I am 19 yrs post DS surgery with Dr Rabkin .

I have recently been diagnosed with secondary hyperparathyroidism and wanted to know if I should see a endocrinologist? I have recently contacted PacificLap to do a consult about

this.

I have joined the DS forum also

I do have dental issues of osteoporiasis,

, autoimmune issues (some may not be related to DS surgery)

I am a retired RNMS and enjoy gardening, dogs, birding , book clubs, anything science, and nature

an endocrinologist would be more of a specialist in that area, but depending on your insurance company, you may have to get a referral from a PCP first.

re: osteoporiasis - is that the same as osteoporosis? If so, that's another area that some endocrinologists specialize in. I see an endocrinologist about my osteoporosis (which may or may not have been related to my RNY - it runs rampant among women on both sides of my family, plus I'm over 60 years old to boot).

See your endocrinologist

It does sound like an endocrinologist is the place to go. A few years ago in the Rabkin/Keshishian group in Ventura there was some discussion about such things and there was an endo down there who was DS knowledgeable that several patients had seen. There was a discussion about osteoporosis, calcium, etc. a couple of weeks ago on Rabkin's monthly Zoom meeting, so that would also be a place to check out to get some general knowledge on these topics, and certainly a consult with the doc can zero in on specifics.

From your other thread, it does seem like Prolia is the treatment of choice today - my wife (DS class of 2005) is on that and it seems to help.

Thank you for your suggestion. I have names of several endocrinologists. Issue is many are booked way ahead. I am having symptoms I am concerned about and hope I can get in to one that is a good one. So many are not good

Do you know anyone that has Secondary hyperparathyroidism?

I had the DS which is worse for issues I think. Especially since it is so long ago.

My fatique and mental issues with it are concerning, and I have recently had huge stressor with my husband having heart bypass and aortic valve surgery October 3 and he just got transferred to cardiac rehab. He had serious issues post surgery and I had a hard time not internalizing all the pain , confusion, etc he has had.

Thanks

Jackie