My daughter has alopecia totalis, started when she was about 12. We tried the topical creams and treatments, but I drew the line at systemic steroids and we focused on getting her the best scalp prosthesis we could. She did incredibly well once she moved to a vacuum wig and a couple of years ago her hair started growing back. She ditched the wig about a month ago (she's 19 now) and is growing in a full head of hair with only one thin spot. Now she's been diagnosed with an auto-immune arthritis, so we're heading down the rabbit hole on that one now.
Hugs for going through it, it's terribly traumatic.
I hope her arthritis isn't too bad. So happy her hair grew back. Mine has been gone for 24 years. I tried an experimental drug last year. I did get some regrowth but also gained the weight. I stopped taking it because of the weight gain.
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