I had weight loss surgery in 2003 since then I have had majior complications. I now am unable to eat or drink enough and absorb it to keep me alive. So I have a port a cath implanted in my chest that I get hydration and TPN ( food ) from at night. I'm 38 and they just told me yesterday I am out of options and this will be my normal. That would be okay if the tpn didn't attack you over and now put me at stage 3 liver fibrosis. I feel so defeated physically and psychologically. Anyone else experiencing anything similar!?! I'm in rough spot andcould sure use some advice!

There must be some underlying cause as to why you needed to be fed intravenously in the first place.

Still, sorry to hear about that.. I've never heard of this before your post, it seems extremely rare if caused by the surgery.

Apparently one of the side effects of this is liver disease, so I hope they have you on some type of anti-fibrotic medication to slow the progression into cirrhosis -- I heard some are coming down the line. Initially I was going to be involved in trials in a few years but my liver has healed substantially making it moot.

Edited June 15, 20179 yr by PatientEleventyBillion

I was TPN for a bit but that was due to other circumstances. I do have problems but nowhere near as tough. I don't know what to tell you.

I'm so sorry. It's horrible that we go through so much to be healthier and sometimes it just turns into something else. I will say a prayer for you that they can do something to help you.

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WOW!! That is a lot to handle!!! So sorry. I know that isn't much but I truly am sorry. You are a young person to have to face this. I hope you have someone to help you and even just be there for you. HUGS I wish I had more to offer but at least know I care about you.