My secret wish came true. That I would never have to progress to a normal diet. Just kidding - I DO someday want to be able to eat normal friggin' food again. But a few days before my ER visit I started getting crazy nausea and dry-heaving and today my surgeon agreed I should drop back to full liquids from purees. The nausea really doesn't specifically seem food-related. Sometimes I wake up at 1am and dry-heave. Sometimes it's an hour after I eat. Sometimes, after I drink. Sometimes, 4 hours after I've eaten or drank. No rhyme or reason to it whatsoever. Whenever this all heals up, whatever it is, I feel like I am going to have a hard time "trusting" food again, after all of the horribleness from the ulcer and me correlating it to the nausea in one way or another. I'm on full liquids again until January 7th when I see the surgeon. Then ???? I can't even guess anymore. I've been on Zofran, Phenergan, Scopolamine, Pepcid, Reglan, Mylanta, Prilosec, and Compazine for nausea and nothing helps. I think I need an antacid or anti-nausea that hasn't been invented yet or something.

Fortunately I have my BEEF/SALMON protein isolate apple pie shakes to keep me company. lol. Mmm fish apple pie.

That sucks. Hope they get to the bottom of this soon and sort it all out.

Mousecat and I are charter members of No Way Puree. And when I heard from my clinic today. whoever canceled my Friday ESJ is going to be drawn and quartered, talked to Melissa and now it must be rescheduled. because my surgeon is formulating my future care plan on what scope shows. He wants it done and results back before January15th appointment tout suite!

1 hour ago, mousecat88 said:

nausea dry-heaving

@mousecat88

i'm so sorry you continue with your situation?

liquids for a couple of weeks - again!! wouln't wish that on my worst enemy

looks like you are doing everything right. seeing, consulting w/dr

i cannot/shouldn't offer you any medical opinion

all i have to give you is my shoulder to cry on (tissues included)

take care bud

Kathy

Sheesh...hang in there! I don't know how you're coping and working and everything. You're so strong, girl! If you need anything...I'm here! [emoji6]

10 hours ago, Hrsnjs said:

Sheesh...hang in there! I don't know how you're coping and working and everything. You're so strong, girl! If you need anything...I'm here!

I just tell myself that this is how it is for everyone. lol! It's easy not to eat when it hurts to, so I really don't mind it. It's the new normal.

I am proud of you for facing this strongly, ?? You are a very fine young Lady.

And has anyone ever needed a J-tube inserted? A doctor ( not,my surgeon) mentioned it as an alternative, think I would prefer my PICC LINE which I am starting to develop a truce with, to an J-TUBE through my abdominal wall. What think all of you?

21 minutes ago, Frustr8 said:

And has anyone ever needed a J-tube inserted? A doctor ( not,my surgeon) mentioned it as an alternative, think I would prefer my PICC LINE which I am starting to develop a truce with, to an J-TUBE through my abdominal wall. What think all of you?

I haven't had either, but I don't know if I would want anything else messing with or being inserted into my GI system when I already had issues in that area. If I had an option and was in a similar situation, I think I would opt for the PICC. Did they put it in the bend of your arm? That would be really annoying...

No about half-way up between there and the shoulder on the inner side. The two tubes with their caps do hang down to the fold. I usually put an ABD under them so they don't rub and bug me and cover it with a slim elastic bandage through the day. And night of course I have the TPN pumping him I just can't unscrew the caps off so my son helps with that but I do 85--90% of it myself. No harder than putting mascara on or curling your eyelashes. Takes me 5 to 8 minutes total, worst part is the keeping things clean and sterile. And remembering to take the bag out of the fridge 3 hours before use so it will warm up, and I put my vitamins in just before it's started. Got pretty good at drawing the stuff up into the ? syringe, 5 ml of each one. Yellow is the fat soluble -smelled just like baby vitamins, the other one is clear, maybe water- soluable? Anyway after they are in you rock the bag like it was a baby, mixes everything up nicely. Oh it will be nice if someday i can eliminate it all, but considering if not I could have stayed malnourished, given myself a heart attack and died. I'm too ornery. to go quietly!????

I just cannot wait for my appointment on the 7th. I decided to keep a log of each time I get nauseous, starting today, so he has an idea of the frequency. I have no clue if it's the ulcer anymore or what. It's so deterring trying to swallow anything when you KNOW it's going to make you sick. You'd think I would be rail thin by now! lol.

Well it's morning, first trip to BR, took liquid calcium, made sure C-pap had more distilled water in chamber, put it back,on, laid back down before stomach started to rebel, and thinking peaceful & calm thoughts. Had good blood draws yesterday so should hear from TPN dietician & pharmacists today And maybe also the scheduler at Bariatric Cl8nic about rescheduling the scoping for next week? Sooner I know, sooner I can make sure I have transport to Columbus. Tummy too uncertain yet to make a shake, try to wait a couple hours, want to keep the calcium in me instead of wearing it. Like ?? I am rather untrusting of foods. Since my TPN. is calorie sufficent it's not mandatory I eat but I try for my protein enriched shake, Miralax enhanced, made with skim milk. May take all day to get the 16 oz down but by nightfall it will be gone and it will be hook-up time. Was worried when I weighed myself at PCP office, seemed the same instead of a loss, but last night my sluggish #2 came and came and came. See I no longer go once a day like I did in days of yore. And 3-5 pounds easily, well it did save me from MoM therapy today. But 3 flushes? to clear out the bowl?, soft, lump, soft & lump. But I feel considerable lighter if not brighter.
When its been 30 minutes, I'll start on my 2 oz cuppies every 15 minutes of no-cal flavored water. Never thought I would regress back that far but it keeps me from dehydrating the 10 TPN hours off, doesn't it?
And I got compliments that my color is better, I look less stressed, and 2 people on the periphery of my life complimented, actually noticed and complimented me on weight loss. Well I wasn't doing my Weight loss for them, but positive affirmation is NICE, isn't it????❤

Well I made chili before this blasted winter storm set in, tried some of it, up it came. Broths okay, my powdered whey strawberry powder in skim milk, propel water, but still living off TPN through my PICC line. Last blood draw I am deficent in the iron, so check surgeons office Monday for recommendations. Maybe Feosol? Everything is cool otherwise. Seem to have a small bm every other day, hope iron supplementation won't send me into constipation, cause that is a dastardly thing to happen.?

On 1/19/2019 at 6:17 PM, Frustr8 said:

Well I made chili before this blasted winter storm set in, tried some of it, up it came. Broths okay, my powdered whey strawberry powder in skim milk, propel Water, but still living off TPN through my PICC line. Last blood draw I am deficent in the Iron, so check surgeons office Monday for recommendations. Maybe Feosol? Everything is cool otherwise. Seem to have a small bm every other day, hope iron supplementation won't send me into constipation, cause that is a dastardly thing to happen.?

The surgeon said I can start trying harder foods now but I prefer soft. I did have some steak the other day but two hours later the steak came up! It must have been stuck somewhere and just took a while for my body to realize it. I still pretty much eat only puree/very soft. I don't mind it. Sometimes I do all-broth days.