Starfish23

Oh I am so glad things are looking up for you. I mean it’s not where you expect it to be but you’re eating and it sounds like your creativity is paying off. Sounds yummy. I’ll Check back on you and hopefully you will continue to heal quickly. We all have a different path to follow on this journey. At the end the day as long as were healthy that’s all that matters

So happy to hear that!!

My stomach had the opening of a pin. He is furious with the surgeons because they pretty much blew me off saying it wasn’t possible to have a stricture and lo and behold here I am. The first endoscopy opened it a tiny bit for water and juice to pass through. So I have been sipping water and juice. So glad I don’t have to go to the hospital anymore for IV fluids every other day. My next endoscopy is Monday and this is going to be for a series of weeks until they can get it big enough so that I can actually swallow something. Not a good scenario. If anybody is reading this and you feel that you cannot swallow something and your doctor says it’s acid reflux, run to your Gastro because your doctor is wrong. Orchids, thanks so much for lending me an ear throughout this ordeal. How are you making out? I know you have stuff of your own going on.

Are you on omeprezole or Protonix? You should be.

Praying for you. Did they see it on the barium x-ray? I hope you’re ok. Let us know how you are doing. Lots of hugs

I will send pics from Greece! Praying I get there. Going for my endoscopy apt this morning to see exactly what’s going on and to start the stretch of the stoma so I could at least liquids down. Went to hospital again yesterday for hydration so I’m ready for this procedure. Pray for me please !

Gross gross gross. I can actually gag thinking about it

MdmMardott. Which unflavored protein powder did you use? I tried GenePro and it was disgusting. Returned it to Amazon. Thank goodness they take returns like that. Is there one that has no horrible after taste?

Prayers to everyone for all of your specific needs. Please pray for me as well. They think I have a stricture which means I’m still of clear liquid bcus my opening closed to a pinhole. I’ve been going to the hospital for every couple days for IV hydration. I’m starting a weekly endoscopy on Monday to balloon the opening so I can eat. I have 5 weeks until I go to Greece. Doctor said I may not be able to go if the stoma isnt stretched enough by that time. My prayer request is to have this all worked out so that I can be healed and that I may go on this trip. Love to you all

Get SF ice pops, SF jello. For purée phase get SF pudding, soups, baby food squeeze fruit and oatmeal pouches Good luck with everything!

These vitamins are great. They are like a pixie stick powder. From what I understood, my doctors group put these together and have everything you need. They are delish! I was using the patches but the can’t get wet and in the summertime I found myself not putting them on during the day and then forgetting at night. This one is easy peasy and it’s like a candy treat!

Went to gastro today. I have a stricture. He feels I only have what amounts to a little larger than a pinhole to process liquid. Obviously no food for me. Back on clear liquids. Going Monday for the first of a series of endoscopies to insert a balloon to make an opening. My doctors didn’t listen to me for the last 2 weeks and we’re brushing it off as “sometimes this happens”. “Probably just a little swollen”. “ you have acid”. Until last night I called them that I as going to the ER. A different doctor called me that was on call and thank God for her because she told me to get to the hospital immediately and she would contact the Gastro and she got the ball rolling. Obviously the other Doctor Who I was seeing wasn’t taking me seriously.

Yes. No problem before

Good luck mhysteik!

RichM. The doctor told me that they leave an opening approximate size of a dime so any swelling on top of that would close the whole pretty much and that’s what’s happening to me. Was in the ER last night with dehydration they let me out this morning. My doctor told me to go to the Gastro doctor and he will have to stretch the stoma by inserting a balloon through an endoscopy. As of right now I feel like it’s about 90% close because even water doesn’t get through. It will sit there until I throw it up