anyone here have iih?? ive been in remission for about 6-7 months now just had surgery september 22 so i'm about 5-6 weeks out, and my whooshing sound in my ear has just came back. i'm praying the headaches/eye issues stay away. but just wanted to know if weight loss cured you or made you worse? my neurosurgeon swore if i lost 20 pounds i would be cured well i'm down 37 and it's starting again

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I never heard of iih, so I looked it up.

iih is idiopathic intracranial hypertension.

An estimated 100,000 Americans have IIH, and the number is rising as more people become obese or overweight. The disorder is most common in women between the ages of 20 and 50; about 5 percent of those affected are men. Obesity, defined as a body mass index (BMI) greater than 30, is a major risk factor.

Intracranial hypertension is a condition due to high pressure within the spaces that surround the brain and spinal cord. These spaces are filled with cerebrospinal Fluid (CSF), which cushions the brain from mechanical injury, provides nourishment, and carries away waste.

The most common symptoms of intracranial hypertension are headaches and visual loss, including blind spots, poor peripheral (side) vision, double vision, and short temporary episodes of blindness. Many patients experience permanent vision loss. Other common symptoms include pulsatile tinnitus (ringing in the ears) and neck and shoulder pain.

Intracranial hypertension can be either acute or chronic. In chronic intracranial hypertension, the increased CSF pressure can cause swelling and damage to the optic nerve—a condition called papilledema.

Chronic intracranial hypertension can be caused by many conditions including certain drugs such as tetracycline, a blood clot in the brain, excessive intake of Vitamin A, or brain tumor. It can also occur without a detectable cause. This is idiopathic intracranial hypertension (IIH).

Because the symptoms of IIH can resemble those of a brain tumor, it is sometimes known by the older name pseudotumor cerebri, which means “false brain tumor.”

Although I am not a doctor, it seems to reason that if iih is caused by obesity, reversing the obesity might reverse the condition. So I would give it a little more time to jump to conclusions. Shoot towards a goal of below BMI=30.

yeah but idiopathic means they don't know what causes it so they just assume weight. ive met people who are below a normal bmi with it. was just curious if anyone is farther out and it worked for them ive heard mixed stories. so i'm very curious. i just don't want to have to get shunt surgery which is next if this fails.

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