Me I have given up the big flowers but not the glitter. I like to shine. I wear lots of leather jackets and bright colors. A lot of jewelry as part of the glitter and pink. Lots of pink.

    Right now I am holding off getting more closes because I hope to have skin removal surgery! So I am looking forward to that.

    Look out world. If they thought I was running wild with clothes before...That had nothing on my future! :)


  3. I was originally interested in having the band done. My surgeon suggested the sleeve.

    Seems to me that there is good and bad experiences with all surgeries. If I were to go back I might have chosen differently if I knew all the complications I and others that I have contact with have had with the sleeve surgery.

    I wonder if someday the sleeve will be fazed out as they may say we used to do the "sleeve surgery." That that surgery might be considered barbaric. We just never know what the future has to hold!

    As with science and medicine they are always moving ahead making strides in areas like these. I hope someday they have a pill that can be taken that will rid all mankind of their ills! Addiction is a difficult demon to live with.


  4. I understand that obesity is part of my history and will always play a part in my future. Whether I gain the weight back or not. I have been through a lot because of my choice of WLS. I had been through a lot before the WLS. This I understand everyone. This I see.

    It is an addiction. I am a food addict. I know that! I own up to it! No issues there.

    It's the word! It's the meaning of the word! I don't know a single person who thinks that word is okay except for maybe one who has the exceptional ability to push it off like it has no meaning.

    To me they use it like a title. Not a diagnosis. Not every heavy person is the same but they put us all in the same pot! Paint us all with the same brush! I hate it. They can't take that extra minute to write "Reactive Hypoglycemia." That would have been the purpose of my visit to the dietitian. Not a diet to lose weight.

    When the Dietitian is confused. That tells me that the form was not filled out properly! That's all I'm saying here.


  5. Whenever you go to an appointment where body weight and nutrition are the subjects of the care, it will always be there. However, when it is not a current diagnosis, some may still treat it as one because of the always elevated risk that we could backslide and re-enter that reviled land. Same with diabetes, many medical professionals never actually officially removed your diagnosis as a condition since they prefer to treat that (and obesity) as dormant and in remission, rather than cured. But that is obviously a fiery debate that you can read all over the internet. Of course, there's an elevated chance we return to either of those conditions than the average skinny person whose never had either one. For the most part, though, it would just appear as part of your past medical history. And who cares about the past. We live for now and for the future.

    If it makes you feel better, if you go to a specialist for reasons unrelated to weight or weight loss surgery, I don't see why it would ever be noted as part of your history, even in cases where you need to list WLS as part of your past surgical history. It isn't a label that follows you around except in cases where your past weight is directly relevant to a current condition or treatment plan.

    It was not the history. It was the diagnoses. He wrote it as the reason I was going to her. Not to enlighten her about my history. But as the REASON I was going to her.

    If it was normal to put that on the reason for referral. Why was she confused when she saw me? why did she not have a clue what I was doing there? Why did she feel the need to show me what he had written as the reason for a Dietitian if it had not confused her?


  6. IMHO, I feel like I will always be an obese person, no matter what my weight. I've been morbidly obese, normal weight, and back to obese many times that my weight and health WILL always be something I will have to fight for.

    I am glad that you can laugh at this. Whatever gets you through the day and whatever you can do to handle how others see you. But for me it was a time in my life where I dealt with a lot of crap over it and no one ever pulled punches either.

    For me that is over and was shocked to see the word or even read it on a paper that had nothing to do with my former obesity state!

    I think it is wonderful if you are the kind of person to let this word roll off your back! Unfortunately I am not one of those!

    I guess I will always detest that word and would love to throat punch the person who came up with it!


  7. What an unfortunate incident! I am sorry it happened to you and made you so upset. It sounds like it was an innocent but difficult to forgive mistake on the clinic’s part. It also sounds like it was just coincidence that it happened to you (a successful WLS patient).

    It is unfortunate, but true, that diagnoses stay with you for pretty much forever on your health record! At least it’s a good reminder of where you’ve been and how far you’ve come. :)

    Regarding the hypoglycemia, it is does seem possible that it is reactive hypoglycemia. One thing your doctor might test for – if you haven’t already gotten this done – is your A1C levels, which are a better indicator of blood sugar levels over time.

    About carbs: is it possible for you to consider eating small amounts of “healthy” carbs if that seems to be what your doctor suggests? Or do you feel that even healthy carbs like oatmeal and whole wheat Pasta would be trigger foods or too hard to keep under control?

    Anyway, sorry you had to deal with this mistake!

    Good point Alex. I will ask about testing for my A1C levels.

    She did suggest healthy carbs. Both that you mentioned, I am having trouble digesting them. I will look at more legumes as she got excited that I enjoy them.

    So far this week I have had two attacks. But was able to catch them before they got really bad! :)

    I know it is Reactive Hypoglycemia. I was diagnosed with that. But for some reason as I am an emotional person and affected by things around me. It seems to trigger the attacks more then say others who are less sensitive to their surroundings. This is who I am. My nature! I cannot change this part of me. If I/they can't figure out a way to help me then it will be one more pill I have to take daily.

    Still it does not change the fact that I would do it all over again. To be where I am today!


  8. @RJ'S/beginning

    I get it. The first time a doctor called me "morbidly obese" I wanted to cry :(

    And I can understand the shock of you seeing it on your chart now, when you are actually on the "normal" BMI category. I would have felt it too, until I thought about it a little.

    But my initial reaction would be like "Hey! How DARE you say I'm STILL OBESE!" Lol.

    the point is that nothing else was on the sheet. none of my other problems. Or issues. Just OBESITY! That was not even the reason I went to see him. It was because of my Hypoglycemia. Then he transferred me to the Dietitian. There was no reason for that to be on that sheet. Yes I see it is part of who I will always be but it had nothing to do with either visits.

    Monday I go see a cancer doctor. I am sure that he won't have OBESE written as the reason I am there. It is just stupid!

    My size or previous condition had nothing to do with the visits to either appointments.


  9. Somehow I got it in my silly head that if you work hard enough and lose enough that no one will remember who you used to be. I know that is wrong thinking. But the word jumped out at me from the page and I handled it badly!

    Today it is just another day. I don't care anymore!

    But I think if we give people labels and don't see changes or growth then that is a sad commentary on how we view life. Once in a box of labels, always in a box of labels!


  10. That's unfortunate but obesity is still a relevant diagnosis, even if you are no longer obese!

    Maybe in reality it is! But it undermines everything a person has worked so hard to change. To me when you change you are no longer who you were.

    I did not go to him for this particular issue. I went for another.

    I went to my Gynecologist and not once did she write obesity on the form she was filling out. I know I watched her fill it out.

    When it is no longer relevant then put it in my file if you so chose. But not as a diagnosis that is not even there now!

    If that is how it is supposed to be then there is a list of things that has happened to me that should be on that damn report then.

    That word is horrid to me. I don't care what size a person is. I personally find that word repulsive!

    Relevant or not it did not apply to this situation!


  11. Your doctor didn't make a mistake. Your medical chart will always denote that obesity is a diagnosis, even if you are now thinner. The information is critical to know, especially if you're still living with chronic co-morbid conditions from being obese.

    Actually, I am living with worse conditions since surgery then before. I not only take more drugs but I have reactive Hypoglycemia because of it. Other then a bad back I was a healthy over weight person.

    The chronic co-morbid conditions happened after the surgery. K


  12. Whenever I go to see the surgeon's office, even though I am 27 months post-op, the word obesity appears on the forms. This threw me for a loop because I am no longer obese. It dawned on me that this is all about insurance. They have to code my visit for insurance billing purposes and since I had WLS, this is the best coding they can use.

    I was wondering about your hypoglycemia. There is one form that is tied to meals which is called reactive hypoglycemia. Reactive hypoglycemia (postprandial hypoglycemia) is low blood sugar that occurs after a meal — usually within four hours after eating. Low blood sugar (hypoglycemia) usually occurs while fasting. Signs and symptoms of reactive hypoglycemia may include hunger, weakness, shakiness, sleepiness, sweating, lightheadedness, anxiety and confusion.

    Someone told me that it is like a spike in blood sugar followed by a crash. If this is the type you have then you have a bit of control because you can time your meals.

    Yes it is called reactive Hypoglycemia. If this is true then it certainly would make me feel a little better, somewhat, maybe. I have to say though. I really really hate that word! :(


  13. I was excited to go to my first appointment with a dietitian to help me figure out how to treat my hypoglycemia because nothing so far is working. All the ideas and advice I have gotten from Doctors, friends, nurses whoever. Nothing has stopped them from happening. And when they happen there is no warning.

    My biggest fear is to be driving, one come on, me pass out and hurt someone. So I know it is reasonable to get help. Whether I have to take pills, needles or someone manages to figure out a diet that will level me out. I don't know.

    So!!! I walk into my appointment and the lady is looking at me strange. We introduce ourselves and she asks me how she can help. I say you tell me, you are the one who is supposed to help me with my Hypoglycemia. lol She does not miss a beat. She pulls out a piece of paper and proceeds to tell me that the first thing she wants to do is have me keep a log on Calories, Protein, carbohydrates, sugar and sodium I consume in one week.

    Side Note: If anyone knows me and my story I have been completely against spending huge amounts of my time planning what I eat. Let alone count it and log it. It has not been me. So I say look. i don't feel the need for that. She says we must get an idea of what you are eating because I think you are not getting enough carbohydrates in your diet.

    I tell her that since surgery I have eaten this way.....Protein, vegetables, fruit and then if you have any more room..Carbs! I don't plan on changing now! That is how I got heavy in the first place. Way to many Carbs!

    She said I understand how you feel but your surgery experience is not common. Not everyone gets hypoglycemia following WLS right. I said I did not know it could happen as it is a form of diabetes and isn't WLS supposed to improve your odds against diabetes. She said yes it should but you have not had an easy time and are suffering the consequences of the complications. So the conversation goes along and I agree to write down everything that falls into my mouth over the next week and she will look at it and see what changes she thinks I need to make.

    She said. You know I need to get up and go to my office to get some handouts for you. I said okay! She leaves and comes back. Sits down and pushes the Doctors note over to me and said here is what the specialist wrote and I had no idea why you were here. I looked at the sheet and in the reason for coming to her was ....Wait for it......OBESITY! I burst into tears and sobbed like a baby. She said I thought you were coming here to lose weight and then when I saw you I thought why! So I was very confused when you sat down and told me you had WLS. And how much you lost and some of what you went through.....She kept talking and I kept sobbing. I looked up at her and said, how could he write that word about me now. I don't understand. I have worked so hard and I went to him about my hypoglycemia." You can see why I was confused she said. I told her that that word was repulsive, horrible and downright dehumanizing. I would rather be called fat. She looked at me. I said you have no idea what we go through when we are your so called obese. And I spouted a few examples of my own before I had WLS.

    I said I think that that word will follow me to my grave. It has made no difference. He still called me obese. She apologized for showing me the form and said it was unprofessional of her. I disagreed. I think it was unprofessional of him. I think he does not know how to spell hypoglycemia. So he just threw obesity on the page.

    I cried for an entire day over that. I think it hurt so much because I have worked so hard for the opposite affect and that's how he saw me.

    She asked if I would come back to see her in spite of the form. I agreed to see her in a week!

    I have a good mind to call his office and ask him what he was thinking when he wrote that! And how it affected me! What a bozo!


  14. I too had a similar experience as you in some ways. I went septic after 3 days of surgery and was put in an induced coma for 19 days. Like you I had to learn everything again.

    It was trying and they gave me little to no hope of recovering. It is almost 3 years now and I have reached goal and am maintaining.

    I too have a lovely Trachea scar to remind me of the coma.

    I was able like you to look forward and remember why I did it.

    So happy you are with us!

    Please if you need to talk just message me! Remember that 50 % of the healing process is attitude. The other is hard work.

    Sending well wishes your way!


  15. I agree with your logic @@VSGAnn2014 concerning threads, topics and forums.

    But as you said it is in your opinion, just as it is in mine! It is difficult to put everyone in the same category. As everyone is different in so many ways.

    Dialogue is good, learning is good, instruction is good. it is all good!

    But there is a way of expressing thoughts, principles, information and ideas without being harsh, rude or belittling others. That is my opinion.

    The way we communicate with each other behind the mask of a computer does not give us licence to say what ever we see fit because it does not matter. No one really knows me or you. I concern myself with the possible negative affect because I told it like it is in my books. Instead of treating others with understanding and compassion like I would like to be treated.

    I know that this comes up all the time on the forums. Around and round we go. I feel this way, you feel that way and we defend our way of thinking and that's okay! I just worry about those ones that aren't as disciplined in their thinking not to give a dead ratz behind what others ( complete strangers ) think or respond to threads that they have written.

    I think that a lot of people have been treated with disrespect for a long time dealing with the issue of weight. Why add to it other then it gets a lot of people looking at the thread to see how it's going to turn out!

    It is exhausting! But that is just my opinion. It doesn't mean anything really.


  16. Who gets to draw the fine line? Who gets to say what is written here and what isn't?

    I think that all areas need to be discussed and all different ways of looking at things. After all. It has been pointed out to me in many threads as I made comments that I was not saying the right or correct thing.

    Well, guess what. I know that people get scared, and people feel buyers remorse and people might not even know why they made the decisions they have regarding WLS. Realizing that they are just human and that this entire journey is not as easy as they thought it was going to be.

    If we all learn something from a thread like this, great! But the last time I checked, I can make errors in information and ideas and hopefully someone would help me see my mistakes and teach me better without putting me down. Or laughing at me.

    It all comes down to helping one another instead of waiting to pounce when we read something that is not true. I am not offended by the way if it is me you are referring to.

    I understand your feelings on this as well. I just think that we are all human beings.

    Now I step down from my soap box!


  17. I do hope that when you get a little further down the road and the confusion of what to do next will escape you ( maybe not losing weight, stalls or even maybe gaining some back ) as it has for most WLS patients @@scarletwitch19 I hope that some one does not say the things you have said to this person. I agree that there is confusion in her thought process and even some misinformation, but it is her feelings and thoughts that she has taken the time to write out hoping for understanding.

    I would say that there are things about WLS that you don't know or have not been privy to because you never had to deal with them.

    Not every one has had a lovely experience with WLS. Not every one is prepared even if they think they are for what you have to do to be successful or deal with the emotional, physical or mental changes that can and do happen to many after surgery.

    I say never say never when it comes to how you may feel later on. Never point out mistakes that you think you may never make. And never say you must be doing it wrong...... And then laugh. Because the last thing that is funny is everything we have all gone through; good experience or bad to get where we are today!

    It is hard work and plenty of changes and fortitude to continue in this journey!


  18. @ RJ'S : I think some of us understood the underlying issue but for those who did not I give up, everyone has the equal right to express unhappiness, disappointment, and even grief after receiving any weight loss surgery, what no one has the right to do anywhere anytime is use fabricated numbers and statistics to persuade other people's ideas, opinions, or to create more confusion in them by doing so, it's bad enough that mainstream media does it everyday with things like " the number one killer in America is Cigarette smoking, no cancer, no drunk driving, no......" Get the idea??????

    Absolutely! Got it!!!!!


  19. I believe since this is a forum where name calling and fowl language is against the rules but expressing your feeling, thoughts and ideas are aloud. I feel that the OP has every right to list the reasons she feels that it was a mistake for her.

    It is up to us to learn what we can from her thinking process and see that we have the right education and fortitude to travel the WLS road if it is our desire.

    I can think of many times when I laid in the hospital for 5.5 months that I regretted my choice. Not to mention the year and a half it took to feel somewhat normal because of the complications. But I looked at it as a choice I made to better my health and well being and glad even after everything that happened that I made that choice.

    Would I have done it in my 20's or 30's. Looking back, oh yes! Would have saved me a lot of grief, health issues, expensive failed diets, verbal and emotional abuse from friends, family and strangers.

    As I come up on my third year being healthier. I owe it all to this marvelous surgery that truly gives us who are lost as to what to do or at the end of our ropes, feel we will never be able to feel better again, live a full life and feel good about ourselves.

    This surgery is not for everyone. People are allowed to have buyers remorse the rest of their lives if they want to.

    This site is for education purposes. I feel sad that the OP feels disheartened at her choice. I appreciate her views and have read them and understand where she is speaking from.

    It does not change my position on it. I am not going to try to convince her not to feel how she feels. It is what it is! So for the rest of us!

    Forward we go! Just keep swimming eh! And hope that as time goes on she will be in a better place with her choice of WLS.

    :)


  20. More then 2.5 years out and can still puke my guts out if I eat to fast or my stomach decides it is just not going to handle it. It is something we will live with the rest of our lives....

    Isn't it wonderful to continue to have the reminder that we have changed our life patterns for the better. This includes WLS!

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