Sannah

I think this is because the first time I saw her I told her I had been though a lot and wasn't interested unless absolutely needed. It's true, I am not interested in going through another surgery. I feel like with these stones i either endure the pain at home or have another surgery. It's like being stuck between a rock and a hard place. Neither option is great. Other then stating I don't want surgery. I was not offered surgery to deny it. This pain has made me reconsider, but surgery hasn't been offered to me. She told my hubby that I may need surgery, but wanted to do the urine tests first to see what kind of stones I have. Sounds like I need to bring it up. My PCP said they may need removed as well. It's all overwhelming and confusing. I just know I need this part of my life to be done a s over with.

Yes, I take zofran, promethazine and wear the transderm SCOP patch. I take Oxycodone 10mg every four hours. Dr. Said the combination of oxycodone, cyclonenoprine and Tylenol should help. When the pain gets bad I take Dalaudid in place of the oxycodone. Yes, I still was vomiting. I just vomit with the pain. Today the pain has been pretty low ranging from 5-7. I do not like to take medicine, I generally am not the type of person who uses OTC medication for much. After the sleeve I took Advil. I was able to keep some protein down at my dinner meal. I told the dr I don't want surgery in my appointment because all I have been through. So maybe she is trying to keep to this? It's a hard place to be. I talked to the nephrologist and my PCP, they keep telling me all this stuff I feel is normal for kidney stones. Then I talk to you guys and it doesn't seem so normal. It's confusing and scary.

Oh yes. thanks for you for your kind words!! ((Hugs)) to you!!!

Hi. Laura is absolutely right. My story is not typical. While I realize it's scary to read and it has been scary for me to endure. It has been hard for my family to witness. Please take away this one thing; listen to your body!! You know it best!!! Always better safe than sorry. Congrats on your sleeve!! Go rock your sleeve and gain health!!! In time I will catch up to you!!! Best, Sannah

Hi Laura, I hope your doing good. The last ct scan was clear of obstruction. That doesn't mean things are still the same. I was told I only pass one stone at a time. This is going to be a long road. I am trying to get some dinner down. Currently my heart is racing. Pain is bearable at a 5-6 on the pain scale. I am going to law down again.

Hi Lisa, No, you are right about size. But the dr said I can pass them. Does this seem odd to you? Last ct I had no obstruction. Doesn't mean this didn't change. I have been told everything I am experiencing is normal. To keep comfortable with medication. I am trying to eat dinner. I hope it stays down. I have not eaten much today and what I did eat so far didn't stay in. Odd since my pain isn't too bad today. It's running about 5-6 on the pain scale. It gets to be like a 25 (off the chart) when it's bad. Best, Sannah

Talked to the nephrologist today. She said I can pass stones this size. She asked tons of questions and told me this is all normal. She told me when to go to the ER. I drank 56oz today so far Peed 7oz so far Threw up twice. This evening my pain is not bad. Seems to have stayed away for a while. Dr is a little concerned about my low urine out put.

Yikes. I am feeling fearful after reading everything. The relief sounds nice!! I wonder why the nephrologist said I can pass the stones? Based in what you say it doesn't seem that I can. Scary.

Hi!! I love your new photo!! Your beautiful!!! How are you doing? I have had several, 4 in the last two and a half months. The last 3 show no leak and several kidney stones in each kidney. Unfortunately the nasty surgeon knew about the stones and never told me, even when I complained about back/kidney pain and trouble peeing... Best, Sannah

Hello, Hi. Thank you for all your kind words and thinking of me. I am struggling with the pain. I saw my PCP and everything I am enduring is typical. I now have firm guidelines for when to go the ER. -fever -pain that isn't managed -vomiting that isn't managed with medicine. I have been asked to take oxycodone every four hours regularly. When it gets bad I should use Dalaudid. I take zofran and promethazine to keep my nausea and vomiting away/ and to keep my food down. I will use these medications until the UA results come back, they determine what kind of stones I have. After we know for sure what kind of stones I have then they can be treated. Until then I am learning about pain. I am having a hard time with emotions. I feel so bummed and angry. Angry because that nasty surgeon knew about my kidney stones and never told me. I feel like formation of new stones could have been prevented, and not causing extra pain and suffering. The pain comes and goes. I can't really pin point what helps other than medicine. I have to lay down when the pain is severe. The doctor said it can takes weeks to months for the stone/s to pass. How do people do this? I know you guys think I should be in the hospital and I am sure my hubby agrees. I prefer to suffer at home. I did agree to seek medical intervention according to my doctors guidelines. I am also documenting my liquid input and output. I just can't imagine being hospitalized again. I hope that you are having a good week!! thank you kindly for supporting me. I will surely keep you posted on any changes. I also promise I will follow the guidelines my pcp gave me. Best, Sannah

Hi, I hope this message finds you doing well. My hubby called the nephrologist to make sure everything is normal. He suggested I go to the ER too. I am feeling stubborn and don't want to go. I am trying to get through this. Everything the doctor said would happen is occurring. I feel a lot of fear. I can't imagine needing surgery or being hospitalized again. That idea is really scary. So if I can stay at home in pain and try to be comfortable I will. It is at times too much for me to cope with. I vomit from the pain and the dr said this can and does happen. I do not have a fever, if one developed I will go to the ER. I am documenting input and output of fluids. Thank you for caring and being here for me. I am so thankful! . Soon I should be better. I feel nervous because of this pain. It brings a little anxiety after all I have been through. Best, Sannah

Look at you!!! So happy and beautiful!! I can see the happiness and positivity radiating from your face. Congratulation on being at goal and being so happy!!! You're an inspiration.

Hello fellow leak survivor!!! I hear you and feel all your pain!!! Stents are the just nasty and hard to endure. I hope to NEVER have them again!!! I had them for 6 weeks. Sounds like you completely understand what stents are like!!! I am happy to hear that you experienced relief. How are you feeling today? Are you still nauseated? Are you losing weight like you hoped? I am wishing you wellness!!! Best, Sannah

Hi I talked to the nephrologist last night around 10pm. This seems to be normal for kidney stones and I have several in each kidney. I am supposed to take the medicine and be comfortable as possible. Unfortunately there isn't much comfort to be found. I was able to pee twice yesterday. I peed this am about 6 oz. I fear the ER won't be able to do much good for me. Maybe give me more medicine. I already have tons of medicine here at home. I am awaiting test results to learn what kind of stones I have and how to treat them. But this takes ten days. Every doctor says I need to eat. I am trying to eat and I am getting in all my water. I am not feeling ok and not sure how much I can take. I know I need to dig to find strength but right now it's beyond hard. If I continue to struggle with eliminating urine then I will go to the ER. But I think this pain is normal for kidney stones. It's intense pain it's goes from my kidneys wraps around my body up into my breasts. My groin and bladder hurt badly. I think I could handle one kidney doing this. But two is just too much to handle. Best, Sannah

Hi. First off, I hope your weekend is nice and has been enjoyable. I am not okay. The pain is off the scale, more like a 20. I am having trouble peeing and both of my kidneys are causing me tons of pain. It's miserable. Right now the pain is down so I am posting an update. I am generally not functioning too well. Hugs to all Best, Sannah

Hi, I wanted to check in. I am alive and suffering. The pain is immense. I read all the lovely messages. When I am not in so much pain I will write back I hope your weekends off to a great start. Best, Sannah

Hi! Thank you so much for writing and offering the well wishes. It really does carry me through the craziness. Your support online is so nice and appreciated. I just looked at your cute little ticker and it appears that you're doing amazing!! Very nice work!! How are you feeling? Do you feel pretty normal? I am going to try and get some rest. I am pooped out after four medical appointments and the pain. I posted an update tonight. I hope you're having great evening!! BEst, Sannah

WOW-E!!! What a relief to no longer have kidney stones!! I hear you on the PTSD. I sure hope the Urilogist is right, that your healing.. But its said to hear that your still suffering from the pain!!! I hope this subsides real soon! How long has your kidney function been down? Do they expect the function to increase? Do you find the citrus helps you? Do you see a dietitian to help figure out what to eat? Thank you for always caring and sharing your story with me. I really appreciate this! Best, Sannah

Hi! I am not sure if I should write an update, because I don't have pleasant news and I don't to bring such negativity. However, if any of you had been going through a rough time I would like to know how your doing and read your updates. So, I decided I should share. Today I learned that the rude surgeon who performed my sleeve did NOT tell me the truth about my gallbladder. She told me I had stones and it wasn't functioning and needs to come out. Well today I met with my new surgeon, and she showed me the report and I do have stones and my gallbladder is functioning; its not causing me pain. Also I have several kidney stones. These stones were present in the last three CT that she ordered (since my leak). Until another doctor ordered the 4th CT and told me of the finding I had no idea I kidney stones, which are causing A LOT of pain. I asked questions about my kidneys and they would not answer my questions, but told me something must be wrong with my spine? I do not know why I was never informed of my health and conditions. I feel so mislead and upset. I feel I have the right to know the truth about what is going on in my body. Thankfully I do not have to see or deal with the nasty surgeon ever again! So, the great news is that I don't need to have my gallbladder out. I am so thankful for this. I saw the Nephrologist this morning. This is how I learned that I have several kidney stones in both kidneys that are about 1/4 of an inch. I am waiting for results from my blood. I also am doing a 24 hour urine collection and it takes 10 days to analyze. These tests will tell the nephrologist what kind of stones i have, and then we can make a plan to remove them. Until then I am in a lot of pain. Both kidneys hurt and the pain radiates up into my breasts, and down and sometimes around. The doctor told me to be prepared because passing these is going to be painful. The pain is very intense, it causes vomiting/nausea daily. The nephologist believes my stones are a result of this surgery (this will be confirmed with the testing). She can see in the CT scans that shows over time I am getting more. Unfortunately, if this is the case she said I will most likely continue to endure these stones for a long time. I also met my new surgeon today and she is AMAZING!! She was able to answer all my questions without judgement. This is a great feeling. I saw my PCP today as well and we went over everything. Almost three months post op and I am now receiving proper care. I also saw the nutritionist today. I can eat anything I want. I have a lot of fear of food and having a leak. Eating food didn't cause my leak, but after my leak I was told food can re open the leak! This fact has me backed into a corner. It's hard to feel this much fear. All doctors told me I have to starting eating more, but its hard. I am supposed to eat every two hours and need to consume fat?!? Weird right? The kidney problems do not help my appetite. I know things will work out, but right now I feel pretty bummed out. I am so tired of all the pain. I want to be healthy and not require so much care. I didn’t think I would need this up care and for so long. Its almost been three months. Oh Yes! Dr said its normal for me to no longer grow leg and armpit hair. It may come back one day, but right now its normal. So, I am going to live one day at a time. Take the pain meds and anti-nausea medicine to get what relief I can. I hope things improve.

Thank you. Me too I imagined being healthy and not requiring so much medical help at this point. Today has been hard physically and mentally. I am sure tomorrows appointments will bring relief and a health care plan. The few days of greatness that I felt didn't last long enough. I am sick of being sick. I just want to be healthy and no longer be a bag of stones!!! Your friend, Old bag of stones.